Discussions By Condition: I cannot get a diagnosis.

Prolonged Symptoms With No Diagnosis Please Help!!!

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: llelnino
  • April 19, 2008
  • 04:18 AM

For the past 2 years I would get the flu and get over that fine but just as I was getting better I would get hit with a stomach virus and it would take me another month or so to recover from that but for the past 2 years it has been a very slow recovery. My symptoms for the first week would start as fever, diaherra, loss of appetite, chills, then as I slowly got my appetite back would be fatique, headaches, dizziness, aches, chills, sensitivity to light and temperature, blurred vision, excessive thirst, frequent urination, it almost feels like I have a slight sunburn on my face. These symptoms sound alot like Lupus or maybe Diabetes. I got a complete CBC and Urinalysis done and they came out negative. I even did 2 HIV and 1 STD test, TB and they were all negative. My doctor has pretty much given up on me she wanted to send me to a mental health clinic and to a Infecteous Disease Clinic and to have an EKG done. She pretty much thinks that it is all in my head but I know what I am feeling. Please Help.:(

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8 Replies:

  • have they ruled out celiac disease yet? It doesn't explain the whole picture, but might be worth checking off the list.
    Anonymous 42789 Replies Flag this Response
  • Well, I pretty much guarantee you it is NOT in your head...boy can't count the number of times I have heard that one.... Check out thyroid and if you are mid to late thirties (and a woman) perimenopause both of these (believe it or not) can account for many of the symptoms you mentioned and a women's menstral cycle (at least for me) does make it harder to get over stuff...If I am going to get the flu or a cold it is almost ALWAYS around the time of my period! I really hate that when all that is going on at once! Look up on both of these conditions to see more symptoms. For thryoid Mary Shomon's site is good. For perimenopause www.power-surge.com is good. Perhasp the prolonged illness is really just some underlying condition as the two I mentioned...just a thought and easy to test for at least the thryoid one. You also might want to check out having some tests on kidney (have you had a kidney or bladder infection lately?) and adrenals come to mind. Joan
    Joan5555 316 Replies Flag this Response
  • Sounds like it could be chronic fatigue syndrome (CFS). This illness is typically often very flu like and all your symptoms are common with it.. eg sensitive to light and frequent urination etc I suggest to find a CFS specialist to help rule out other CFS like illnesses and possibly give you a CFS diagnoses if you do have this. Most GPs are not educated much at all about CFS (it apparently takes 15 years for newest info on illnesses to enter the mainsteam knowledge of doctors!! Currently most havent had much training on it thou now it is recongised as a valid illness). If you do have CFS... there are certain tests which can be done to help some to confirm that, a person with CFS does show up some abnormalities if the right tests are all done, (diagnoses thou is often just done on having relevent symptoms).
    taniaaust1 2267 Replies Flag this Response
  • I'm sorry I am a 28/yo Hispanic/American Male. Thank you all very much for all of your feedback. I was just looking at Chronic fatigue syndrome and I do have many of those symptoms. I do feel that I have psychological problems ie. (Brain Fog, Depression, irritability, mood swings, anxiety) but I feel that this is brought on from the uncertainty of my situation and the fact that I'm not able to work, therefore No Benefits. I have been looking into maybe seeing a Rheumatologist, or maybe even an Infecteous Disease Center i'm just not sure my funds are very limited.
    llelnino 13 Replies Flag this Response
  • have they ruled out celiac disease yet? It doesn't explain the whole picture, but might be worth checking off the list. It is a general practice clinic so they are limited but I am looking into getting checked for that as well. Thank You
    llelnino 13 Replies Flag this Response
  • Well, I pretty much guarantee you it is NOT in your head...boy can't count the number of times I have heard that one.... Check out thyroid and if you are mid to late thirties (and a woman) perimenopause both of these (believe it or not) can account for many of the symptoms you mentioned and a women's menstral cycle (at least for me) does make it harder to get over stuff...If I am going to get the flu or a cold it is almost ALWAYS around the time of my period! I really hate that when all that is going on at once! Look up on both of these conditions to see more symptoms. For thryoid Mary Shomon's site is good. For perimenopause www.power-surge.com is good. Perhasp the prolonged illness is really just some underlying condition as the two I mentioned...just a thought and easy to test for at least the thryoid one. You also might want to check out having some tests on kidney (have you had a kidney or bladder infection lately?) and adrenals come to mind. Joan I'm sorry I am a 28/yo Hispanic/American Male but thank you Joan
    llelnino 13 Replies Flag this Response
  • I'm sorry I am a 28/yo Hispanic/American Male. Thank you all very much for all of your feedback. I was just looking at Chronic fatigue syndrome and I do have many of those symptoms. I do feel that I have psychological problems ie. (Brain Fog, Depression, irritability, mood swings, anxiety) but I feel that this is brought on from the uncertainty of my situation and the fact that I'm not able to work, therefore No Benefits. I have been looking into maybe seeing a Rheumatologist, or maybe even an Infecteous Disease Center i'm just not sure my funds are very limited. Be aware that if you do have CFS and cant work... disability payments in many countries can be applied for. 25% of people who have CFS, are severe enough..to be on disability. CFS is less common in males..25% of CFS people are males.. so doctors may not diagnose a male with it as fast as a female. CFS often brings on a distinct kind of brain fog eg problems with word loss, problems with comprehension (eg the brain zones out) etc etc
    taniaaust1 2267 Replies Flag this Response
  • I found several doctors in my state that specialize in CFS so now I am in the process of getting medical insurance so I can go get checked out. I am so tired of not knowing what is wrong and feeling like crap. :(
    llelnino 13 Replies Flag this Response
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