Hello. Let me first start with my medical history (this might take a while) All of this info is relevant to what my diagnosis might be.
I was diagnoses with Hodgkin’s Disease Aug 2008. I completed 4 months of chemo and 13 radiation treatments. The cancer was in the RIGHT side of my chest/neck and I had only that side radiated with very small dosages. After my 4th chemo treatment the cancer was 80% gone. Once I was done with chemo it was 100% gone and I had the radiation to make sure it wouldn’t come back.
Sept 08 I was hospitalized with pancreatitis
December 08 hospitalized with pneumonia
January 09 hospitalized with severe migraines, loss of balance, confusion etc etc
Last chemo treatment Dec 4th 08
Last radiation treatment January 29th 09
In December I started having severe migraines in which my neurologist prescribed me a number of different muscle relaxants that I would take before bed. Many of them didn’t work. Then he prescribed me propranolol. I took this and 5 minutes later I was experiencing severe chest pain in the right side of my chest, about 3 inches below my armpit and 2 inches to the left. It was so severe I almost called 911. I called my oncologist and she said to take a vicodin and go to sleep. It helped and when I woke up it was gone. I called my neurologist and he said to continue taking it. I took it again that night with the same effect, so I told him I would not take it anymore no matter what he said. (He’s the kind of doctor who pushes muscle relaxants to drug you up enough to not care about anything) Around this time my migraines were becoming less frequent so I stopped taking the preventative medications and would just take an Excedrin if I had a migraine.
From this point on the chest pain continued but it was not constant. It would start about 1 ½ hours after I woke up. If I took a deep breath it would hurt really bad. If I sneezed, moved certain ways or did any exercise it would get worse.
I went to my neurologist and he said the propranolol had nothing to do with the chest pain and it was just a coincidence. & he prescribed me vicodin to think it would shut me up. When I persisted he told me the cancer probably came back and I would need to see my oncologist. I went to her and she ordered a CT scan to see if it was back but I was still 100% in remission. She said I needed to see my pulmonary consultant to see if there was a problem with my lung.
I went to my pulmonary consultant and he had me do another breathing test to see if I was breathing normally or if the bleomisin (sp?) which was one of the chemo drugs, gave me any fibrosis in the lungs. The test came back relatively normal. He then thought I had pleurisy so he had me on all different kinds of anti-inflammatory. None of them worked. He then blamed it on the radiation (even though no area around that spot was radiated) so I needed to see my radiologist.
I went and saw him and he said it had absolutely nothing to do with the radiation.
Went to a general MD, said it might be my gallbladder, ultrasound came back normal. Liver functions are fine. Blood count fine.
Had another set of chest c-rays & ct scan and everything was fine. All my doctors started pushing for exploratory scope surgery to see if anything would show, then they would start to mention little things like, “Yeah it will most likely be inconclusive but there’s nothing much else we can do.” The long term side effects of the surgery are worst then the pain itself so I would rather not do that unless I knew I would get results. My doctors have been avoiding me like the plague because they don’t know what else to tell me and all they are prescribing me are pain killers (but I can’t even take them because ½ the time they don’t work and the other ½ the time they make me nauseous)
The pain then started radiating elsewhere and would never go away. Before it was just when I breathed and only a few hours a day. Now it’s right when I wake up, randomly it will just hurt for no reason. It is in my chest and when I breath it feels like my lung is too big and is being pressed against my rib cage. It will radiate up around my shoulder, into my back, up my neck, in my armpit. I have been seeing a chiropractor for physical therapy because I have scoliosis and he thinks that might have something to do with it. I have been going to physical therapy/alignment 4x a week for 2 months and there is no improvement. I really don’t know what to do anymore. My doctors won’t call me back, I’m emotionally, physically, and financially stressed beyond believe. And believe me, I am not some hypochondriac. I don’t complain about insignificant things. There is something wrong and no one seems to think I’m of any importance because I don’t have cancer anymore and I should be happy with that. They make me feel like I just have a wasted body and there’s no hope of having a healthy existence anymore. I just turned 20 a couple days ago and I can’t imagine going through the rest of my life in constant pain. Please can someone just tell me ANYTHING and not ignore me anymore!?!?