Discussions By Condition: I cannot get a diagnosis.

Please please someone help!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • February 26, 2011
  • 04:22 PM

I am really at my wits ends. I don't even know where to begin. I have so many issues but I can say that if I could just get a proper diagnosis and get rid of this "Heat" on me my life would improve 10 fold!

I have been suffering many symptoms since 1994. I am now 44 years old and the symptoms just seem to get worse every year.

The main symptom, the CORE symptom with me is HEAT! I am suffering debilitating hot flashes. I have been tested for menopause. As I sit here typing this I begin to feel the heat creep up my back into my hairline and the sweating begins. Soon the sweating will stop and I'll return to a "normal" feeling.

This "hot flash" is not a few times a day, it is constant, all day ever day and all night every night. Every doctor I talk to always says the same thing "menopause" well yeah, I'm 44 now so maybe, but, not since I was 28, I mean come on.

No medication has ever helped. I've tried everything I can think of. My entire family has suffered in some way or another since 1994 because of this issue with me.

My poor husband is disabled due to lung cancer and only has me to take care of him. I am dying here folks. I cannot continue living like this. It is so debilitating. I can't cook, clean, laundry, properly care for my husband....I exist, I do not live.

Please ,Please, I am begging for help! If someone can help me it would be amazing.

Thank you for taking time.

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4 Replies:

  • One possibility could be a type of Dysautonomia. Do you have a Pulse Oximeter?If yes,test your heartrate when you are sitting down and after having done this,stand up and test it again while you are standing.What are the numbers? Have you been referred to a Neurologist and has he done nerve conduction studies?
    wdiagnosis1 33 Replies Flag this Response
  • I just used the meter and oddly while sitting I was at 93 stood up and took it and was at 110.I haven't seen another doctor other then my pcm, gyn and endocrynologist over the many years of my suffering.I will ask my doc for a referral to a Neurologist. Mean while, I'll look up the word you mentioned.Any kind of help, just you taking the time to read and reply means more then you can imagine. Thank you so very much!
    Anonymous 42789 Replies Flag this Response
  • Get your thyroid (front of your neck) gland tested like a TSH blood test.I used to feel like I was burning up and my doctor saw I had a goiter.I stopped eating peanut butter because it is a goitergen, then gradually I no longer have the heating up problem that I used to have.You could add fresh table salt that has iodine.Processed food has lot's of salt but it doesn't have iodine which affects your thyroid.You should stop eating goitergens too.
    Anonymous 42789 Replies Flag this Response
  • I am really at my wits ends. I don't even know where to begin. I have so many issues but I can say that if I could just get a proper diagnosis and get rid of this "Heat" on me my life would improve 10 fold!I have been suffering many symptoms since 1994. I am now 44 years old and the symptoms just seem to get worse every year.The main symptom, the CORE symptom with me is HEAT! I am suffering debilitating hot flashes. I have been tested for menopause. As I sit here typing this I begin to feel the heat creep up my back into my hairline and the sweating begins. Soon the sweating will stop and I'll return to a "normal" feeling.This "hot flash" is not a few times a day, it is constant, all day ever day and all night every night. Every doctor I talk to always says the same thing "menopause" well yeah, I'm 44 now so maybe, but, not since I was 28, I mean come on.No medication has ever helped. I've tried everything I can think of. My entire family has suffered in some way or another since 1994 because of this issue with me.My poor husband is disabled due to lung cancer and only has me to take care of him. I am dying here folks. I cannot continue living like this. It is so debilitating. I can't cook, clean, laundry, properly care for my husband....I exist, I do not live.Please ,Please, I am begging for help! If someone can help me it would be amazing.Thank you for taking time.Might get the house checked for toxic gases. Just a guess here.
    jackrorabbit 113 Replies Flag this Response
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