Discussions By Condition: I cannot get a diagnosis.

Progressive Muscle Weakness, still no answers

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • November 2, 2007
  • 00:03 PM

In response to the above - 'Just a Dad' and 'Hunter'. Apologies if this has been mentioned, but with all your responses I was worried you would not see my response, therefore the new thread.

I supposedly got glandular fever at the age of 32, which involved severe muscle weakness and fatigue. At the age of 33,34,35 I suffered many bouts of pleurisy, breathing difficulties, chest pains, of which today I still have my moments. At the age of 35 I started getting distinct inflammation type pain in both my leg femur muscles and general weakness in fingers/hands and arms. I have seen many specialists and GP's who all carried out at least 5 thyroid tests of which ALL were clear, including the latest one this year for parathyroid. I have been seeing a Neurologist since June 07 and yesterday, he finally came up with the diagnosis of Myositis. He has hit is on the nail. I have not been able to swollow tablets since the age of 29yrs and I get tired just swallowing my food (this has also been mistaken for anxiety/depression). I am unable to walk up 2 flights of stairs without feeling like I am about to pass out. I even sleep whilst I drive!. He carried out an EMG and Nerve Conductor test, although these showed no nerve damage to the muscle and only slight muscle inflammation, on the history of my symptoms he has diagnosed me with Myositis. I am now going to go on a course of cortisone treatment for 1 month. This muscle disease is not muscular dystrophy - there is no muscle wastage, but definite muscle degeneration in its use. By the way all my blood tests also came back clear, but I still got this diaganosis and this in itself is a wonderful relief. Please look into it and I hope you both soon find what is troubling you. This illness can take months to years to manifest, therefore it is difficult to diagnose and the patience one needs just seems endless, especially with Drs who make misdiagnosing part of their practice.

Take care

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