Discussions By Condition: I cannot get a diagnosis.

possible diagnosis -more confused

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: kinyeah
  • March 5, 2009
  • 06:34 AM

Hey everyone, me again... (reminder, colostomy, reversal, several hernia surgeries)
Today at the gastroenterologist he informs me that a part of my problem may be a hernia IN my colon. (as anyone who has read my posts knows, I am at the point where I get so nervous at a drs appt. that I don't think of all the questions I have until I get home and panic) Is this possible or did I misunderstand him, I know he said it could be adhesions on my colon, scar tissue or maybe an internal hernia in the colon. IF this is the case, with every hernia there is a hole (obviously) could there be slight bile leaking in to my body thru this hole making me sick? Could this be the reason for everything. I mean I know I am not septic like last time, but if it is tiny amounts it might be an explanation. Would this be repairable without another colostomy? I can not find any info on the internet. I know that I am jumping the gun on worrying about that but I can not think of it without freaking out a little.
He also told me that the hard lines and lumps (other then the new umbilical hernias) are not normal and it is not normal for them to hurt after this time. I had just assumed after so many surgeries in such a short time that my stomach was jsut messed up adn I would have to live like that. He says no but obviously this is more important first. I have to bring him all my scans and stuff on Friday but wanted any opinions asap.
Thanks again

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8 Replies:

  • Kinyeah,Perhaps you misunderstood...it's not possible to have a hernia IN your colon. A hernia, by definition, develops when a part of the small/large intestine slips into a muscle split...most often in the inguinal canal, but sometimes involving the diaphragm and/or abdominal muscles. Hernias of this nature can sometimes be reduced by manual pressure/manipulation but very frequently require surgical repair to provide any degree of permanent resolution.You can certainly email me at jonmac391v@comcast.net if I can be of further help.Be well!! John
    JonMac 165 Replies Flag this Response
  • ok I will ask him to clarify, I was under the impression he meant where the colon was reattached ....and I assumed that (because i already have several hernias in my surgical sites) any where you had weakened linings could herniate. Thank you
    kinyeah 31 Replies Flag this Response
  • No bile is not leaking into your system.
    richard wayne2b 1232 Replies Flag this Response
  • Also,take a list of questions with you to the doctor.
    richard wayne2b 1232 Replies Flag this Response
  • Thank you. I did have a list of questions to ask him, but this was something new he mentioned that I had never considered or heard of. Richard, is there something about me that annoys you??
    kinyeah 31 Replies Flag this Response
  • No,not at all.Why do you ask?
    richard wayne2b 1232 Replies Flag this Response
  • I guess I just get the feeling that you see me as an idiot or soemthing. I understand that I do seem scatterbrained but I assure you I wasn ot before all of this happened. I have just gotten very doctor intimidated. I guess I should explain that I loved the doctor I was seeing before "the accident" and had seen him for over 15 years and he was easy to talk to my only other doctor for those years was my ob/gyn who was also very down to earth and easy to talk to. Some of the specialists that I have been seeing talk like they are reading from a text book and that coupled with the fact that I was perfectly fine one day and woke up half dead the next gets me stressed when I get to an appointment. So I guess more then you making me feel annoying I am feeling annoying, I hate being confused or in the dark and I guess even more then that I hate not being in control..especially of my own health. I kind of feel like a pinball''go where they say do what they say and smile and nod."..yet here it is almost two years later and I still can not stay out of bed for more then three hours. I have recently gotten engaged, my life is more fantastic then ever, I have a wonderful son who is doing all of the right things yet I can not enjoy all of this...almost any of my trips out of the house are to doctors. I miss work...I am just stressed and feel like I can come here to whine so I do not constantly whine to my family, I voice my fears here and then worry that I am annoying or sounding foolish!I guess I just think I sound like an idiot ..thank you for all of your time
    kinyeah 31 Replies Flag this Response
  • OK next step now: setting up a colonoscopy, which of course I am afraid of, I know there are normal risks and the doctor explained that I really do not have anything to worry about, however, being I had the colostomy and reversal that those dangers are slightly elevated. I know I should not expect to wake up going septic again but the fear is there.After the colostomy I need a laproscope. There is also talk of maybe doing a full out surgery because of all the hernias and the adhesions. The hard areas of my stomach that hurt so bad are not normal as I just assumed they were after all of this and they are now saying I should not have as much pain. (the pain I just thought I had to accept forever) and that maybe they can make my stomach even look like a real stomach again..right now it looks like a deformed bowling ball because every spot where an abcess "burst" still has major healed "holes". thats the latest on me....I guess we are getting somewhere
    kinyeah 31 Replies Flag this Response
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