Discussions By Condition: I cannot get a diagnosis.

progressive muscle weakness still no answers

Posted In: I cannot get a diagnosis. 499 Replies
  • Posted By: just a dad
  • February 5, 2007
  • 09:50 PM

hoping someone might have some ideas, have had progresive muscle weakness for approx. 10 years. i can still talk and walk and go to work (desk job) but it is getting harder to do.

i have had 2 mri's, cat scan, emg's, 1 muscle biopsy, and tons of blood tests, everything comes back normal but i am still getting weaker.

the weakness is legs, arms, hands, face, everywhere. no numbness of tingling at all.

tried lots of different natural cure but nothing ever help and still no doctor can tell me what i have.

any ideas anyone.

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  • Hi:D I'm so sorry you're struggling with this problem. I also have muscle weakness in my arms and legs. Has any one ever suggested M.E. (Myalgic encephalomyletis) also known as Post Viral Fatigue Syndrome. It might be worth asking your G,P, if he thinks this could be the problem. Unfortunately there is no diagnostic test, just a matter of listening to the patient and excluding other possible causes, which you seem to have done.Write back to me if you need a chat.:) Beryl
    Anonymous 42789 Replies
    • February 5, 2007
    • 10:18 PM
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  • I know how you feel I have been sick for about 9 months. my muscles in my arms and legs are getting weaker and weaker. I have upper back and chest pain all the time I get pains in diffrent parts of my body that i never had before. had lots of blood work and abdominal ct scan done the scan showed very fatty liver and inlarged spleen docters said that that would not cause my symptoms. blood work showed hi feritin 815, they thought it might be lymphoma but now they are trying to tell me it is just stress. I am a big physical guy 6'5 290lbs and now im 260 and can barely lift my 1yr old.thats not stress and I am not sure where to go next. I hope you get some answers soon.
    hunter 13 Replies
    • February 5, 2007
    • 10:28 PM
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  • thanks for responding, what is the diagnosis for the weakness in your arms and legs? jad
    just a dad 116 Replies
    • February 5, 2007
    • 10:29 PM
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  • there only diagnosis is stress and there wrong
    hunter 13 Replies
    • February 5, 2007
    • 10:32 PM
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  • I used to do alot of power lifting and stress would not make me so weak that i can barely lift my kids.
    hunter 13 Replies
    • February 5, 2007
    • 10:35 PM
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  • hey hunter, i have two boys of my own, one is playing hockey now and i don't have the strength in my legs anymore to be out there with him, i feel your frustration. i am going to see my doctor on wednesday and ask him to do an extensive check on my thyroid but i am quickly running out of idea's. for you hunter i would reccommend getting a second opinion. i feel more and more like we have to push all these doctors to go the extra mile and find out what is wrong with there patients. good luck,jad
    just a dad 116 Replies
    • February 5, 2007
    • 10:36 PM
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  • beryl thanks for responding I will ask about that.
    hunter 13 Replies
    • February 5, 2007
    • 10:37 PM
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  • I agree I am going to go to seattle wash. and get some answers.
    hunter 13 Replies
    • February 5, 2007
    • 10:40 PM
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  • hy beryl, i googled it and had read up on chronic fatique before and it just doesnt fit, i have energy just slowly loosing strength. the other symptom i have is the muscle flutters, get lots of those two. what is the cause of your weakness beryl? jad
    just a dad 116 Replies
    • February 5, 2007
    • 10:41 PM
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  • jad are you having any pain.
    hunter 13 Replies
    • February 5, 2007
    • 10:44 PM
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  • hunter,i am not really having any pain unless i over stress my muscles, however for the last 3 weeks my legs have been aching not stop. i think they have weakened to the point where they just can't handle normal everyday activity.pretty scary stuff.jad
    Anonymous 42789 Replies
    • February 5, 2007
    • 11:02 PM
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  • Are you taking any statin medications for high cholesterol? If so read this study from Univ Cal San Diego that explains how the statins reduce coenzyme q10 and causes muscle weakness and wasting.http://medicine.ucsd.edu/SES/adverse_effects.htm
    Anonymous 42789 Replies
    • February 5, 2007
    • 11:32 PM
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  • i have not taken any cholestoral lowering drugs however i have been on blood pressure lowering drugs for about 20 years.jad
    Anonymous 42789 Replies
    • February 5, 2007
    • 11:54 PM
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  • Has Lyme disease been ruled out?
    Anonymous 42789 Replies
    • February 7, 2007
    • 11:56 AM
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  • i don't think lyme disease was ever looked into, not sure how to test for it but i will look into it. not sure if lyme disease could last 10 years but what do i know.thanks for the suggestion.jad
    Anonymous 42789 Replies
    • February 8, 2007
    • 04:34 PM
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  • Low cortisol levels in your blood can produce overwhelming muscle fatigue. Low cortisl production can be caused by either pituitary or adrenal gland dysfunction. The pituitary gland stimulates the adrenal gland which produces cortisol. Ask your doctor for an AM (morning) and PM (evening) cortisol blood test. I know about this; I had secondary Addison's disease brought on by steroid injections, although there are other causes of adrenal dysfunction.
    Anonymous 42789 Replies
    • February 8, 2007
    • 06:10 PM
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  • thanks, i will get an appointment and push for the test.jad
    Anonymous 42789 Replies
    • February 8, 2007
    • 08:45 PM
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  • http://www.ourlittleplace.com/jackimcs.htmlhttp://www.amazon.com/My-Office-Killing-Me-Building/dp/0801883415/sr=1-1/qid=1170970409/ref=sr_1_1/103-2431938-5443004?ie=UTF8&s=books
    Anonymous 42789 Replies
    • February 8, 2007
    • 09:34 PM
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  • will low cortisol cause actual muscle pain? JAD, lymes disease will last for ever and can cause some serious problems if not treated. the probleme is that it is hard to detect it in your blood alot of people have had to take 5 or six tests before getting a pausitive one. so if you get tested for it and it comes back negative dont rule it out.
    hunter 13 Replies
    • February 9, 2007
    • 06:07 AM
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  • thanks hunter,i will keep that in mind, one of my problems is i don't have a doctor who looks outside the box. i had to twist his arm to get him to test my thyroid as he said that everytime he does a blood test the thyroid test normal.how about you hunter, have you found any answers for your self?jad
    Anonymous 42789 Replies
    • February 9, 2007
    • 04:28 PM
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