Discussions By Condition: I cannot get a diagnosis.

Ponytail Syndrome?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: momofthree
  • May 13, 2008
  • 03:35 AM

I often have excruciating pain near the crown of my head. It is as if my hair actually hurts. The feeling is as if my hair has been pulled into a too-tight pony tail for too long. But, my hair was not in a pony tail.

To run my fingers through my hair near this part of my scalp brings about intense pain. Often the water in the shower hurts, or being outside when it is windy can trigger pain that takes my breath away (when the wind moves my hair, which sets off this excruciating pain problem with my scalp).

My doctor thought this issue might have to do with migraine headaches, but I never have an actual headache when I have this pain (and this pain comes and goes with seemingly no pattern). I do not have trouble with headaches.

My scalp looks normal. There is no redness or inflammation -- not even any dandruff.

I have read online a hypthesis about some people who have reported similar symptoms having "super-sensitive" nerve endings in the crown of the head. Is this correct? Or, is there another cause?

How can this be treated? I would love to avoid having this type of pain ever again. I have lived with it for a long time, but of late, it has grown much more intense.

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5 Replies:

  • Maybe it's shingles-like without a break out???? In acupuncture, they put needles in the top of your head to stabalize your emotions. Are you calm, centered and focused or do you have to deal with a lot of emotions? Maybe acupuncture could help.
    Monsterlove 2921 Replies Flag this Response
  • I have thought about accupuncture but never tried it. I will read more about it. Am I calm and centered? Well, I try to be, but I do have three kids (ages 8, 4 and 6 mos.) and a job. Though my husband is helpful, I do shoulder most of the burden of child rearing. I do get frazzled at times. Thank you for the advice!
    momofthree 1 Replies Flag this Response
  • Could be Cranial Polyganglionitis.
    aquila 1263 Replies Flag this Response
  • I often have excruciating pain near the crown of my head. It is as if my hair actually hurts. The feeling is as if my hair has been pulled into a too-tight pony tail for too long. But, my hair was not in a pony tail. To run my fingers through my hair near this part of my scalp brings about intense pain. Often the water in the shower hurts, or being outside when it is windy can trigger pain that takes my breath away (when the wind moves my hair, which sets off this excruciating pain problem with my scalp). My doctor thought this issue might have to do with migraine headaches, but I never have an actual headache when I have this pain (and this pain comes and goes with seemingly no pattern). I do not have trouble with headaches. My scalp looks normal. There is no redness or inflammation -- not even any dandruff. I have read online a hypthesis about some people who have reported similar symptoms having "super-sensitive" nerve endings in the crown of the head. Is this correct? Or, is there another cause? How can this be treated? I would love to avoid having this type of pain ever again. I have lived with it for a long time, but of late, it has grown much more intense.I had the same symptoms and had blood test done to find out my potassium level was alarmingly low....which is very dangerous... I would ask your doctor to do a quick blood test.
    Anonymous 42789 Replies Flag this Response
  • I have this same very problem - anymore replies?
    Anonymous 1 Replies
    • September 18, 2014
    • 06:34 PM
    • 0
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