Discussions By Condition: I cannot get a diagnosis.

Possible Fibromyalgia?

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Impossible
  • October 2, 2008
  • 11:29 PM

Symptoms:

Purple Thick lines on the knees and thighs (that sometimes go the same color as my skin, and feel like TUNNELS when youi run your finger over them)

Dizzy spells when i get up for up to a minute

Stabbing pains (VERY bad pain) in the thigh

extreme burning pain in the thigh

aches in the thigh

All of the above pain and cramps in my caff muscle and ankle (all this pain is also in my left leg but noty nearly as bad)

numbness in both feet (started in the big toe, moved to the others and stopped at the pinky toe, then went up the foot to the ankle)

Weird back lump(?), theres not really a lump, but whenever i get up it feels like theres a lump there.... but theres not

blurry vision

double vision

flushing in the face

weird white dot rash on the hands that comes and goes (looks like blood is rushing in but its not getting to those areas, so they stay white) the rest of my hand goes DARK red and the dots are BIG and very white

Same rash on the feet ^ (but only at the sides)

Very bad nose bleed(s)

EXTREMELY fast heart (shown on echo and proven to NOT be stress)

arrhythmia

fast heart followed by bleeding

Weird sleep patterns

back aches (even though i dont do sports or anything to cause it)

burning in the palm when fingers are pulled to hard

Capillaries popping in the hands

Shortness of breath


im 14, and now my doctor thinks i may have a psychosomatic illness. Which i dont agree with, now im not sure if he thinks that only because of my fast heart rate (which when he took asked me if it was fast and to me it felt so, and instead it was really only 78)

so thats the only part that confuses me... im wondering if thats what hes thinking for the heart problems but anyway nobody knows that but him.


anyway i think i have Fibro because the symptoms fit perfectly, they have ruled out every disease, syndrome whatever and the only thing left that i can think of is fibro

now lets say my doctor DID say he thought i had a psychosomatic illness that explained my heart problems, and all my other problems... what would i do?

i mean its not like im avoiding that diagnosis just because i dont like it, im just saying if its Fibro and he trys to connect the heart problems, and all the other stuff and hes wrong then im going to grow up in agony as i already am

so i dont want that to happen


so my main question is:


Psychosomatic illness vs Fibro



thanks in advance for any comments/advice



PS: i did have a thread before but due to computer problems have not been able to find it, and now this is my newest concern, so hence new thread :D


ill try to find the old one though...

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2 Replies:

  • Before you think about all these things caused by "it's all in your head" syndrome or FMS, do yourself a favor, get tested by a LLMD for Lyme Disease and Bartonella or other co-infections. Bartonella causes streaks like you are talking about. And all your symptoms sound like they could be a combo of Lyme and other tick borne diseases. I have had many of the same weird symptoms you have. Get your blood tested at Igenex. Regular labs are not going to be sensitive enough or familiar enough to recognize certain aspects of these diseases. I went 15 years with doctors telling me the same thing, over and over. I finally found a LLMD who tested and is now treating me with treatment and a whole picture kind view. Don't blame your doctors, there are many reasons why they aren't testing or aren't believing you. You have to believe in yourself and not quit. There are answers! Check out Lymenet.org and read a bit. Good luck,
    Anonymous 42789 Replies
    • October 3, 2008
    • 07:11 AM
    • 0
    Flag this Response
  • Before you think about all these things caused by "it's all in your head" syndrome or FMS, do yourself a favor, get tested by a LLMD for Lyme Disease and Bartonella or other co-infections. Bartonella causes streaks like you are talking about. And all your symptoms sound like they could be a combo of Lyme and other tick borne diseases. I have had many of the same weird symptoms you have. Get your blood tested at Igenex. Regular labs are not going to be sensitive enough or familiar enough to recognize certain aspects of these diseases. I went 15 years with doctors telling me the same thing, over and over. I finally found a LLMD who tested and is now treating me with treatment and a whole picture kind view. Don't blame your doctors, there are many reasons why they aren't testing or aren't believing you. You have to believe in yourself and not quit. There are answers! Check out Lymenet.org and read a bit. Good luck, thank you very much! im going to follow your advice and look for a LLMD. sorry this was kinda short but im a lil busy, ill be back a little and ill go a little more in depth thanks again
    Impossible 3 Replies
    • October 3, 2008
    • 09:39 PM
    • 0
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