Discussions By Condition: I cannot get a diagnosis.

Please Please Help, cant take much more.

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • February 15, 2011
  • 10:39 PM

Can a viral infection last for 4 months?
Four months ago I unexpectedly awoke to flu like symptoms, (sore throat, cough, aching muscles, headache, cant get out of bed ect)
These symptoms lasted at an intense level for around three weeks.
Since then I have never recovered, I am constantly fatigued, have sore, red swollen eyes the whole time, my tonsils are HUGE with white spots on them, and I generally look like I am very ill (black cirles under my eyes ect) I havent been able to do ANYTHING at all apart from go to the doctors for FOUR months.
Ive been tested for glandular fever, Diabetes, Thyroid disorders, disorders of the immune system, even HIV. All tests have come back negative.
I have taken nine courses of antibiotics, which havent helped at all.
I am now at a loss of what to do next, my doctors says that I may have a viral infection, Is this possible over such a long period of time. If so what can I do to get well?

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4 Replies:

  • Have you been tested for mono? I'm not sure of the exact symptoms of mono but I do know that it is viral and can last very long time and cause extreme fatigue. I hope this helps and that you find answers soon.
    Anonymous 42,789 Replies
    • February 16, 2011
    • 01:01 AM
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  • Hi, it sounds like you may possibly have gotten chronic fatigue immunity dysfunction syndrome.. also called chronic fatigue syndrome. For the first 9 mths of this, I could to told by lots of doctors that I must have a virus as I looked very ill (black bags under my eyes, eyes actually swelling shut, sore throat, glands all up, pusy looking tonsils, fevers, tiredness) but they never could work out what virus. Virus like presentation is a quite classical presentation for CFS/ME. As there is currently no test for it, diagnoses has to be just based on symptoms such as yours after everything else is ruled out and you've been sick for at least 6 mths. (A CFS/ME specialist can often diagnose it before 6mths). Unfortunately this is a quite serious illness with no cure so I really hope Im wrong. I suggest for you to seek out a specialist in this illness (they are familiar with all the other illnesses which can present like CFS/ME and will work to rule them out, also you will then be getting good advice on your illness if it is in fact this. Bad advice from doctors who are naive, may make you far worst!!!). By doing the correct things early in CFS/ME you stand the best hope of recovery. * note that CFS/ME is currently being connected with the new retrovirus XMRV (wall street journal blog has some unbiased articles on the situation). XMRV is currently a contraversional subject due to some studies which werent done well discounting a very well run original study on this, so the health authorities are still trying to work out whether it exists in high numbers of CFS/ME or not.. (some studies have up to 86% of people with CFS/ME testing positive to XMRV while its only in 4% of the general healthy population. XMRV may turn out to be the actual cause of CFS/ME in most). From last year and early this year, CFS/ME people are now banned from giving blood in America, England, Australia and some other countries due to possibly us transmitting XMRV (to which good tests are still trying to be developed for the general public). They strongly suspect it is transmitted by blood but they are still working out how its transmitted. If you have children.. I suggest take care not to share cups with them etc, my sister is appearing to have caught the same disease as I (I have CFS/ME) after drinking out of my glass, the christmas before last and she's now has been sick over a year. (she's still trying to work out what she has, she's got to the point where she's starting to see my specialists now to rule out other things which the doctors havent thought of yet). http://forums.aboutmecfs.org/forum.php This CFS/ME forum has a lot of info on both CFS/ME and all the known info so far on XMRV.
    taniaaust1 2,267 Replies
    • February 16, 2011
    • 04:11 AM
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  • Thankyou for the fast reply :)I have considered that I may have CFS from around the 2 month point when I wasnt showing any improvement. As it is such a horrible illness which no cure, I think that I have just been trying to convince myself that I have something else. I am due to see my Doctor on tuesday, I will ask to be referred to a CFS specialist. My doctor wants to perform a tonsilectomy next thursday but I am unsure as to weather I should go ahead with this, dont know if my body could handle the operation at the moment, but just keep thinking will it help!!!Do things ever improve with CFS??? Feel like I am in ***l at the moment, have NO life at all!!!
    Anonymous 42,789 Replies
    • February 16, 2011
    • 03:56 PM
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  • Some new research on the new retrovirus XMRV got published today. This virus who may be causing CFS/ME, possibly prostrate cancer and some other things, I believe is spreading throu out the world population fast. How many have caught this before the last year/this year blood ban got put in place? How else is it spreading? The CFS/ME communities are calling for more studies on this possible life destroying virus to be done and fast. To many are sick.... to many are now having to watch their family members come down ill too. Study which was published todayon XMRV is below. (as I said before, very little is known about this virus they are finding in 4% of the general pop... who may all be ending up with CFS/ME at a later date if this virus is causing it). ""http://jvi.asm.org/cgi/content/abstract/JVI.02411-10v1 J. Virol. doi:10.1128/JVI.02411-10Copyright (c) 2011, American Society for Microbiology and/or the Listed Authors/Institutions. All Rights Reserved. Infection, viral dissemination and antibody responses of Rhesus macaques exposed to the human gammaretrovirus XMRVNattawat Onlamoon, Jaydip Das Gupta, Prachi Sharma, Kenneth Rogers, Suganthi Suppiah, Jeanne Rhea, Ross J. Molinaro, Christina Gaughan, Beihua ***g, Eric A. Klein, Xiaoxing Qiu, Sushil Devare, Gerald Schochetman, John Hackett Jr., Robert H Silverman, and François Villinger*Department of Pathology and Laboratory Medicine, Emory University School of Medicine, Atlanta GA; Lerner Research Institute, Cleveland Clinic Foundation, Cleveland, OH; Division of Pathology, Yerkes National Primate Research Center, Emory University, Atlanta, GA; Glickman Urological and Kidney Institute and LRI, Cleveland Clinic Foundation, Cleveland, OH; Abbott Diagnostics, Emerging Pathogens and Virus Discovery, Abbott Park, IL* To whom correspondence should be addressed. Email: fvillin@emory.edu. AbstractXMRV was identified in association with human prostate cancer and chronic fatigue syndrome. To examine the infection potential, kinetics, and tissue distribution of XMRV in an animal model, we inoculated 5 macaques with XMRV intravenously. XMRV established a persistent chronic disseminated infection, with low transient viremia and provirus in blood lymphocytes during acute infection. Although undetectable in blood after about a month, XMRV viremia was reactivated at 9 month confirming the chronicity of the infection. Furthermore, XMRV gag was detected in tissues throughout, with wide dissemination throughout the entire period of monitoring. Surprisingly, XMRV infection showed organ specific cell tropism: CD4 T cells in lymphoid organs including the gastrointestinal lamina propria, alveolar macrophages in lung, and epithelial/interstitial cells in other organs, including the reproductive tract. Of note, in spite of the intravenous inoculation, extensive XMRV replication was noted in prostate during acute but not chronic infection, even though infected cells were still detectable by FISH in prostate at 5 and 9 months post infection. Marked lymphocyte activation occurred immediately post infection, but antigen specific cellular responses were undetectable. Antibody responses were elicited and boosted upon reexposure, but titers decreased rapidly suggesting low antigen stimulation over time. Our findings establish a nonhuman primate model to study XMRV replication/dissemination, transmission, pathogenesis, immune responses and potential future therapies. "........................... They now have their animal models to study XMRV, so hopefully the science will move forward faster now. This is a health crisis which may turn out to be worst then the AIDS one, due to the scale of those infected and the disability consequence of those with this virus. (half of those with CFS/ME are on disability and unable to work as they are so ill).
    taniaaust1 2,267 Replies
    • February 17, 2011
    • 01:07 AM
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