Discussions By Condition: I cannot get a diagnosis.

please read and help me find a diagnosis

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: akedgar77
  • July 18, 2010
  • 05:11 PM

My swelling started in April 2009, when I woke up and my big toe on my left foot was swollenand painful. By the next day it was 10 times worse, I had to wear flip flops and couldn't walk for very long. I went to a clinic and the doctor looked at my foot and told me I had gout. I was shocked, I am a 31 year old woman who didn't drink, was forty pounds over weight, yes, but I had a baby the year before. He gave me naproxen and told me if I had another episode in the next few months then I needed to see my family doctor to be put on meds. It took about a month, after the initial flare up for me to be able to wear shoes, but the swelling never went away, in fact the rest of my foot was swollen. I didn't think much of it, I thought this is what gout does.

Seven months later and 40lbs lighter, all the fingers on my right were swollen but not painful they stiff. Soon after my whole hand was swollen, then I would have swelling in my face around my eyes.

I had finally had enough and went to a nurse practitioner and she had a uric acid test ran, normal. I then told her my mom and several family members has hashimoto's disease and are hypothyroid. I had all the tests run for that and RA, normal.

The next month I went to our normal family doctor, he has cut down his scheduled hours and is hard to get into. I took my previous test results, he gave me an exam, had another thyroid, hashimotos, tests to check all my renal functions and an X-ray of my foot/toe. All came back normal, except my sodium was 148, which is only 3 points high. He told me to try a low sodium diet and let him know. I cut down on my sodium but noticed it didn't always effect my swelling.

In the meantime, I went to the eye doctor for an exam and new contacts. My eyes had gotten two whole steps worse in a year and half, which alarmed my doctor because my have only slightly changed, before that, since I was 14. I then told him about everything else and he told me to see an endrocrinologist.

I went to an endrocrinologist and had more blood work ran and all day urine test ran, they took 11 viles of blood so you can imagine how many test were run. All came back fine. The doctor in charge of the group did come and look at my foot and hand and said that it was not gout, because people don't have gout for a year.

I did just find out in my annual colonoscopy that I have diverticulitis on top of my IBS.

So I am still swollen and still don't know why. Sorry this was so long but please any information would be appreciated.

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