Discussions By Condition: I cannot get a diagnosis.

Please help nowhere else to go.......

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: fancyface451
  • January 26, 2010
  • 09:24 AM

Well my story starts back on September 24, 2007. I have always been over weight since I was 4 or 5 years old. After many many years of battling my weight and many hours of research I decided to go ahead and have gastric bypass surgery. That is what the date of September 24, 2007 is all about. It is suppose to be my new birthday a start to a new life of living without being over weight right.... WRONG!!!
On September 24, 2007 I went to the hospital as I was asked to 2 hours before my surgery. I asked my husband to make sure he stuck around to talk to the doctor after my surgery was done as I wanted to know how everything went. My husband was told that my surgery would be around 2 1/2 hours. After 3 1/2 hours my husband started to get worried and kept asking the nurse what was going on why the doctor had not come out to speak with him as of yet. She said maybe he had but missed him she would check. The nurse didn't come back so my husband worried went back to ask her around 30 mins later what was going on. She said that they were still in the OR with me and the doctor would be out as soon as he could to speak with him. Well my surgery lasted for almost 6 hours because after they did the surgery and were taking me out of the OR they had to rush me right back in and put me back on the table and then open me up from my breast bone down to almost my belly button. There had been severe complications and they had to open me up this time to try and repair them. When the doctor spoke to my husband he told him that I started to crash so they had to open me up as I had suffered a leak that had to be fixed right away or it could be fatal. My husband informed me later in recovery that they had to open me but everything was fine now. I don't remember anything till later that night when I was up in my room and an elderly lady in the room with me was rubbing my back buzzing for the nurses to come help me. They came in and told me to use the pain pump that is what it was for and to get some rest. I again don't remember anything until my husband said the date was September 28 and the only thing I remember is being asked for a phone number to reach my husband. Again I don't remember anything after that till it was about 3 weeks later I woke up in the CCU. My husband told me I had spent the last 2 1/2 weeks in the ICU as they rushed me back into surgery on the 28 as I had become septic and then my lungs colasped and so on. I was on a vent at this time until I ended up pulling it out because the nurse I had was not watching me and keeping me sadated. Anyways, to shorten this story I have had to have 16 surgeries, scopes, repairs etc because of all of the problems I have been having. I have not yet been able to eat solid food because I get in such pain that I double over on the floor crying and vomitting because the food will just not go past my stomach or as they would say my new pouch. I have had my gallbladder removed as they thought that was the problem but it has still continued. I use to have strictures which was also repaired. But still I can not eat solid foods. I can not even eat mash potatos. It has to be soups, pudding, jello etc. I have had several scans, mri's x-rays, barrium swallows, and follow throughs etc done but they said oh the liquid goes through just fine.... I keep telling them liquid is fine I get a little crampy but not like when I go a little thicker for example like pudding it is harder, mash potatos even harder and so on. Meats forget it don't even think about asking me to try that. The doctors say that I have three bowel blockages well not blockages but I have three areas where the scar tissue is engolfing the bowel and I am just going to have to live on pain killers and liquids for the rest of my life.
I can't do that I just turned 34 years of age and I have 3 wonderful children that I have not been able to be a mother to them for the past 28 months. I did this surgery to be a better, healthier me for myself, my husband and my children instead I am worse now then I was when I as 330 lbs. I can't keep living like this. My lower bowel (colon) is empty but the upper bowel is backed up because of the scar tissue in the three places. Sometimes I even throw up and this is gross but there has been times where I have thrown up my stool. I have been trying to find a doctor that would be willing to go in and remove the scar tissue every last peck of it. But so far I have had no luck. I was told that if it is all removed every bit of it then minimal scar tissue will grow back. But my gastric bypass surgeron does not agree with that. He has gone in once and pulled it down but never removed it and within 48 hours I was back to the way I have been. He says you can't remove scar tissue. So I don't know what to do I am at my wits end and tired of living with constant pain day in and day out. I need some kind of help and if any of you have any ideas or know of someone that would love the challange of finding and fixing this problem please let me know..... I have nowhere else to go.... and I am longing to find the help I need.....

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