Discussions By Condition: I cannot get a diagnosis.

Potassium defficient? Myasthenia gravis? Am I going insane?!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Umbred
  • August 26, 2010
  • 03:19 AM

Please help - I feel like I'm falling apart!
Over the past 3 days, my muscles haven't worked right. I only have to wash dishes for a few minutes, and my muscles feel like they're on fire-like I've been lifting weights for hours. I walked to the store just a block and a half away for a small bag of cat food, and when I got home my body felt like I just got done running a marathon. Every muscle burned, I was really hot, and sweating badly.
I keep having muscle twitches and pains that don't seem to come from anywhere.
I am 35 and male. I'm overweight, but not weak. So, now that I can barely take my trash out, I'm worried.
My doctor diagnosed me a few months ago with edema in my right leg, which only acted up now and then, but now my leg swells every day.
And, for the past week, I've been getting EXTREMELY panicky and anxious. Scared of everything! I went to the ER last night with chest pains-they gave me Nitro to see if the pain improved or not. As that was dissolving under my tongue, I had a major panic attack! NO idea where it or all this anxiety came from, and I'm getting really afraid. I don't know what's going on, the hospital didn't give me any answers other than Chest Wall Pain and Anxiety. They gave me Nexium while I was there, which seemed to help a bit with the pain I felt, but not with anything else.
I feel thirsty all the time, I'm not hungry at all. And I felt like I have been pinching nerves in my left leg and both arms - pain, and a lot of numbness with a lot of muscle weakness. When it happened to my leg early last weak, I couldn't walk at all.
And, I've had three cases of Tachycardia in the past two months. Went to the ER for the first one last month, but no cause showed up.
I swear, I feel like I'm going insane, or my body's trying to shut down. I don't know what to do or who to see.
I looked up the muscle burning, and saw myasthenia gravis could cause something like that, but it doesn't cover the rest of what I'm going through. Maybe my potassium levels are too low? I don't know. Please, I REALLY need help knowing what to talk to my doctor about. He just got back from a month vacation, so I can't see him until he plays catch up. Any, ANY ideas as to what direction to go in?
I was given a prescription for Prednisone on the 18th for an allergic reaction to something, and I have two days/pills left after tapering. I was told to take an OTC benadryl with it, but ran out yesterday. I'm also on Erythrocin for a tooth infection. And, I've been having the worst of everything so far over the past few days, but I know it's all been building for months, because I remember only two months ago saying that I thought I was getting too out of shape to walk to the store anymore. It was when I felt like I couldn't stop eating, and started putting on more weight.

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  • Well, so far it seems that the Prednisone was the major cause of the anxiety and terror I was having. I had the last dose nearly five days ago, and am feeling much better, and much less afraid (though, I still feel like having a panic attack-it's just getting easier not to).And, I've been to my doctor, and he ran the gammet of blood work. Nothing's off balance, including my potassium levels.Unfortunately, the prednisone had nothing to do with the nerve problems I've been having at all, since they started before I began taking that. And now, it seems I've developed a new problem. The skin on my face, the back of my neck, and sometimes my shoulders, feels like it's burning-like I have a major sunburn, but I haven't spent more than a few minutes in the sun (I'm apprehensive about the sun while I'm on antibiotics). I've asked friends how I look when it's happening, but I'm told I only seem a little pink-not red like my skin would be with a rash.I don't know what's going on, and I'm so frustrated not being able to find out.I swear, since I had a separate tooth infection in December of last year, I haven't been the same. The dentists office had me on three different antibiotics, one after the other, because they said the first and second didn't work. I'll be honest, I haven't even had a regular bowel movement since then-no substance. Just so much liquid. I don't think the rest of me has been all that great since then, either. I seriously think it did something to me, but my doctor doesn't seem to be listening to me when I try to talk about it. And, when I talk to him about feeling weak or having muscle pain, he says it's because I don't move enough. Yes, I'm overweight, but I'm not freaking lazy! I "move" all the time, especially walking to do errands for other people. It's only recently that I feel like I can't walk anymore. I did convince him I needed to see someone about the tachycardia. I saw a cardiologist today, but I won't be able to have a halter monitor done until the 21rst. When that comes, though, I'll also be having an echocardiogram, and a stress test.I wish I knew what was going on now, though.
    Umbred 3 Replies
    • August 31, 2010
    • 10:23 PM
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  • I have several ideas but was waiting to see if anyone else had any suggestions to give you first to rule out. Seeing no one hasnt, I'll reply. I dont know if it is the following or not as right now, you arent sick enough yet to say it is nor have you had it long enough to currently get a diagnoses if it is there. But anyway. I was thinking many its the early onset of CFIDS http://wwcoco.com/cfids/bernesx.html (symptom list is there based on studies) Over the past 3 days, my muscles haven't worked right. I only have to wash dishes for a few minutes, and my muscles feel like they're on fire-like I've been lifting weights for hours In CFIDS, studies have shown that we can build up huge amounts of lactic acid then normal people (i think with one study they found someone building up over 100% normal levels). Of cause a build up of lactic acid causes the muscles to burn. http://www.mecfscanberra.org.au/aus_info/bioscreen/scroop.htm (there is more on all this if you do search online). With CFIDS.. there is often sensitivities to medications and we often get BAD reactions from them. viruses, infections and other body stressors can trigger off CFIDS. So that fits with your history of having a possible trigger with the dental stuff....... Be aware that a new virus has just been linked to CFIDS, a confirmatory study by the FDA just come out last week.. seems most with CFIDS (85.5-95% have this virus, XMRV which is a MLV virus or other MLVs which previously they thought couldnt affect humans but anyway). They currently dont know how this virus transmits but the blood banks are currently all infected with this virus which they currently dont have a clue what it does. (who knows.. maybe you got the virus from one of the dentist instruments!!!). The government and blood banks right now is taking care not to cause public panic http://www.nih.gov/researchmatters/august2010/08302010chronicfatigue.htm....... and the tachycardia in CFIDS is usually caused by coexisting Postural orthostatic tachycardia syndrome (POTS) which isnt a heart issue as such (so many heart specialists dont know about this) but an issue with the bodies autonomic nervous system. Ask about having tilt table testing!! as that is how POTS is usually diagnosed.
    taniaaust1 2267 Replies
    • September 1, 2010
    • 09:31 AM
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  • Thank you taniaaust1!There are a lot of those symptoms on that first link that I've had for a while, but no single one or few was intense-just many of them together, like the low blood pressure (which always surprises doctors, since they expect an overweight guy to have high BP), the sensitivity to medications and chemicals, and the pressure at the base of the skull, which seems to always be there. And, I have had IBS-type symptoms since that first tooth infection, which I think was brought on at first by the antibiotics they were giving me. But there are so many other symptoms there that I've had, in either small or large groupings, that CFIDS is definitely something I need to bring up with a doctor. As soon as I find a new doctor, that is. When I bring up my muscle problems with the doctor I have, I'm told that it's because I don't use my muscles enough. Basically, that because I'm overweight, I must be lazy, too. My being ablt to walk a few miles just a few months ago, and now I run out of steam and sweat like a snowman in a desert just walking half a block, doesn't seem to be all that impressive to him.Do you think if I talk to the cardiologist I was finally referred to, that he would be able to do the tilt table testing for POS? Or is that done by another specialist?I definitely think looking at POS is the right idea-that would also help explain why I still feel like a need to have a panic attack, since it would affect the fight or flight response in the sympathetic nervous system-and why it was so much worse with the prednisone. But do you have any ideas about what the other things might be from if it's not CFIDS? There are a lot of symptoms there, and I know CFIDS is probably only one thing that could be causing them, so I was wondering about other possibilities (though, that's a *really* good one).If it is CFIDS, I don't think it just came on. I think I must have had it for quite some time. It's just hitting me very bad lately. This hasn't been my year so far for feeling healthy.
    Umbred 3 Replies
    • September 1, 2010
    • 08:39 PM
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  • As soon as I find a new doctor, that is. When I bring up my muscle problems with the doctor I have, I'm told that it's because I don't use my muscles enough. Basically, that because I'm overweight, I must be lazy, too. My being ablt to walk a few miles just a few months ago, and now I run out of steam and sweat like a snowman in a desert just walking half a block, doesn't seem to be all that impressive to him. For the time being, I'd give up trying to get a CFIDS diagnoses for the following reasons. (thou do keep seeking for a diagnoses to make sure its nothing else going on), The fact you are overweight and also a male.. if it is CFIDS, these things will make it super hard for you to get a diagnoses for several reasons. CFIDS is more common in females.. only one in every four cases of CFIDS are male.. hence many doctors stupidly think its just a female illness. Most doctors dont have a clue when it comes to CFIDS (its the kind of issue you need to go and see someone who specialises in it as its such a misunderstood, not well known about illness). Secondly.. being overweight, will often rule out a CFIDS diagnoses. The reason for this being is that many overweight people do tire more easily as there isnt an offical test developed yet for CFIDS and hence they have to base diagnoses on symptoms, overweight people often will not be diagnosed with CFIDS. It is written into some CFIDS diagnostic guidelines, that if overweight could be the cause of the symptoms, the person is not to be diagnosed with CFIDS. (and of cause most doctors will be dismissive due to the extra weight) Thirdly.. you havent been severely ill long term yet. One usualy needs to be quite not good for at least 6mths before this kind of diagnoses will be given. The reason for that being is to make sure a person dont have something else. Do you think if I talk to the cardiologist I was finally referred to, that he would be able to do the tilt table testing for POTS? Or is that done by another specialist? I havent been able to find out what specialists in particular deal with POTS, its a little known about illness unfortunately, thou it isnt rare! Try asking the cardiologist about it.. who knows, you could get lucky. I once was sent to the cardiologist and the cardiologist had never heard about the condition. Ive heard of POTS patients taking 15 years to get a diagnoses. I suggest to take in some info about POTS in with you. check out the info at http://www.dinet.org/If it is CFIDS, I don't think it just came on. I think I must have had it for quite some time. It's just hitting me very bad lately. This hasn't been my year so far for feeling healthy. nods.. common with slow onset CFIDS, which can end up developing over many years........... My other concern is your swelling leg. CFIDS can cause swellings but they arent common with it (ive had one of my hands swell up twice due to it). A swelling leg, could be a sign of a heart issue. One of my exes had severe obesity.. had congestive heart failure and diabetes.. and one of his legs used to swell, he told me it was due to his heart. (He'd actually been given only a 1-2 years to live as his heart condition was seen as that bad, but I was actually more incapacited with the CFIDS, then he was with the heart failure and severe diabetes!! He couldnt walk far, but could actually walk further then I, I was having to use a wheelchair on outings due to CFIDS). At least if its an issue with your heart, issues there should be easier to diagnose. Anyway.. i hope that cardiologist appointment proves to be helpful in some way. best luck
    taniaaust1 2267 Replies
    • September 2, 2010
    • 04:56 AM
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