Discussions By Condition: I cannot get a diagnosis.

problems with my legs

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: kaylen
  • December 10, 2011
  • 01:29 AM

ok so it all started in september of this year.. I woke up with really bad hip pain in both hips... and that had been going on for 3 weeks and then i had sex with my husband and then my legs just stop working altogeather... and the next day i could walk again but not with out help and it has been 2 months since i could walk on my own. I have seen 4 dr.'s and none of them have any idea what is going on... I don't know were or what to do next...if anyone has any idea what is going on with my legs i would love to know... I have also had 2 MRI's of my spine and one of my brain and all came back normal.

Reply Flag this Discussion

3 Replies:

  • Have you had any issues with your hips, spine, legs, or back before? Are you experiencing pain? Is your level of impairment constant, or does it change throughout the day?Can you describe how your walking has been affected? For example, do you have problems with:BalanceWeaknessCoordinationDo you have any other medical issues? (Examples: diabetes, previous injury, thyroid, etc.)--Dave
    Anonymous 42789 Replies
    • December 14, 2011
    • 02:17 PM
    • 0
    Flag this Response
  • it started out as hip pain for 3 weeks and then my hips locked up and then they stopped working for 24 hours and from that point on i can't walk with out help. i have had shacking of my legs and arms last year and they never found out why they were doing it. I am in constant pain and it gets worse the more i walk. i have had problems with all three balance, weakness and coordination. I also have Acute Intermittent Porphyria.Have you had any issues with your hips, spine, legs, or back before? Are you experiencing pain? Is your level of impairment constant, or does it change throughout the day?Can you describe how your walking has been affected? For example, do you have problems with:BalanceWeaknessCoordinationDo you have any other medical issues? (Examples: diabetes, previous injury, thyroid, etc.)--Dave
    kaylen 1 Replies
    • December 20, 2011
    • 11:57 PM
    • 0
    Flag this Response
  • I will write back if you respond. Long story shot I can almost guarantee not one of those 4 doctors knows anything about this type of disorder. In my state of two million we have exactly one doctor and she doesn't take new patients. This means you are going to have to go to john Hopkins, mayo clinic or someplace who specializes. You should get a spine (lumbar) MRI to make sure the bundle of nerves leading to your legs is not compressed. I pray that's what it is.
    andocrates 1 Replies
    • January 5, 2012
    • 09:35 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.