Discussions By Condition: I cannot get a diagnosis.

Please Help! Nobody Knows What I Have...

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: jusbeingmyself
  • February 15, 2008
  • 07:30 PM

Well, let me start by introducing myself. My name is Vanessa and i am 23 years old.

Everything started many years ago---i used to get these pains, that would start off as feeling as mild heartburn but on my right side..and the pain just gets stronger and stronger...to the point where i have felt like i was going to die at that exact moment! I used to take rides to the hospital and either leave because the pain would go away completely or i would stay and they would just tell me everything has come out negative. Well, that went on for years, I would have an episode every so often- maybe once every few months. When i was 18, they took out my gallbladder. Still, the pains would come back every few months...let me just explain the pain. Like, i said before, it starts off with a feeling of heartburn and slowly progresses into a sharp, stabbing feeling in my right side-abdomen area.

Ok, so, in around march or april of last year, I had a bad fever and started feeling my heart was beating very strange, it started to scare me to the point where my brother-in- law had to pick me up and take me to the dr. They immediately did an ekg which from what the dr said, was horrible and from what it looked like, my ekg came back looking like an old person who could possibly have a heart attack. He sent me to the hospital to check in. (I have also failed to mention that i had been having sever joint and bone pains--which i figured could have been arthritis--but the tests came out negative for arthritis.) Well, i was in the hospital for about a week, went through several tests and nobody knew what was wrong with me. The only thing they could tell me was that it seemed I had 'Pulmonary hypertension in the right side of my heart' BUT they didnt know why--they said the only way you can get that is by having something else which would cause that. And that other thing would have to be treated in order for the hypertension to be treated. :mad:
So, i was released from the hospital and sent home but had to see the Dr. shortly after. My dr..being the nice fellow that he is...said he didnt believe i had the pulmonary hypertension and said it must be stress! so, he gave me a prescription for stress...:(. Next thing I know, they are reviewing my tests and notice that my liver enzymes were very high...
So, now i must go to the Gastroenterologist! yay. :confused:. He tests me on everything and non of his tests come back with an answer--so, he orders a liver biopsy. I go to my liver biopsy, and afterwards, those pains in which i described above came back!! but worse than ever! they injected me with pain killers and didnt know what was wrong with me--nobody had ever seen anybody go through so much pain after a biopsy. Well, after the mri and cat scans...they sent me home! still not knowing what was wrong except that there was a dark spot on my liver which they assume was a bruised liver due to the biopsy which they said would be fine..

Well, about a week ago, that really bad pain came back...i wanted to die...when the first episode came, i drank some water and it felt like the pain went away for a second but quickly came back-so badly this time that i threw up! right after i threw up, i felt better--i layed down and was fine for about 2 minutes and the pain came back!! and knowing that the pain went away by throwing up, i stuck my finger in my throat and continuously kept on making myself throw up even after i was sitting in the emergency room waiting for my blood results...and the only thing the doctor gave me, was gas medication! Well, i was so angry that i just left, figuring that nobody has found anything at this point, why would they find something now. I need help, i am so scared that this pain is going to come back again and again and i truly want to live to see my children grow.

To sum everything up: i have palpitations, liver pains, high liver enzymes-oh and btw, the biopsy came back negative with an inflammed liver...please if anybody has an idea...i need help! any questions, just ask:)

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7 Replies:

  • I'd say Hemochromatosis, but your way to young.Get your iron levels checked.http://www.mayoclinic.com/health/hemochromatosis/DS00455/DSECTION=2
    TerryG 120 Replies
    • February 17, 2008
    • 00:18 PM
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  • I think you need to attack this problem differently. I would begin a quest for alternative therapies like your life depends on it.. Check your diet--go organic and healthy or macrobiotic..this is amazing:http://healingtools.tripod.com/thn10.htmlhttp://www.herbdoc.com/warning.asp then there's acupuncture and homeopathy to help you along...good luck..
    Monsterlove 2921 Replies
    • February 17, 2008
    • 08:18 PM
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  • wow blaze! i just checked out the canlyme.com and i have 27 of those symptoms. now im definetly going to get myself checked. thanks so much
    jusbeingmyself 3 Replies
    • February 18, 2008
    • 04:44 PM
    • 0
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  • Have you ben tested for helicobactor pylori? If not i would ask to be tested its just a simple breath test. Hope everything gets sorted.
    Anonymous 42789 Replies
    • February 18, 2008
    • 07:01 PM
    • 0
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  • Just a few Q's:What liver enzyme tests were done? Do you have your values (include the normal range)? Did they ever re-check the EKG? Did the original abnormalities go away? Did they do an echo at all? If so, what did that say?Was the liver biopsy completely normal, or did they see inflammation? Did they check for things like Wilson's disease and hepatitis?Did they ever do X-Rays or other studies on your joints? Which joints hurt the most? Sorry you are going through this.
    Anonymous 42789 Replies
    • February 19, 2008
    • 00:49 AM
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  • Just a few Q's: What liver enzyme tests were done? Do you have your values (include the normal range)? Did they ever re-check the EKG? Did the original abnormalities go away? Did they do an echo at all? If so, what did that say?Was the liver biopsy completely normal, or did they see inflammation? Did they check for things like Wilson's disease and hepatitis?Did they ever do X-Rays or other studies on your joints? Which joints hurt the most? Sorry you are going through this. all liver tests were done...the biopsy came back with an inflmmed liver but no specified reason...they DID do echo and many ekgs afterwards. the echo came back with pulmonary hypertension because it looked like the valve connected to my lung from my heart was working harder that normal...yes, they tested for hepatitis and it came back negative. and yes, they did saunograms of my legs and xrays of my back and arms and nothing came back on those either....at the time, it was mostly my shoulders and lower back that hurt the most...also, my legs gurt quite a bit too. do these answers help??
    jusbeingmyself 3 Replies
    • February 19, 2008
    • 05:08 PM
    • 0
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  • Was it just the valve on the echo that was abnormal, or was your right ventricle enlarged, too? Also, did the pathology report ever mention anything like congestion (red blood cells) or "nutmeg liver" on your liver biopsy, or was it true inflammation (with "leukocytes", "lymphocytes", and/or "neutrophils")?It almost sounds like you need a second cardiology opinion, but I'm not sure.If the liver was congested (full of red blood cells), that could be consistent with the pulmonary hypertension, since blood can flow back to the liver from the right side of the heart and leave it full of blood.I don't know what this could be, but I'm pretty sure it's not stress! Please don't let them feed you that nonsense. I mean, you might be stressed because you're sick, but I don't think you're sick because you're stressed. I'd try another opinion, perhaps an internist or cardiologist at a teaching hospital. Sorry you are going through this!
    Anonymous 42789 Replies
    • February 20, 2008
    • 02:39 AM
    • 0
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