Discussions By Condition: I cannot get a diagnosis.

Please take my case!

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: lunastarliteyes
  • May 19, 2008
  • 07:20 PM

Hello. Well this will be my second semester as a student in the undergrad medical field so I thought I might be able to figure this one out on my own, but I'm no doctor. I really need somebody's help with this one because I am starting to get a little worried. I have a list a mile long here so please stay with me, and if you are able to offer any words of advice or help me figure out what might be causing all of this it would be much appreciated.


Just for a brief.. I am a 23 year old Caucasian female. 5'7" 115-120 lbs currently (my weight goes up and down a lot, fluctuating from 115-125 lbs).

I don't know exactly where this all started, but I would say the most accurate time frame to give you would be about 2 and a half years ago.

Something just kind of hit me and I started getting this "I don't care about anything" attitude. I suppose everyone goes through that though. Right around that time, I was at a Waffle House with my then-boyfriend. To this day, I cannot tell you whether or not we actually went inside and ate. We did drink a little earlier that day, but at this point it had been about 4 or 5 hours and I had only had 2 or 3 beers. Anyways, I apparently had a seizure in the parking lot. I sort of remember going into it, but I don't know for how long. I remember opening my eyes and being very confused because there was an ambulance there at this point, a police car, several people standing around me, and a nurse trying to put sugar in my mouth. I have been tested for diabetes before, but the results came back negative (maybe a little close to borderline though).

So symptom number one with the circumstance is the seizure (assuming that they were right).

So next I should mention that I quite often get headaches, more than once a week. They have gotten a little worse over the years and turned into what I would assume a migraine would feel like. Sometimes they get so bad that I am not able to function at all and have to stay in bed until they are gone. I used to take ibuprofen for them, but most of the time now, it only makes them worse.

I do at times notice a few knots on my head. One that was painful on a daily basis on the right side near my ear (which is strange because I don't really hear as well on that side), and one on the right side closer to my neck (temporal and occipital maybe?).

I started having vision problems when I was about 20 and got a prescription for eye glasses. It was a very weak prescription because my vision wasn't too bad, only bad enough that I needed them for lecture classes. My vision has been getting worse, though it seems to be getting worse in my right eye. I don't really know how to explain the way I "see" with it. It's almost like that feeling you get when somebody shines a really bright light directly into your pupil and then pulls it away. That sort of blinding "feeling" though you are not really blind and you can see fine. It's just that strange feeling that happens when your eyes are trying to readjust.

So moving on, I did take birth control once upon a time. About 5 months after the Waffle House incident, I was in the middle of a birth control pack and I randomly had another very heavy period about a week and a half to two weeks after my previous one. I stopped taking birth control soon after that. I currently do not take birth control, but this same incident happened about a month ago.

In October of 2006 I found out I was pregnant, and in June of 2007 I had my daughter.

After my first prenatal visit at about 5 weeks, my doctor told me I had mild dysplasia and that he would not be able to check my cervix out until after I gave birth. I am not really sure what became of that because my insurance dropped me 6 weeks after I had her so I was only able to go in for one visit afterwards. He seemed to think it was the same as before, but I never actually got any test results back.

I did develop hemorrhoids after I gave birth. It has been almost a year, and I still experience problems with that.

Also, I did start having breathing problems when I was pregnant. The only thing is, they never really stopped. While I was driving one day, I had to pull the car over and have my boyfriend drive me to the hospital. I felt like I wasn't getting any air at all and became very dizzy and lightheaded. When I got out of the car, my legs gave out from underneath me. When we got the the ER, the nurse took my BP and it was higher than usual. By the time I was admitted to see a doctor, whatever it was had passed and the 2 young doctors just kind of brushed me off like I was making it up. This has happened several more times, though I will probably never go to a doctor about it again because of that.


Lately, I would say that my moods have become way off. I am pretty confused a good majority of the time. I have taken my life in a completely different direction which is not really like me. I have had an extremely hard time concentrating and actually had to drop out of school for the semester because it seemed like every time I would sit down to study, I couldn't remember the first half of a paragraph I read.

My memory has been suffering a bit, mostly my short term memory. I don't remember picking up the keys half of the time, or I think that I gave them to somebody else. While I was in the shower, I thought my wedding ring had fallen down the drain because it was not on my finger when I had actually taken it off and placed it on the counter.

I have also noticed lately that sometimes my heart will start to race a little and my head begins to hurt along with a little bit of vision problems as you might experience if you are going to pass out or maybe even go into a seizure. I have experienced this sort of thing before just from standing over a long period of time, but this happens even when I am sitting down now (when I was in high school I used to blackout often, once just from standing in line to pick up my parking permit).

At times, I also have very sharp chest pains when I breathe in, mainly with deeper breaths. I usually just try to take very short breaths when that happens until it stops.

On the subject of chest pains, a few weeks ago, I experienced excruciating pain on the left side of my chest that shot down the left side of my arm. I wasn't doing anything too physical; just walking to my car. It came to me very quickly, not gradual pain at all.


So those are my "symptoms" or what have you, some of which have been bothering me for a couple of years now.

As far as medical history goes, I have never had anything major. I had a blood transfusion when I was born because I was born 5 weeks early. They put me in one of those plastic boxes for a couple of weeks (I am assuming this was just to make sure that I was in a sterile environment). My tonsils were removed when I was about 21. I had an epidural during my pregnancy. I have been tested for stds, and I tested positive for being able to develop cold sores on my mouth (though I have never actually had one). The only thing that came up abnormal in a paps mere was the hpv that became dysplasia during my pregnancy.

On my dad's side:

My father has diabetes. This developed after he had prostate cancer and went through treatment. He had blood pressure problems in the past, though I am not sure if he still does. I don't believe he has ever taken medicine for the bp problems.

His father died of colon cancer.


On my mom's side:

She has thyroid problems. I believe that all of her sisters have thyroid problems as well. She has been showing signs of memory loss.

Her mother I think had thyroid problems. I believe she is also on bp medicine. She has had heart disease for a few years now and has a stint in her heart. She has been through several surgeries for it.

Her father has diabetes. I think he also tested positive for prostate cancer. He is in the early stages of Alzheimer's.


Her father's sister died of Alzheimer's in her 50s.

Her grandmother died of Alzheimer's.

Her grandmother's cousin died of Alzheimer's.

That is really all of the information I know off the top of my head as far as family history goes.

I know this is probably more information than I needed to give, but I just want to make sure that I am giving an accurate enough account.

Can anybody please help me?

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9 Replies:

  • WOW! You have a lot going on! My first inclination was MENOPAUSE....because many of the symptoms you mention are very, very common in menopause...memory, breathing vision, headaches......But you are obviously too young but I am guessing that you still have some hormonal problems going on...ovarian hormonal problems. I would get a good gyn and get a good work up. Blood work and exam. Birth control pills did a job on me....messing with hormones by taking birth control pills is not for everyone. I was one and felt really awful on them and they messed me up and gave me all kinds of weird side effects. Also definitely get the thryoid checked (autoimmune Hashimotos disease) and you may want to be checked for other autoimmune diseases). THYROID is also a very real possibility as it cause symptoms very similar to ovarian hormonal imbalances. Blood work for FT4, FT3 and TSH (be careful that range for TSH is 0.3-2.5....over 2.5 is suspect ....some doctors think up to 5 is ok but this is NOT TRUE!!!!!!!!...can't stress this enough!!!!) You have thryoid problems in your family and they tend to run in families...I have a thryoid problem and believe me they can cause all the symptoms you mention...and for your mom, if she may be undertreated (not taking enough thryoid supplement for HER) will give her continuing symptoms...if I were your mom I would find a doctor who was a bit more willing to help me tweak my meds so that I could feel better!!!!!!!!!! Start with thryoid and ovarian hormones...my bet is on thryoid! Joan
    Joan5555 316 Replies Flag this Response
  • Some of the county health departments have a women's clinic, or you need to go to a sliding fee scale clinic and have the hpv treated before it progresses to cancer. They will freeze or lazer off the bad tissue and then it should be fine. Your boyfriend may need treatment for hpv, too. You obviously need to find a regular doctor because you have several things going on. You may suffer from migranes or hormonal headaches or you may have something more serious going on in your brain; therefore, you need to see a neurologist. Something is shooting up your blood pressure from time to time and it could be booze, so you may have to cut that out. You don't seem to know if you are diabetic or not, but you need to find out..and you could have thyroid problems or heart/lung problems. You need a complete physical with extensive tests and the hpv treated. People can guess but you need the tests.
    Monsterlove 2921 Replies Flag this Response
  • Hello. Well this will be my second semester as a student in the undergrad medical field so I thought I might be able to figure this one out on my own, but I'm no doctor. I really need somebody's help with this one because I am starting to get a little worried. I have a list a mile long here so please stay with me, and if you are able to offer any words of advice or help me figure out what might be causing all of this it would be much appreciated. Just for a brief.. I am a 23 year old Caucasian female. 5'7" 115-120 lbs currently (my weight goes up and down a lot, fluctuating from 115-125 lbs). I don't know exactly where this all started, but I would say the most accurate time frame to give you would be about 2 and a half years ago. Something just kind of hit me and I started getting this "I don't care about anything" attitude. I suppose everyone goes through that though. Right around that time, I was at a Waffle House with my then-boyfriend. To this day, I cannot tell you whether or not we actually went inside and ate. We did drink a little earlier that day, but at this point it had been about 4 or 5 hours and I had only had 2 or 3 beers. Anyways, I apparently had a seizure in the parking lot. I sort of remember going into it, but I don't know for how long. I remember opening my eyes and being very confused because there was an ambulance there at this point, a police car, several people standing around me, and a nurse trying to put sugar in my mouth. I have been tested for diabetes before, but the results came back negative (maybe a little close to borderline though). So symptom number one with the circumstance is the seizure (assuming that they were right). So next I should mention that I quite often get headaches, more than once a week. They have gotten a little worse over the years and turned into what I would assume a migraine would feel like. Sometimes they get so bad that I am not able to function at all and have to stay in bed until they are gone. I used to take ibuprofen for them, but most of the time now, it only makes them worse. I do at times notice a few knots on my head. One that was painful on a daily basis on the right side near my ear (which is strange because I don't really hear as well on that side), and one on the right side closer to my neck (temporal and occipital maybe?). I started having vision problems when I was about 20 and got a prescription for eye glasses. It was a very weak prescription because my vision wasn't too bad, only bad enough that I needed them for lecture classes. My vision has been getting worse, though it seems to be getting worse in my right eye. I don't really know how to explain the way I "see" with it. It's almost like that feeling you get when somebody shines a really bright light directly into your pupil and then pulls it away. That sort of blinding "feeling" though you are not really blind and you can see fine. It's just that strange feeling that happens when your eyes are trying to readjust. So moving on, I did take birth control once upon a time. About 5 months after the Waffle House incident, I was in the middle of a birth control pack and I randomly had another very heavy period about a week and a half to two weeks after my previous one. I stopped taking birth control soon after that. I currently do not take birth control, but this same incident happened about a month ago. In October of 2006 I found out I was pregnant, and in June of 2007 I had my daughter. After my first prenatal visit at about 5 weeks, my doctor told me I had mild dysplasia and that he would not be able to check my cervix out until after I gave birth. I am not really sure what became of that because my insurance dropped me 6 weeks after I had her so I was only able to go in for one visit afterwards. He seemed to think it was the same as before, but I never actually got any test results back. I did develop hemorrhoids after I gave birth. It has been almost a year, and I still experience problems with that. Also, I did start having breathing problems when I was pregnant. The only thing is, they never really stopped. While I was driving one day, I had to pull the car over and have my boyfriend drive me to the hospital. I felt like I wasn't getting any air at all and became very dizzy and lightheaded. When I got out of the car, my legs gave out from underneath me. When we got the the ER, the nurse took my BP and it was higher than usual. By the time I was admitted to see a doctor, whatever it was had passed and the 2 young doctors just kind of brushed me off like I was making it up. This has happened several more times, though I will probably never go to a doctor about it again because of that. Lately, I would say that my moods have become way off. I am pretty confused a good majority of the time. I have taken my life in a completely different direction which is not really like me. I have had an extremely hard time concentrating and actually had to drop out of school for the semester because it seemed like every time I would sit down to study, I couldn't remember the first half of a paragraph I read. My memory has been suffering a bit, mostly my short term memory. I don't remember picking up the keys half of the time, or I think that I gave them to somebody else. While I was in the shower, I thought my wedding ring had fallen down the drain because it was not on my finger when I had actually taken it off and placed it on the counter. I have also noticed lately that sometimes my heart will start to race a little and my head begins to hurt along with a little bit of vision problems as you might experience if you are going to pass out or maybe even go into a seizure. I have experienced this sort of thing before just from standing over a long period of time, but this happens even when I am sitting down now (when I was in high school I used to blackout often, once just from standing in line to pick up my parking permit). At times, I also have very sharp chest pains when I breathe in, mainly with deeper breaths. I usually just try to take very short breaths when that happens until it stops. On the subject of chest pains, a few weeks ago, I experienced excruciating pain on the left side of my chest that shot down the left side of my arm. I wasn't doing anything too physical; just walking to my car. It came to me very quickly, not gradual pain at all. So those are my "symptoms" or what have you, some of which have been bothering me for a couple of years now. As far as medical history goes, I have never had anything major. I had a blood transfusion when I was born because I was born 5 weeks early. They put me in one of those plastic boxes for a couple of weeks (I am assuming this was just to make sure that I was in a sterile environment). My tonsils were removed when I was about 21. I had an epidural during my pregnancy. I have been tested for stds, and I tested positive for being able to develop cold sores on my mouth (though I have never actually had one). The only thing that came up abnormal in a paps mere was the hpv that became dysplasia during my pregnancy. On my dad's side: My father has diabetes. This developed after he had prostate cancer and went through treatment. He had blood pressure problems in the past, though I am not sure if he still does. I don't believe he has ever taken medicine for the bp problems. His father died of colon cancer. On my mom's side: She has thyroid problems. I believe that all of her sisters have thyroid problems as well. She has been showing signs of memory loss. Her mother I think had thyroid problems. I believe she is also on bp medicine. She has had heart disease for a few years now and has a stint in her heart. She has been through several surgeries for it. Her father has diabetes. I think he also tested positive for prostate cancer. He is in the early stages of Alzheimer's. Her father's sister died of Alzheimer's in her 50s. Her grandmother died of Alzheimer's. Her grandmother's cousin died of Alzheimer's. That is really all of the information I know off the top of my head as far as family history goes. I know this is probably more information than I needed to give, but I just want to make sure that I am giving an accurate enough account. Can anybody please help me? This is interesting that I come apon this as I was just diagnosed with Hashimotos....Luna I think Joan there may be right. You really need to rule out thyroid first.....If you look through the posts you will find mine under "2 sister, same symptoms no answers" read it and see what you think. your symptoms sound very simmilar......I realised what I had because my family also has a history of thyroid problems with the women on my mothers side. I have chest pain, rapid heart rates, headaches, I forget everything and am as clumsy as a mule with two left hooves....I have seizures and neurological stuff too along with pain throught my body and I suffered with this for over a decade before finding out it is Hashimotos. Thyroid issues can cause absolute havoc with your body....far more than people expect. Thyroid imbalence can also have the exact same symptoms as heart failure so it can be misleading. I'm not going to tell you that is what is wrong with you but I just think after reading this that it is a good idea to check into it! I hope you find your answer soon!
    Candle 25 Replies Flag this Response
  • Ok, I would say first, get your Thyroid checked. Then go to a neurologist that specializes in migraines. seizures are associated with migraines, as is stroke, High Blood Pressure, visual disturbances, dizziness, confusion, and many of your other symptoms. You do not have to be having pain to be having a migraine. But as you are describing pains in your head I would make sure you get that checked. (Especially since you are describing pain on one side, or one part of your head, which is classic migraine.) I also recommend looking at this book: http://www.amazon.com/Heal-Your-Headache-Program-Taking/dp/0761125663Maybe it will help reduce your symptoms...I hope you feel better!
    Macophile 127 Replies Flag this Response
  • Thanks for your posts everyone. I have been thinking about getting my thyroid checked for sure. One thing I should have mentioned though on the subject of thyroids.. when I went to the ER they DID look at my thyroid to make sure it wasn't inflamed I suppose and they said it was normal. I don't know if that would have anything to do with the diagnosis or not. It just almost seems strange that I would have thyroid problems this early in life. Everyone on my mom's side didn't develop thyroid problems until they were closer to menopause. Can you still have thyroid problems when you are young though?
    lunastarliteyes 1 Replies Flag this Response
  • OH yes, any age can get thryoid problems! Menopause or perimenopause is often a trigger as ovarian hormones are part of the same endocrine system....I had thryoid problems since high school...poor me! :o With the family history you need to see an endocrinologist and DO READ up on this condition...it can be sometimes tricky but once under the care of a good, caring doctor who is willing to work with you and tweak your meds until you feel well, you WILL feel well! Joan
    Joan5555 316 Replies Flag this Response
  • im with the others.. have tests done to make sure thyriod levels are fine. i couldnt work out what else could be wrong with you but with the following I felt like I wasn't getting any air at all and became very dizzy and lightheaded. When I got out of the car, my legs gave out from underneath me. When we got the the ER, the nurse took my BP and it was higher than usual. By the time I was admitted to see a doctor, whatever it was had passed and the 2 young doctors just kind of brushed me off like I was making it up. This has happened several more times, though I will probably never go to a doctor about it again because of that. kind of sounds like a panic attack with those symptoms. So consider if you could be getting panic attacks with whatever your issue is. Do you still get seizures with drinking alcohol? if so finding out which illnesses dont go well at all with alcohol could help you come up with something.
    taniaaust1 2267 Replies Flag this Response
  • weak muscles, especially legs, and lightheadness are also VERY common symptoms of the same condition...thryoid....! Joan
    Joan5555 316 Replies Flag this Response
  • before you got sick, did you visit a tropical climate? florida, mexico, etc.
    Anonymous 42789 Replies
    • February 16, 2011
    • 04:45 PM
    • 0
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