Discussions By Condition: I cannot get a diagnosis.

please help no one can tell me whats wrong with me!!!

Posted In: I cannot get a diagnosis. 43 Replies
  • Posted By: jhopkins
  • June 29, 2008
  • 08:49 AM

hi can some one please help im 28 year old male with the following symptoms.

red rash around eyes that looks like whelps when i get in the sun.

extreme fatigue.

pain in both knees both shoulders and feet and left elbow.

slight pain when i take a deep breath.

cant sleep. or crash for 12 hour and still feel bad.

some times very rapid heart beat 120 to 130 beats.

sometimes blood preasure shoots to 155/120.

general stiffness all over.

the only constant is achy joints , rash and fatigue evey thing seems to come and go somtimes last a week or only a day or too.
all xrays mri negative. had a low positive ana 40 i believe.but was told nothing to worry about i dont have insurance and am paying out of pockett so if someone could give a clue to whats going on id appericiate it. allthe doctors are looking at me like im crazy. thanks

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43 Replies:

  • Have you been checked for Lyme Disease? A lot of your symptoms seem to fit and, if you HAVE been checked, get checked again. Lyme's is REALLY hard to diagnose because the test doesn't check everything (that have to order different ones) and you can get a false negative.
    Tired in NJ 6 Replies Flag this Response
  • no i havent the only thing the doctors have done was an ANA LOW POSITIVE. MRI NEGATIVE. 10 SETS OF XRAYS NEGATIVE. KIDNEY FUNCTION TEST NEGATIVE. other than that they just tell me they cant find anything wrong with me. thanks for your reply.
    jhopkins 24 Replies Flag this Response
  • my guess is that you have fibromyalgia as part of another conditon. i suggest seeing someone who knows how to test for fibro (using the fibro tender points, most doctors dont know how to diagnose this. You may need to see a specialist).. and then take things from there (they'd know of over lapping conditions).
    taniaaust1 2267 Replies Flag this Response
  • my doctor thought that but dismised it becuase my muscules dont hurt. also dosnt think its lyme either.thanks for your reply.
    jhopkins 24 Replies Flag this Response
  • Lupus?Spondylarthopathies (Behcet's disease, Reiter's syndrome)?
    aquila 1263 Replies Flag this Response
  • one doctor thought lupus but primary dismised it. ill look into the others thanks.
    jhopkins 24 Replies Flag this Response
  • i just looked up the last two sujested and other than sore joints it dosnt sound like what i have. they both have skin lesions. mine skin rash is just red and lays almost flat then when im in the sun it bumps up like acne or a bug bite or something it getts really red and hurts dosnt itch no scabs or sores dermotalogist thought lupus . primary said no im a man. sent to a orthopedic specialist for joints said nothing wrong with me.
    jhopkins 24 Replies Flag this Response
  • What medications are you currently taking? DOM
    acuann 3080 Replies Flag this Response
  • lopressor 25mg 2 daily, naproxen 500mg 3 daily, vicodin when needed, prednisone 2 daily.
    jhopkins 24 Replies Flag this Response
  • Possible side effects of Naproxen :All medicines may cause side effects, but many people have no, or minor, side effects. Check with your doctor if any of these most COMMON side effects persist or become bothersome: Constipation; diarrhea; dizziness; drowsiness; gas; headache; heartburn; nausea; stomach upset; stuffy nose.Seek medical attention right away if any of these SEVERE side effects occur: Severe allergic reactions (rash; hives; itching; trouble breathing; tightness in the chest; swelling of the mouth, face, lips, or tongue); bloody or black, tarry stools; change in the amount of urine produced; chest pain; confusion; dark urine; depression; fainting; fast or irregular heartbeat; fever, chills, or persistent sore throat; mental or mood changes; numbness of an arm or leg; one-sided weakness; red, swollen, blistered, or peeling skin; ringing in the ears; seizures; severe headache or dizziness; severe or persistent stomach pain or nausea; severe vomiting; shortness of breath; sudden or unexplained weight gain; swelling of hands, legs, or feet; unusual bruising or bleeding; unusual joint or muscle pain; unusual tiredness or weakness; vision or speech changes; vomit that looks like coffee grounds; yellowing of the skin or eyes. Prednisone and nsaids together also can cause an increase in gastric bleeding and ulcers. I assume your pain started BEFORE taking the naproxen? Which of your symptoms started first? Why are you on prednisone and how long have you been taking this med? DOM
    acuann 3080 Replies Flag this Response
  • sore knees then high blood preasure and fast heart rate then rash on my face then shoulder pain then foot pain then ankel pain then left elbow. im on prednisone becuase i get a bad reaction to the histamines that build up in my body after taking the vicodin and anti inflamitory i was on voltaren when i had a reaction but they switched me to naproxen but i still react. oh my newest symptom is a pain in chest when taking a deep breath. it dosnt hurt when breathing normally just deep breaths sighs yawns ect. pain is made better with anti inflamitory. thanks for your imput.
    jhopkins 24 Replies Flag this Response
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  • sorry been on prednisone for a month. same as naproxen. thats when they took me off voltaren.
    jhopkins 24 Replies Flag this Response
  • dont know if this is related but the last two days if i hold somthing in my left hand my hand and arm shakes.
    jhopkins 24 Replies Flag this Response
  • That seems really upsetting. But, I am still thinking lyme's. Give me a day or two to look around. I am not a doctor in the slightest, though, just someone trying to help you find answers. Have you seen any other specialty doctors? For example, someone could be short of breath, coughing and weezing. They think, hey I'll go to my doctor or a pulmonologist. Their first thought isn't it could be my heart and I should see a cardiologist. But, my mom is now seeing one for a weak heart wall muscle.She's doing great, now that she is seeing the cardiologist. But it took her 3 months to get the referral because everyone kept saying she had a bad chest cold. My point is, maybe some other part of the body is creating all the other symptoms (i.e. look for the zebra not the horse theory). Just a thought. I'll be back if I find anything new. Good luck! I'll keep you in my thoughts.
    Tired in NJ 6 Replies Flag this Response
  • Check out Thoracic Outlet Syndrome. It could also be a bunch of rarer auto-immune disorders. I'd recommend a Rheumatologist if you can see one and a Cardiologist. Together they should be able to figure you out.Tremors are probably Neurological.
    dizzy lizzie 192 Replies Flag this Response
  • Sorry, wrong thread.
    Tired in NJ 6 Replies Flag this Response
  • i was hospitalized 3 years ago for chest pains with rapid heart rate and high blood preasure. they kept me for 3 days and ran probably every test on my heart and said nothing wrong. ekg,ultrasound,nueclear stress test,and anthoter machine but dont remeber what it was. all they said was my white blood cell count was high. and put me on antibotics and blood preasure meds. then 2 months ago my new doc told me when going back over the test results from 3 years ago that my kidney function test was off alittle retested now normal. thanks for your help im a father of 3 and i hurt so bad some days i cant play with my kids or so wore out i cant get off the couch others im fine just achy and stiff.
    jhopkins 24 Replies Flag this Response
  • sore knees then high blood preasure and fast heart rate then rash on my face then shoulder pain then foot pain then ankel pain then left elbow. im on prednisone becuase i get a bad reaction to the histamines that build up in my body after taking the vicodin and anti inflamitory i was on voltaren when i had a reaction but they switched me to naproxen but i still react. oh my newest symptom is a pain in chest when taking a deep breath. it dosnt hurt when breathing normally just deep breaths sighs yawns ect. pain is made better with anti inflamitory. thanks for your imput. Are you saying that your body was attacking the medications or are you saying there was an allergic rection. Not sure why you would be put on naproxen if you had an allergic reaction (possibly) to Voltaren. They could try celebrex though I am not sure that will help you as the only drug for the symptoms. Prednisone causes some of these symptoms as well. When are you going to a Rheumatologist? Even if you have a low positive ANA you still have many symptoms of a Rheumalogical problem. Why not see a specialist? p.s.= I know your fustrated.. we've all been there, but I can feel your fustration thru the words your typing. No matter what the issue is, stress will make it SO MUCH WORSE. Try to stay calm.
    deedee35 38 Replies Flag this Response
  • i was put on naproxen becuase my doctor thought thats a combo of voltaren and vicodon led me to a reaction to histamine.the rash has been on my face for 2 years normally flat just alittle red but when im in the sun it turns bright red and big whelps every year it spreads farther on my face around the out side of my eyes. the only symptom that is really new is the left are twitches. thanks you all for your help. i see the Rheumatologist in a month there isnt many around me so they are hard to get into.
    jhopkins 24 Replies Flag this Response
  • I really do know how you feel. I've had my own mysery this year. I hope the Rheumatologist can help you. If not, please post again if not for answers for moral support.
    dizzy lizzie 192 Replies Flag this Response
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