Discussions By Condition: I cannot get a diagnosis.

Possible misdiagnosis of fasle positive Lymes Disease

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • July 11, 2011
  • 04:38 AM

In May of last year, I was bitten by a tick while camping and did not have a rash although it was VERY red and itchy. 6 months later, while getting routine bloodwork, I was positive for early stage Lymes. I took antibiotics for 2 months before seeing the Lymes specialist. He immediatly suspected it was a false positive because my symptoms I was expressing were consistant with late stage Lymes. He did his own bloodwork for another lab which turned out negative. January of this year, my symptoms started getting worse. More headaches, vertigo, nausea, vomiting occasionally for no reason, joint pain and tingling in the face and arms. My PCP did followup Lymes bloodwork which turned out positive once again for early Lymes. I then went back to the Lymes specialist who, again, told me that my symptoms were consistant with late stage Lymes so he was 99% sure it was a false positive again. In April of this year, my migraine started. I was at the ER twice and had 2 CTs. Both were negative. My neck started to get so stiff that it was almost impossible to turn my head in any direction. I went to a neurologist who prescribed a spinal tap for Lymes and other bacteria which turned out negative and an MRI to rule our a pseudo tumor which was also negative. He did give me some heavy meds for the migraine but it only dulled the pain. Eventually, after 49 days, the migraine slowly subsided. It is now July and I am still experiencing some symptoms including periodic headaches, vertigo, joint pain, and tingling in the face and feet. I have a big suspicion that this IS Lymes and that I may have been misdiagnosed. I am so ready to find out what this is. Has anyone else had this happen? What should I do??

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