Discussions By Condition: I cannot get a diagnosis.

PRAYING DAUGHTER BACK AGAIN, my father is dying, and i need help!

Posted In: I cannot get a diagnosis. 25 Replies
  • Posted By: prayingdaughter22
  • April 16, 2007
  • 05:03 PM

So i was on here back in Janurary, my father was in a coma, and they didn't think he would make it through it first night. To fill you in, he had an explosive infection in his brain stem, and the docs couldn't figure out what caused it. they ran every test known to man, and still nothing. So, after almost a month of us waiting for the worst, he woke up. They released him only after 3 days of him being awake into a physical therapy center. With still, no answer to what the cause was. I had turned to this website for answers, thinking there was something the docs were missing. Come to find out they had him on medication that wasn't supposed to be mixed together, so once he was in the rehab facility, they were supposed to take him off of it (it was bipolar and seizure meds) Now, here we are, and he is in the same hospital again, with the same symtoms. They still can't find any answers, and i am at a loss...he has diabetes, but if this was anything like a diabetic coma, he would come out of this with memory, and he isn't remembering alot of things. Could this be poison? I have asked the docs about strokes, but they aren't finding any evidence, other then the fact that his right side is weaker and numb now and it wasn't until after the first episode. PLEASE SOMEONE HELP!

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25 Replies:

  • It definitely could be some kind of poisoning from the medication especially if they aren't suppose to be mixed. Why were they given simultaneously in the first place? Are you sure this is the best hospital for his care?It could also be some kind of bacterial or viral infection like meningitis. Did anyone raise the possibility of a lumbar puncture? Did he have a CT or MRI?
    Anonymous 42789 Replies Flag this Response
  • So i was on here back in Janurary, my father was in a coma, and they didn't think he would make it through it first night. To fill you in, he had an explosive infection in his brain stem, and the docs couldn't figure out what caused it. they ran every test known to man, and still nothing. So, after almost a month of us waiting for the worst, he woke up. They released him only after 3 days of him being awake into a physical therapy center. With still, no answer to what the cause was. I had turned to this website for answers, thinking there was something the docs were missing. Come to find out they had him on medication that wasn't supposed to be mixed together, so once he was in the rehab facility, they were supposed to take him off of it (it was bipolar and seizure meds) Now, here we are, and he is in the same hospital again, with the same symtoms. They still can't find any answers, and i am at a loss...he has diabetes, but if this was anything like a diabetic coma, he would come out of this with memory, and he isn't remembering alot of things. Could this be poison? I have asked the docs about strokes, but they aren't finding any evidence, other then the fact that his right side is weaker and numb now and it wasn't until after the first episode. PLEASE SOMEONE HELP!Did you use drugs.com to see the drug interaction?Didn't I mentioned Vitamin C treatment, Selenium, etc to treat that poossible poisoning? Did you have a chance to consult a doctor of Holistic Medicine who is experienced with damage caused by drugs?Also since he is "Bipolar" - you guys should look into an alternative treatment- no reason for anyone to take mind altering drugs.Him being "bipolar" might have more to do with a defficiency of vital nutrients and with toxicity from drugs and processed foods than with a real "chemical inbalance".You should find someone who can practice Reiki on your Dad- ask them if it is okay to practice Reiki on your Dad's condition. I personally don't see why not.Also a NAET or JMT (Jaffe Mellor) professional can easily go there and do a quick test and tell you what is poisoning him.So sorry about the situation. Love and Light.Eatafruit78.
    Eatafruit78 960 Replies Flag this Response
  • has he been tested for lyme? has he had a spinal fluid culture? MRI?those things he needs. www.fortifyhealth.com
    drbeilin 8 Replies Flag this Response
  • UPDATE: Went to visit my dad last night, and not only do they not know what is causing this, but they have put him back on Depakote (2 units liquid) among lots of other simple things like pepcid, and his insulin (he is a diabetic) He is awake now, but more confused then ever. He kept calling me by the wrong name, seems very confused, and just doesn't even have any emotion left. I have asked his previous docs about the medicine he was on, expressed my concerns, and even went to my dad in hopes that maybe he would listen to me about the meds they had him on. (the depakote is only one they have put him back on, the other I think was Dylantin) I have done research on these meds at drugs.com and that is where I read that you shouldn't be mixing the 2 together. I worry that because my stepmother INSISTS that he takes this medicine, that she is only aiding in this. In all honesty, she tried to pour hair conditioner down my sisters throat years ago, so instantly after all this, I have my suspicions. Unfortunately, without her or my fathers (and he isn't in any state to give anyone anything) permission, the docs wont give me any information on the sort of tests there running now. My stepmother isn't giving us any info either, and waited for almost 48 hours before she called anyone to let us know he was back in the ICU. I am at my wits end. The docs can't release any info to me, and my stepmother isn't being very cooperative. So, does anyone have any suggestions as to my next step? My father isn't himself anymore, just a shadow of what once was, and I fear that they release him to her care, this is only going to happen again, but on a larger scale, for the simple fact they STILL haven't found a cause, and his mind and body can't handle another one of these crippling episodes. :( :( :(
    prayingdaughter22 14 Replies Flag this Response
  • It definitely could be some kind of poisoning from the medication especially if they aren't suppose to be mixed. Why were they given simultaneously in the first place? Are you sure this is the best hospital for his care? It could also be some kind of bacterial or viral infection like meningitis. Did anyone raise the possibility of a lumbar puncture? Did he have a CT or MRI?quote] They have run MRI's and CT's but aren't finding anything. I even asked if there were signs of a stroke since the whole right side of his body now is drooping and weak, but the doc said that they saw no evidence of that.
    prayingdaughter22 14 Replies Flag this Response
  • When people say "trust your gut" - they are really talking about anger.Let your anger pop- and use it wisely. You are to become a lyoness- for your Dad. Don't try to act as if there was nothing for you to do- you know that if we don't take action when we feel we should, the experience will haunt us for a very long time. Sometimes people try to act so "reasonable" that they are actually stupified.Confront, confront your Stepmother- ask for second opinions- print out that sheet from drugs.com - you start telling people that if your Dad is not taken care for, you are going to bring attorneys, the Hospital's patient's advocate, social services, etc.Do you even know about the Patient's Advocate program? Every hospital has one.
    Eatafruit78 960 Replies Flag this Response
  • Do you even know about the Patient's Advocate program? No, what is that?
    prayingdaughter22 14 Replies Flag this Response
  • I am very sorry about your situation. My prayers have been with your Dad since the first time you posted.The research I have read tells me that those docs spend too little time with critical patients. Since they are s arrogant, they don't think that common people can recognize their errors and negligences.****Find a Reiki Person who can go see your Dad- ideally in a Daily Basis.I am very serious about the Reiki- Reiki is already in hospitals and elderly care units. It is just a matter of time for everyone to know about it. You might be sorry then, that you did not try it earlier.Sincerely,Love and Light,Maribel.
    Eatafruit78 960 Replies Flag this Response
  • Do you even know about the Patient's Advocate program? No, what is that? Every hospital (at least in USA) have a patient's advocate program. If you feel that something is wrong with your Dad's care takers or they are doing something that is really wrong (like in your case)- you go talk to the Patient's Advocate and they will investigate what is it that they are doing on your Dad.If they are poisoning your Dad, the Hospital Director is going to find out. You can also get a more Senior Doctor overlook and even take over your Dad's care.Your Dad might be of advanced age- but he does not have to have such a poor quality of Life.In some cases it is known that people live healthy until the day that they go to heaven (real natural causes). He CAN have a better quality of life.It is a critical moment- but make sure at the end you are satisfied with all you did for him.I send you a Hug.Maribel.
    Eatafruit78 960 Replies Flag this Response
  • To praying daughter:I'm so sorry you have to go through this, I'm praying for your dad. I would also suggest a Lumbar Puncture, esp to diagnose infection of his brain or viral/ bacterial etc. Your stepmother tried to pour conditioner down your sisters throat? That is not normal. Like everyone has said, get involved no matter what it takes. I'm so sorry you are dealing with this. I wish I had answers for you.
    Anonymous 42789 Replies Flag this Response
  • Thank you Maribel! I will definitely ask about the Reiki. AND I am going to look into the advocate program. That is exactly what I needed to hear to help me push myself. I know there has to be a way to get around having to speak with my stepmother. I dont agree that they release him until they find a cause. Many thanks! Would you think by now though if it was the meds that were poisoning him, they would have noticed that? Or am I the only one that is concerned about this?
    prayingdaughter22 14 Replies Flag this Response
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  • Thank you Maribel! I will definitely ask about the Reiki. AND I am going to look into the advocate program. That is exactly what I needed to hear to help me push myself. I know there has to be a way to get around having to speak with my stepmother. I dont agree that they release him until they find a cause. Many thanks! Would you think by now though if it was the meds that were poisoning him, they would have noticed that? Or am I the only one that is concerned about this?I honestly think there are many factors- but certainly something has push it to the edge (most likely the meds). Continue trusting yourself- and if the Advocate program is not so aggressive make sure you drop in person with a note to the Hospital Administration office or whatever. Written notes always make people do their job faster than verbal requests.Don't try to talk with the nurse or any little people around- cause time is a critical factor.Again, in case of a real poisoning, Intravenous Vitamin C can detox the body quicky- unless you have a reason to think he is allergic to vitamin C.If you can have a Jaffe Mellor or NAET specialist pay him a visit, you might be able to shed some light and find a quick course of action. Don't worry, they don't give drugs or use any gadgets so there won't be any side effects or conflicts. But go ahead and bring a Reiki person. Some hospitals have Reiki Volunteer programs- but I would say, go ahead and find one that can come every day- he/she cna also teach you how to give the loving touch to your Dad so you can stick there and care for him.Touch is such a powerful healing tool that we all have. Make sure you use your energies- as your nature guides you and let your Dad know that you are with him all the time.God Bless you both.By the way, if the stepmother is responsible for this or part of it, the Jaffe Mellor or NAET person might be able to tell you. It sounds crazy- but they can communicate with a person's nervous system. One simple muscle test (yes/no answer) and I knew exactly what was making me sick.
    Eatafruit78 960 Replies Flag this Response
  • He needs a brain MRI or SPECT scan. MRI is the first place to start. Can you get any form of power of attorney? You could say you are his wife and want them to fax the labs and notes to his other doctor, Dr. Beilin at 831 685 1128, then I can take a look for you, if you like. No charge. I am at 831 685 1125
    drbeilin 8 Replies Flag this Response
  • The situation with your stepmother seems to be almost as concerning as that with your father- why did she try to poison your sister? You definately need to let the hospital know that she may have some kind of psychological problem that is interfering with her ability care for your father. Based on what you said I wouldn't trust her judgement in the slightest and for all you know, she could be inadvertently responsible for your father's condition or at the very least making it worst. Why are you not able to have information shared with you? Is there some kind of patient privacy law involved here? Has he deliberately indicated you are not to be told about his condition? Perhaps you should have him sign a consent form indicating you ARE to be told about what's going on.
    Anonymous 42789 Replies Flag this Response
  • Thank you to all of you that have put forth your ideas...they are not going unnoticed. Someone asked whether there were privacy laws involved here, and yes in fact there are. If i am standing in the room with my stepmother when the docs come in, i am able to ask questions, but without her presence (which is when i prefer to speak with the docs, due to my distrust of her) privacy laws come into play, and my dad isn't in the right frame of mind to sign a consent form for me. My stepmother will tell me little things about his condition, but nothing about the types of tests they have been running, or what, if anything they are finding. What bothers me now, is that she told me last night that she found out that he wasn't taking all his seizure medicine,(he hasn't had a seizure since Jan. when this all first happened.) which they were supposed to take him off completely until he got another evaluation. But...nothing in this situation has been by the book. I sat right beside him, listening to him call me by someone elses name, and then watch the nurse give him yet another 2 units of this bipolar medicine. 2 weeks before he went back into this episode, he was telling my sisters and I how little he wanted to live these days, that he was tired and sick of not being able to taste food the way he used to, move the way he used to, and on top of that, his wife was expecting him to go about his day with normalcy, and screams at him when he can't do something. Now, my question is, if this bipolar crap and other meds for seizures was actually working, he wouldn't feel so low and depressed, not wanting to live? Someone also asked about her trying to pour conditioner down my sisters throat? Yes, about 10 years ago, she came in and flipped out because my sister hadn't finished folding the laundry so she flipped out on her and they fought with each other until my stepmom was able to subdue my sister, pin her down, and started pouring. I was standing right there, but when i reached for the phone to call 911 i was stopped and the phone was taken from me. So, once my sister was able to get away from her, we ran. barefoot and scared, we ran. We went to my other sisters house and called the police. They wouldn't let her press charges, they said it had to be my father. which, still in my mind isnt right. But, after everything from the past, those fears are still with me. If she could do something like that to my sister so long ago, then what would make me think any different that she could be aiding in his demise?
    prayingdaughter22 14 Replies Flag this Response
  • Thank you to all of you that have put forth your ideas...they are not going unnoticed. Someone asked whether there were privacy laws involved here, and yes in fact there are. If i am standing in the room with my stepmother when the docs come in, i am able to ask questions, but without her presence (which is when i prefer to speak with the docs, due to my distrust of her) privacy laws come into play, and my dad isn't in the right frame of mind to sign a consent form for me. My stepmother will tell me little things about his condition, but nothing about the types of tests they have been running, or what, if anything they are finding. What bothers me now, is that she told me last night that she found out that he wasn't taking all his seizure medicine,(he hasn't had a seizure since Jan. when this all first happened.) which they were supposed to take him off completely until he got another evaluation. But...nothing in this situation has been by the book. I sat right beside him, listening to him call me by someone elses name, and then watch the nurse give him yet another 2 units of this bipolar medicine. 2 weeks before he went back into this episode, he was telling my sisters and I how little he wanted to live these days, that he was tired and sick of not being able to taste food the way he used to, move the way he used to, and on top of that, his wife was expecting him to go about his day with normalcy, and screams at him when he can't do something. Now, my question is, if this bipolar crap and other meds for seizures was actually working, he wouldn't feel so low and depressed, not wanting to live? Someone also asked about her trying to pour conditioner down my sisters throat? Yes, about 10 years ago, she came in and flipped out because my sister hadn't finished folding the laundry so she flipped out on her and they fought with each other until my stepmom was able to subdue my sister, pin her down, and started pouring. I was standing right there, but when i reached for the phone to call 911 i was stopped and the phone was taken from me. So, once my sister was able to get away from her, we ran. barefoot and scared, we ran. We went to my other sisters house and called the police. They wouldn't let her press charges, they said it had to be my father. which, still in my mind isnt right. But, after everything from the past, those fears are still with me. If she could do something like that to my sister so long ago, then what would make me think any different that she could be aiding in his demise?
    prayingdaughter22 14 Replies Flag this Response
  • Make sure you are forward about all of it- You really need to talk to the authorities about it (social workers?). She has a history of abusing people who can't defend themselves. She might be thinking that she is tired of taking care of him and be trying to facilitate his transition. It sounds awful- but we see this things in the news all the time! I think that if you make a formal complaint with the police about the previous abuse from your stepmother, it will be easier to get the upper hand on your Dad's situation. For that you go to the police station or courthouse- not sure.This is not about you being bitter or unforgiving, this is about her accountability and her repeated patterns of abuse.Be firm but make sure you act in control of your emotions, it is the only way you'll have credibility. Good Luck-If possible- let me know your Dad's first name or the name people know him by and just the city or state you are in, so I can set up some remote Reiki for your Dad. Also your name or nick, so I can send my good intentions to you.Love and Light.Maribel.
    Eatafruit78 960 Replies Flag this Response
  • Well, we are still on the search for my dad's condition. I went to the hospital last night, and he was sitting there, eating dinner, not even knowing what he was eating...I sat there when the nurse came in and did her eval, and he has no memory. When i say no memory, he thinks he is in his 20's again, that its 1977 and the president is Richard Nixon. They are bringing in a new team of neuro docs....i am at a loss for words, my own father doesnt remember me, or my sisters, or any of his grandchildren....*Maribel* his name is rick, and he is in ohio
    prayingdaughter22 14 Replies Flag this Response
  • Well, we are still on the search for my dad's condition. I went to the hospital last night, and he was sitting there, eating dinner, not even knowing what he was eating...I sat there when the nurse came in and did her eval, and he has no memory. When i say no memory, he thinks he is in his 20's again, that its 1977 and the president is Richard Nixon. They are bringing in a new team of neuro docs....i am at a loss for words, my own father doesnt remember me, or my sisters, or any of his grandchildren....*Maribel* his name is rick, and he is in ohioMeds and other things are blocking the energy passages in his brain- that's why he has a sense of self (back in time, maybe some time he enjoyed) but can't retrieve recent memories of love ones.You know he loves you- and all of the family, he just can't physically be there. Remember that our soul is indestructible. Let yourselves 'Live in the Moment' - as he is probably blocking conflict and other emotional burdens.http://www.reikipartners.org/rp_com_brc.htmIf you need to read a bit on how Reiki work in the hospitals.I live down in Washington DC- and Reiki is at the GW University Hospital. It is given to patients in between chemotheraphy, radiation, other procedures.It is also great to refresh and relax the elder.It works in the body and the mind.Take Care-I'll make sure some distant Reiki is sent to Rick in Ohio.Love and Light.
    Eatafruit78 960 Replies Flag this Response
  • Well, we are still on the search for my dad's condition. I went to the hospital last night, and he was sitting there, eating dinner, not even knowing what he was eating...I sat there when the nurse came in and did her eval, and he has no memory. When i say no memory, he thinks he is in his 20's again, that its 1977 and the president is Richard Nixon. They are bringing in a new team of neuro docs....i am at a loss for words, my own father doesnt remember me, or my sisters, or any of his grandchildren....*Maribel* his name is rick, and he is in ohiohttp://reiki.7gen.com/healing-requests.htmlThis is where I sent the request- hopefully they'll respond soon.In the past they have taken good care of my requests.I hope this helps.
    Eatafruit78 960 Replies Flag this Response
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