A few days ago, I woke feeling fine, danced some the day before without discomfort and even a bit in the morning (my normal exercise). By midday yesterday, I began to feel very odd overall, and clammy though no fever. My thigh and around my hip first began to feel intense pain and within minutes, the pain involved my entire thigh, lower leg, and foot. It had the feeling of being very swollen, but swelling was not obvious except for some in the 'normal' areas of pain before.
I could not stand or walk without extreme pain. If I stood on my right leg and no pressure on my left leg at all I had some relief. By the time I tried to sleep, my lower abdomen was also involved and I required some pain medication
to get any rest. Morning came after 7 hours. I felt very good and slowly got up. As soon as I stood I was aware of pain and within the few minutes of walking to use the bath and dress, I could barely stand. When it was necessary to stand I find my toes curling under to try to relieve some pressure and pain to the bottom of my foot.
This evening, the overall pain is about 1/2 of what if was last night in the upper leg, but still much in the lower leg and very intense in my foot, particularly the ball. Standing and walking remains very difficult and increases the pain. I have asked several doctors about this, some have felt the lumps of pain, prescribed pain meds and all have said they did not know what it was. No follow-up offered. I have been dealing with it as best I am able, ice packs, pain med and am lucky I have only experienced this a few times a year to maybe once a month.
But the experience of yesterday into today involving the entire leg at once and so overwhelmingly intense has me stymied as to how to deal in the future. Your input and insight will be greatly appreciated. Thank you.
To update: a couple days later: My left leg feels like it has a vibration as well as a 'pins and needles' feeling. My left foot has a numb feeling as well as a deep throb with pain on pressure such as trying to stand, as well as the other symptoms. My left hip remains very uncomfortable and the pressure of standing increases this as does sitting or lying. And though my left is not my dominate leg, I was surprised to find out that my left calf is over 2 inches larger than my right calf. As I am tall and lean, this may be more obvious.
I had first IVIG (infusion) 8 days ago. I have CLL (WBC 160k, Ig was 200 below). I'm 61. Am active, usually dance, walk, light weights, stretching, and was volunteering regularly. I do not have a fever, but feel quite odd and not myself.
HX: A few years ago, I first noticed was a very hot pain on the top of my thigh. Within a day or so, an area swelled to a soft mass large enough I could not cover it with my open hand. The sharp, throbbing, hot pain was so intense I could barely speak. I basically sat and sweat with pain. An ice pack seemed to heat up quickly when applied. The worst of the pain and swelling lasted 24 or more hours. By the next day, the pain was so much less and the swelling slowly went down in another day or so.
Then within a week or so, it seemed to migrate or turn up again but this time in my lower leg, 5 inches below my knee (front, toward the inside) experienced this same type of pain experience to a degree. The swelling area was smaller and much harder and the pain not quite as intense. It too lessened and went away in a few days. This was followed by smaller soft areas in inside ankle area, top of my foot near the large toe. Happily these serious of events were far and few between, but none the less painful when they did come.
On occasion the pain would stay mostly on the thigh and little notice below. I experienced a similar pain in my upper right arm a couple times, but not for a long time. When I feel good, I feel good and am able to dance, walk distances, hike, etc. Currently I can hardly walk to the kitchen or bath.