Discussions By Condition: I cannot get a diagnosis.

Possible MS or Severe Nutritional Deficiencies secondary to RGB

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: svreid
  • August 3, 2009
  • 07:19 PM

Please excuse me if this is a long post but this is a very complex case apparently and I really need help. My life seems to be slipping away quickly.

Me: 34 y/o Hispanic Male
Surgeries: RGB in 2000
onset of symptoms:
Started in Feb 2007 with twitching in left eye and severe pain behind left eye, quickly progressed to facial twitching (left side) with pain in back of head (left) and fatigue.
May 2007, chest pains, facial twitching not as bad, severe fatigue, weakness, numbness and tingling on left side of body (face, shoulder, arm, hand, leg
Admitted to ER and then admitted with Severe Chronic Iron Deficiency Anemia. Hemoglobin was 4 at the time of admit. received 4 units of blood, endoscopy and colonoscopy performed, no blood loss evident.
Sept. 2007 another ER admit with low blood count, 6 units transfused, Ferlicit IV therapy started. 9 weeks of ferlicit therapy performed.
Jan. 2008 symptoms progressing rapidly, MRI of brain and spine performed looking for signs of MS. No apparent MS, but found 6 disc protrusions in neck and spine, left shoulder pain at about level 9 by this time and symptoms progressing to both sides of body. EMG performed as well and bi-lateral carpal tunnel diagnosed. Physical therapy attempted.
Another ER admit after fainting in home twice in 5 minute period. Blood pressure extremely low, blood count low, 6 units transfused AGAIN.
Depression becoming very apparent at this point. Another Endoscopy and colonoscopy performed and only small internal hemroids found at that time.
Present, symptoms progressed. Severe fatigue, severe muscle weakness, apparent polyneuropathy and what may be myopathy as well. Days of being in bed unable to walk or do any activities. Then symptoms will calm down and allow some normal activity. Gait changes started back in 2008 as well....now I must use a cane at times to get around.
I lost my company, my home, my vehicles and almost my family.....becasue noone has been able to help me. Now I have no insurance, no income, no doctors willing or able to help....Can someone please help me? I am too young to die and yet I feel like I am heading more in that direction DAILY.

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.