Discussions By Condition: I cannot get a diagnosis.

Prostatitis? I don't think so. Can you help?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • August 24, 2010
  • 03:43 AM

I'm a 36 year old male with no history of health problems. The recurring diagnosis I keep being given is prostatitis and given multiple rounds of antibiotics/naproxen. No infection was ever confirmed (urinalysis or bloodwork). Last November I started noticing extra "dribbling" after urination. I didn't think much of it. In addition to that, I started noticing random spasms in the area between my scrotum and rectum. I did not visit a doctor at this time.

In February, we had a large snowfall and while I don't recall a specific instance, I remember my lower abdomen muscles burning a lot while shoveling the heavy snow (multiple feet). 2 days after this I was scheduled to have sperm analyzed. We had been trying to conceive our second child for a year and that was the next step in figuring out what was going on. That day I started to get a pain in the area between my scrotum and rectum. The pain continued for 4 days and I made an appointment with my family doctor. He did a prostate exam, said everything was normal and gave me Cipro for a suspected infection. Got a reaction to Cipro, so I was given Augmentin.

The groin pain started to come back and a week later when I was in unbearable pain I went to the ER. A prostate exam revealed a boggy prostate and I was given Doxycycline and Naproxen. The Naproxen immediately helped the pain. I followed up with a PA at the urologist 4 days later, No prostate exam, but they put me on Bactrim and continued the Naproxen for 21 days. Sperm tests showed not-optimum morphology. Further sperm analysis was to wait until after my treatment. After 14 days, I had a reaction to the bactrim. I was told to just stop taking everything. During all of this, when the pain was bad, my inner right thigh would feel a burning all the way down to my right toe. I was referred to a Neurosurgeon for testing. I also started to get tremors of varying degrees throughout my body. Most noticable when sleeping on my back.

The neurosurgeon said I had hyperreflexivity and ankle clonus. Lumbar MRI showed slight disc herniation but not impinging on the cord. Thorassic MRI shows a sac of spinal fluid around my spine but every doctor who has looked at it say it's "unremarkable". Neurosurgeon gave me a steroid which didn't help the groin pain but helped the leg cramping/burning. Nerve conduction tests were normal. Referred to a neurologist. Groin pain continued. I wanted a 2nd opinion so I saw a new family doctor. Again diagnosed with prostatitis but no infection was confirmed. Was given a 30 day course of doxycycline and naproxen which I finished. Somewhere in this time period the groin pain started to subside. After the 30 days, re-examination by the doctor revealed tender abdomen (and pain!) and pain in the inguinal area. Ruled as a "sports hernia".

We found out that my wife was 4 weeks pregnant at this point! While I had the groin pain, I still had urination dribbling but no groin spasms. When the pain left, the spasms returned. Saw a neurologist who felt the tremors. Cervical MRI and Brain MRI normal. Multiple blood tests with "normal" results. She said my exam was consistent with spinal injury.

I've had dark circles under my eyes since Feb. In May I started noticing that my voice got hoarse much quicker than it should. As a singer, I am aware of how my voice should "react". Tremors are not as bad as they were but still present today. Physical exertion seems to make the tremors worse (after the activity). My leg muscles/tendons in both legs seem extra sore/tired than they should be. I wasn't running, I was lifting while working around the house.

3 weeks ago returned to the doctor, boggy prostate. More doxy and naproxen. I have SSEP testing scheduled this week. I went to an ENT on my own who saw redness in my throat and gave me Nexium thinking it may be reflux.

I am frustrated, have no answers and waiting a lot. Can you help?

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5 Replies:

  • I don,t know if I can help but after reading your blog you really got me thinking what tests I might have to go through. I have skin problems galore and rare instances of bloody urine.Drink more water,dude,that might help you.Good luck.:cool:
    bigboy 64 Replies
    • August 25, 2010
    • 05:22 AM
    • 0
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  • Your symptoms are familier to me... Prostate problems off and on for decades. Good Grief they've given you a lot of anti-Bs considering you have no sign of infection. I think my problems are/were "congestive prostatitis"... Perhaps yours are too! Too much alcohol, and any coffee at all, as well as abstaining from sex will send me into relapse. The fix? Avoid coffee and see if this helps. If you drink (alcohol), cut down, or start taking NAC (N-Acetylcysteine) from the vitamin shop. It's the acetaldehyde from alcohol metabolism that inflames the prostate and NAC will help this. Never go more than 3 days without a sexual release. More is better! Keep moving those evil humors out of your gland! Every other day is ideal. Don't know if this will help you, but it might be a better treatment than all those anti-Bs. This really did work for me. Good Luck and GodSpeed. Let us know if this helps.
    synesthesia 87 Replies
    • August 25, 2010
    • 05:48 AM
    • 0
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  • Thanks synesthesia I will try taking NAC. When the pain was really bad and I was told it was prostatitis I had avoided coffee and alcohol altogether. Once the pain subsided I started drinking coffee again (decaf or half-caffeinated) and at most 3 or 4 cups a week. I was drinking 2-3 cups a day prior to all of this. I started drinking alcohol again but very moderately. At most 3-4 beers a week, which was the normal amount I drank before.With avoiding coffee and alcohol and trying to take NAC, how long did it take before you noticed significant reduction in your symptoms?
    Anonymous 42,789 Replies
    • August 25, 2010
    • 11:27 PM
    • 0
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  • Once you've got an angry prostate and stop the irritation, getting rid of the evil humors should fix you up quite rapidly. I'm usually better the next week once I start "draining the gland" every other day or so. A few beers a week shouldn't hurt you... My guess is it is the coffee. One cup can send me into a cramping painful relapse. I don't know what it is about coffee. I can drink tea, no problems. Don't know if the NAC will help with coffee too, but it's worth a try if you love your java. Wait till you're better... Then add your beer in moderation and see if you really need the NAC. You probably don't. I was a joe 6 pack (every day) and that caused me problems. Then you might try a cup o' joe with some NAC and/or regular sex and see if that works. You might be able to have your cake (and beer and coffee) and eat it too. Good Luck
    synesthesia 87 Replies
    • August 26, 2010
    • 02:18 AM
    • 0
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  • For 4 years I have suffered from symptoms consistent with those described by those who suffer from Chronic Prostatitis and Pudendal Neuralgia. I have even been diagnosed with those disorders although not to the extent that I felt satisfied with pursuing medical procedures. I was recently diagnosed with a Labral Hip Tear - the Orthopaedist who diagnosed me stated that most if not all of my symptoms could be attributed to a labral hip tear: • burning in testes• burning when I sit• back of glute and genital pain• SI Joint pain• tip of penis pain• spreading burning after long periods of sittingI am very very concerned that there are many men and women who need to have this examined before pursing treatment for prostatitis or pudendal neuralgia. If you are an active person who suddenly started having groin pain - instead of accepting the Chronic Prostatitis diagnosis - have your hip checked out - it could be a labral tear. Dr. Meyers in Phili.
    Anonymous 42,789 Replies
    • October 13, 2010
    • 06:00 PM
    • 0
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