Discussions By Condition: I cannot get a diagnosis.

Please help...I am so tired

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: TRenee
  • September 24, 2007
  • 10:30 PM

Hi i have been sufering from many neurological probolems for a long time. I go through spells or attacks then they go away, but when they come back they are worse than ever. IT started out with just numbness and tingling a lot. The first major thing that happened was when my leg went paralyzed for a while. By the time i got to the hospital it was better, so the doctors did not take me seriously. I would suffer from this type of attacks then a few years ago i began to get new symptoms. I became so tired and exhausted. I lost strength to do normal things. I also began to get shooting and electrical pains down my neck, arms, legs, fingers and toes. Sometimes this would lock my finger and toes in place. Here is also where i started to get dizzy all the time. it still alternated in attacks. Then about a year ago is when my eg started twitching enough to make it kick. i went to the hospital they medicated me and sent me home. the next day it was still doing it so they admitted me and ran tests said that i must be depressed. i went to a therapist and was put on Zoloft. it was convient for them that my attack settled down then. but after a few months another attack came on. so tired again, dizzy, numb, tingly, electrical pains and new symptoms. My vision became blurry and i began loosing strength in my hands. i have no depth perception and my legs are so weak that i cant walk a straight line. i am uncoordinated with my hands, trying to grab something i see and it not being where i think it is, like over reaching. i was having trouble concentrating, and even had memory loss. the most recent visit to the hospital was for my left side of body going numb. i asked for a refferal for a new neurologist because the last one blew me off. i have had MRI done but nothing yet. can it be MS, maybe in early stage? help

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  • have they done an MRI with contrast? I had huge tumor in my brain stem that was causing numbness/tingling in right arm and pain in left, short term memory loss, ect. was made to take carple tunnel test twice and put on antidepressent until they actually found tumor. Try another nerologist or try to see a nerosurgeon.... best of luck:p
    opalizner 2 Replies
    • September 25, 2007
    • 04:20 AM
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  • have they done an MRI with contrast? I had huge tumor in my brain stem that was causing numbness/tingling in right arm and pain in left, short term memory loss, ect. was made to take carple tunnel test twice and put on antidepressent until they actually found tumor. Try another nerologist or try to see a nerosurgeon.... best of luck:pMaybe you could ask to have a lumbar puncture and mri of the spinal cord?Have these all been tested:Lymeceoliacmagnesium deficiencyB12(i think its b12 or it could be b6,sorry im not sure)deficiencyi think theres a disorder wnere people get attacks of paralysis in episodes but im not sure what its called sorry,i think its called temporary paralysiscalciumpotassiumprovoked heavy metal testother viruses ebv streptococcal infection etcmsg/aspartame relatedAndersen-Tawil syndromecatecholaminesHave you had a p.e.t scan done also?Very sorry to put this on your post Trenee but can i ask opalizner,you asked trenee if she had a mri with contrast done and you said you had one done and they found a tumor in your brainstem.Before you had an mri with contrast,did you have an mri without contrast and is there any difference?My neurologist said that if theres anything it will come up on mri without contrast.The reason why im asking is i have similar symptoms to you Trenee but also different in some ways and i also had an mri without contrast which didnt show anything so i was wondering if anything could come up on an mri with contrast which a noncontrast mri didnt show.Thankyou Marypills11.com ;))pills11.com ;))
    Anonymous 42789 Replies
    • September 25, 2007
    • 10:52 AM
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  • have they done an MRI with contrast? I had huge tumor in my brain stem that was causing numbness/tingling in right arm and pain in left, short term memory loss, ect. was made to take carple tunnel test twice and put on antidepressent until they actually found tumor. Try another nerologist or try to see a nerosurgeon.... best of luck:pYes I Had an an MRI with contrast about a year ago. It has been long and confusing. I got a new neurologist and my first apt. to see him is in October. My new ER doctor said that it is just probably to early to make a diagnosis b/c sometimes things are to small to see with our technology and time will tell either will more advanced scans or my problem will become bigger...i guess....ahhhhhhh
    TRenee 12 Replies
    • September 25, 2007
    • 04:13 PM
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  • TRenee...please consider NAET or BioSET therapy for your symptoms. I was having many neurological issues also, as well as fatigue, numbness, tingling...you name it. I had over 70 symptoms.The only help I found was here in this forum. Someone suggested it and I went.It's great. Today was the second day of my new job. Last year I was told to apply for social security and that I would never work again.I guess I showed them! With the help of this forum and the people in it trying to help others. acuaan and Eatafruit78 both suggest it as well.acuann is becoming a practicioner and Eatafruit is the one who suggested it to me because it worked for her too. She is now back to school and I'm at work. YEAH!!! Viva NAET and Bioset...the best medicine noone wants you to know about! Take care, mommy cat:)
    mommy cat 1654 Replies
    • September 25, 2007
    • 09:55 PM
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  • Have you checked for Lyme disease? It can cause numbness. Leprosis does, too: On the parts of the skin that are numb the hair normally disappears. Not a very likely explanation, but if you don't get anywhere in other directions, have it checked out.
    Anonymous 42789 Replies
    • October 2, 2007
    • 04:51 PM
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  • Hi TRenee!I am so sorry to hear about what you are going through. I went through something very similar- worked up for MS and other neuro problems for years but then was told I was depressed when all my labs and studies came back normal. I was told that I would improve with enough Paxil and therapy.If your new neurologist starts trying to tell you this too, RUN!!!!!!!I'm sorry, but depression just doesn't cause numbness and tingling and shocks down your extremities. It really doesn't...I stuck it out for years. My 8th neurologist finally diagnosed me with something that can look like MS and that most doctors don't even know about. It's called Hashimoto's Encephalopathy. It is a complication of autoimmune thyroiditis. I did not know I had a thyroiditis this whole time, because my thyroid hormone levels were normal, as is true of most HE patients.The diagnosis is made only if the neurologist checks your thyroid antibodies, which will be positive. I subsequently went on to find out that although my thyroid gland is normal in size (no goiter), it was chock full of small nodules on ultrasound- highly consistent with thyroiditis.So, if all your labs start coming back "normal", please ask your neurologist to check your thyroid antibodies, even if your TSH is normal.DO NOT LET THEM TELL YOU IT IS JUST DEPRESSION, as that would probably constitute malpractice givne your other symptoms.-Been there, done that
    Anonymous 42789 Replies
    • October 13, 2007
    • 04:26 AM
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