Discussions By Condition: I cannot get a diagnosis.

Please suggest some possible diagnosis

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • February 16, 2009
  • 01:14 PM

I have had problems for 10 years with an undiagnosed illness. I also have an underactive thyroid and mild bronchiecstasis (lung damage) and I am 42.

I seem to have an illness that is intermittent. I can have periods where I am very well and periods where I have lots of symptoms. When I am well the nerve damage caused when I am ill still leaves me in pain and with numbness. When I am ill my symptoms include:
- generally feeling ill
- tired
- neuralgia pain down my right hand side - always worst in my face
- patches of numbness in my skin
- some problems with urinary and very mild fecal incontinence (although in past my urinary incontinence has been very severe)
- brain fog - at the worst I can barely listen and respond to a question
- mild sore throat - often the first symptom to appear
- mild puffiness in my face
- mild redness in my cheeks and sometimes my neck in a v shape
- occasional muscle weakness

I seem to get ill when I am run down, and often get fungal infections and cold sores at the same time. Being physically active makes my symptoms worse when I am ill. I often get very depressed when my symptoms begin or just before - but the depression never seems related to anything actually happening in my life, and can totally disappear after a few days.

I have had a number of tests e.g. blood work, emg, MRI, etc. Everything has always been normal. I have posted on here before and it has been suggested quite a few times that it may be my underactive thyroid, but all of my annual tests have shown my thyroid to be normal - last test a month ago was 1.1. Also my underactive thyroid symptoms were different to the ones above.

If anyone has any ideas these would be gratefully received. Thanks.

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8 Replies:

  • I have had problems for 10 years with an undiagnosed illness. I also have an underactive thyroid and mild bronchiecstasis (lung damage) and I am 42. I seem to have an illness that is intermittent. I can have periods where I am very well and periods where I have lots of symptoms. When I am well the nerve damage caused when I am ill still leaves me in pain and with numbness. When I am ill my symptoms include:- generally feeling ill- tired- neuralgia pain down my right hand side - always worst in my face- patches of numbness in my skin - some problems with urinary and very mild fecal incontinence (although in past my urinary incontinence has been very severe)- brain fog - at the worst I can barely listen and respond to a question- mild sore throat - often the first symptom to appear- mild puffiness in my face- mild redness in my cheeks and sometimes my neck in a v shape- occasional muscle weakness I seem to get ill when I am run down, and often get fungal infections and cold sores at the same time. Being physically active makes my symptoms worse when I am ill. I often get very depressed when my symptoms begin or just before - but the depression never seems related to anything actually happening in my life, and can totally disappear after a few days. I have had a number of tests e.g. blood work, emg, MRI, etc. Everything has always been normal. I have posted on here before and it has been suggested quite a few times that it may be my underactive thyroid, but all of my annual tests have shown my thyroid to be normal - last test a month ago was 1.1. Also my underactive thyroid symptoms were different to the ones above. If anyone has any ideas these would be gratefully received. Thanks. Sorry uve just been "Blaze'd" by Blazes spam, never worry everyone gets them.:eek: she has OCD What meds are you on ? I suffer TN (Trigeminal Neuralgia) also Hypothroid as well so i may be able to help you. Regards:)
    Tootsie 628 Replies
    • February 16, 2009
    • 11:40 PM
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  • I take thyroxine for an underactive thyroid and amitriptyline for my pain.
    ruth40 55 Replies
    • February 19, 2009
    • 04:28 PM
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  • It could be fibromyalgia. It comes along with your symptoms. The only thing that doesn't match is the bronchiecstasis. Could something seperate may have caused that? Maybe you have two disorders. Anyway although fibromyalgia itself doesn't have all these symptoms they come along commonly with it. I hope you find out whats wrong.
    davidmt1 11 Replies
    • February 19, 2009
    • 04:36 PM
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  • Yes my bronchiecstasis could be caused by something totally separate as could my underactive thyroid. I forgot to mention that my brother also has some health problems. He is 41 and has problems (that are being treated) with a very fast resting heart rate - over 120, and with coughing and tiredness. This may be totally unrelated, but I thought I had better mention it in case there is a heriditary factor to my illness.
    ruth40 55 Replies
    • February 19, 2009
    • 04:45 PM
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  • lupus?Common Symptoms of LupusPainful or swollen joints and muscle painUnexplained feverRed rashes, most commonly on the faceChest pain upon deep breathingUnusual loss of hairPale or purple fingers or toes from cold or stress (Raynaud's phenomenon)Sensitivity to the sunSwelling (edema) in legs or around eyesMouth ulcersSwollen glandsExtreme fatigueSymptoms of lupus can range from mild to severe and may come and go over time. Other symptoms of lupus include chest pain, hair loss, anemia (a decrease in red blood cells), mouth ulcers, and pale or purple fingers and toes from cold and stress. Some people also experience headaches, dizziness, depression, confusion, or seizures. New symptoms may continue to appear years after the initial diagnosis, and different symptoms can occur at different times. In some people with lupus, only one system of the body, such as the skin or joints, is affected. Other people experience symptoms in many parts of their body. Just how seriously a body system is affected varies from person to person.
    rad-skw 1605 Replies
    • February 20, 2009
    • 00:21 PM
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  • Yes I had thought of lupus, but I have been tested a couple of times for it and the tests have always been negative.
    ruth40 55 Replies
    • February 20, 2009
    • 00:27 PM
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  • Does anyone else have any other ideas?
    ruth40 55 Replies
    • February 23, 2009
    • 01:57 PM
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  • go to "chronicsorethroat" website
    Anonymous 42789 Replies
    • February 23, 2009
    • 02:47 PM
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