Discussions By Condition: I cannot get a diagnosis.

Possible strep carrier/rheumatic fever

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: snickers26
  • January 15, 2010
  • 03:56 PM

:confused: Hi! I'm new here and was wondering if anyone could help me. My boyfriend has been suffering from symptoms that we think are due to rheumatic fever, probably caused by untreated Strep throat infections when he was younger. He is 30, and has been going through heart pain and congestion with overall weakness (in flare ups) since he was 21. When he was a child/adolescent, he got strep throat like a dozen times - 3 times in one winter. Many of those times, he would not get treatment because the doctors found negative strep results. After so long of not getting better, they would test him again and they would find him positive for strep. He has seen cardiologists and such in Boston and here in Florida only with the result that he is imagining his problems, and should be on anti-depressants. He doesn't currently have a strep infection, but seems to be suffering from post-streptococcal type effects... He also gets a kind of transient arthritis. If anyone has any info or suggestions, we would most graciously appreciate it. Thanks again!

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3 Replies:

  • Hi I think he should get an heart Echocardiogram scan to see if there is any heart valve damage. If there is, it probably is possible that he had undiagnosed Rheumatic Fever.
    ashy10 5 Replies Flag this Response
  • Hi I think he should get an heart Echocardiogram scan to see if there is any heart valve damage. If there is, it probably is possible that he had undiagnosed Rheumatic Fever. Thanks for the advice, ashy10. He has had that procedure done before, maybe about 6 or 7 years ago. Everything came back normal. It's possible that valve damage may have occurred after that, so I agree that the test should be repeated. The biggest problem we have is getting different primary care doctors to even refer him to a specialist, because everyone we've seen about this problem say it's all in his head, so we get nowhere. He is at the point, physically, where he is too weak to even go to see a doctor. Mentally, he's at the point of just wanting to give up. We've been to emergency rooms and after he's seen, they just send us away with, "Everything's normal." Everything is definitely not normal...and he is feeling very real, physical complications that no one seems to take seriously. Sorry for ranting, but not sure what to do now. I've been looking into a mobile physician to come to our house to see him. Thanks again for the suggestion. It's great to get a response during a time like this. Take care!
    snickers26 1 Replies Flag this Response
  • Hi snickers26, how is your boyfriend? I experienced rheumatic fever due to strep throat last year just before my 21st birthday and was very very sick. I went to so many doctors who didn't know what to do. I too was experiencing arthritis-like symptoms and as a result couldn't walk for months. My other symptoms were high fever, huge lymph nodes and no appetite.When I was referred to a rheumatologist specialist he diagnosed me. He put me on prednisone which made my health immediately start to improve. He also referred me to tests and scans to get to find out whether any damage had occurred. I hope he has managed to see someone who can help!!
    Anonymous 42,789 Replies Flag this Response
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