Discussions By Condition: I cannot get a diagnosis.

Please help, need diagnosis

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: Anonymous
  • September 8, 2010
  • 02:36 PM

I am a 19 year old male, overweight, drinker, social smoker, and for the last 14 months things haven't been good. Started off with feeling like I couldn't get enough air, and I was having slight pains in my neck, back and jaw, so I went to A&E, they did an ECG and told me I was fine it's just anxiety. Since then the chest pain and jaw pain has got worse but comes and goes, and my symptoms are the following:

Consistently dark urine

Slight fatigue - muscles tired but can still exercise

GERD symptoms - chest, jaw, neck pain, sore throat and hoarse in the morning

Weakness in arms and legs when i wake up

Slight co-ordination problems

Tingling/Burning sensations in feet, legs, scalp, arms, fingers and toes

Slight memory problems, difficulty when typing/spelling at times

Keep saying words like "medification"?

Feel like my eye is twitching, but it's not visible in a mirror

Pounding headaches

Shooting pains on left side of my head

Shooting pains down my back

Tenderness in my lower back

Abdominal pain around belly button

Solid stomach, despite not having much muscle mass

Constipation

Light stool more often than not

Not feeling myself, feels like I am on "auto-pilot"

Still feel like I can't get enough air.


My doctor is insisting that it is a case of anxiety and GERD and refuses to accept any other suggestions. He shouted at me in his office the other day when i asked if it could be MS and told me I was wasting his time. I honestly don't know what to do or where to go now and I was wondering if you could possibly help?

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15 Replies:

  • Sorry forgot to mention had 2 full blood tests, several ECG's and Chest X-Ray and all came back normal, Peak Flow was well above average, BP was ok but slightly elevated. I also am very aware of my pulses and have visible pulses in my neck, chest and abdomen. I sometimes get jaw pain when i exercise, but i think that might be due to overexertion as I am not exactly an olympic athlete :P. I also get chronic pains in my ears sometimes, like there is a lot of pressure in there.
    Anonymous 42789 Replies
    • September 8, 2010
    • 02:43 PM
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  • *bump* any ideas?
    Anonymous 42789 Replies
    • September 10, 2010
    • 10:50 AM
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  • dark urine.. you probably arent drinking enough.. does it smell strong too.. fatigue and some other symptoms eg feeling like you are not getting enough air, may just be caused by being overweight. with being overweight.. sore throat and being hoarse in the morning could be being caused by snoring. So try to find out if you snore. If you are a snorer.. you may also then be waking up tired. Tingling/Burning sensations in feet, legs, scalp, arms, fingers and toesSlight memory problems, difficulty when typing/spelling at timesKeep saying words like "medification"?Feel like my eye is twitching, but it's not visible in a mirror" Those symptoms and some of your other ones eg the tiredness etc.. may be due to a B12 deficiency. If im remembering correctly those who drink, actually use up more B12. B12 deficiency may end up causing nerve damage, tingling and burning sensations in hands and feet are the first signs as the deficiency worsens it affects arms and legs and one starts getting many other issues. Uncorrected it can lead to permanent damage. (note that blood tests may not always show up deficiency of this as it is possible not to be deficient in the blood but deficient in the body tissues). I strongly suggest you start supplementing your B12 or even have a few B12 injections to see if it helps some of your symptoms. pale stools may indicate a liver issue (once again may be due to drinking). From your symptoms it sounds like you need to stop that drinking or you may end up in HUGE health trouble best luck
    taniaaust1 2267 Replies
    • September 11, 2010
    • 05:15 PM
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  • Thank you, I went to Holland and Barrett today and bought some B12 complex supplements and I will report back in a few weeks and see how everything goes. I think my stools are more of an eating issue because they have been fine up until I had family over the other day and I put on a buffet for them, scoffed my face good and proper (that's the diet I was on out the window! lol) and now for the past few days i've had pale stools again. The thing that confuses my doctor is that my liver function and kidney function were perfect, like slap bang where they should be, as were my other results. I am having a difficult time with him just now as he says there is no point testing for B12 as my blood count was normal, but I will take what you say back to him and see if he will test for it now.Thank you SO much for your help, I have been worrying myself stupid for the past few weeks thinking I had MS or a brain tumour or something terrible like that so it's taken a huge weight off my shoulders reading your post. Thanks again xx
    Anonymous 42789 Replies
    • September 14, 2010
    • 01:12 AM
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  • Thank you very much for your reply. The breathing issue came on after a pretty heavy night of drinking, and I do now accept that I do have GERD so the chest pain etc can be atributed to that, but that B12 deficiency does make perfect sense. I will talk to my doctor about the liver thing because my liver function came back perfectly normal on a blood test so i would have to see if he could have a look at it a bit more closely. Like I said because he can't find anything he says that every single one of my symptoms is down to anxiety, but i just don't buy it! Thanks again!!
    Anonymous 42789 Replies
    • September 14, 2010
    • 09:47 AM
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  • I would suggest investigating both TMJ and cervical neck problems, both of which can affect the other and cause many of the symptoms you mention and is not something that would show up on a blood test. Also look into sleep apnea. TMJ is usually overlooked by doctors since it falls more into the dental arena and you need a dentist/oral surgeon that specializes in TMJ problems to best be checked out for that. There is quite a bit of information about all three online so doing some research ahead of time might help.
    terrij123 10 Replies
    • September 14, 2010
    • 11:51 AM
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  • I did have a massive car accident a few years ago and show no symptoms at the time but the physio did warn me that this could happen, I hadn't even considered that thank you so much!
    Anonymous 42789 Replies
    • September 14, 2010
    • 11:54 AM
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  • I did have a massive car accident a few years ago and show no symptoms at the time but the physio did warn me that this could happen, I hadn't even considered that thank you so much! I was going to ask if you'd had an injury or even the slightest impact to the jaw or neck. In light of your accident, I would definitely have BOTH of them checked out fully because one almost always affects the other over time if not right away. The speech issue is not written about as much as being a symptom of TMJ but it certainly does happen. I've been down that road, and still on it, and it can cause a nightmare of health problems if not discovered and treated early. Let me know how it goes.
    terrij123 10 Replies
    • September 14, 2010
    • 00:17 PM
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  • thanks so much everyone, i already feel better knowing that people are listening instead of passing off my symptoms
    Anonymous 42789 Replies
    • September 14, 2010
    • 00:31 PM
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  • Funny, I really did just happen on this thread page this morning doing a web search on another problem not even related to this so will be surprised in a good way if it turns out to be helpful! I've never posted here but had to respond when I read your symptoms and situation. I know exactly what you mean. Doctors seem to do more harm than good to patients many times emotionally speaking, making you feel either crazy or like you can't voice your symptoms without be treated rudely. Almost everyone I know has the same frustration with doctors writing off their symptoms often to have it turn into something more serious later on. The "auto-pilot" feeling...are you describing a feeling of distraction or disconnect? And does your head feel a little tight over the skull, like in a vice, and/or any heaviness at the back of the head?
    terrij123 10 Replies
    • September 14, 2010
    • 02:06 PM
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  • the auto pilot feeling is my weirdest symptom by far, like i can see that i'm making the movement, but i don't feel like it's me doing it it's REALLY hard to describe, but yeh disconnected is about right. I do get tingling in my scalp sometimes, and i've had occasional tightness, but i do think i have a bit of anxiety caused by worrying so much about whatever this is, and this feeling apparently is a common side effect of anxiety. The problem I have with doctors is they seem to think anxiety is causing the problem, not the other way around!
    Anonymous 42789 Replies
    • September 14, 2010
    • 02:30 PM
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  • Thank you very much for your reply. The breathing issue came on after a pretty heavy night of drinking, and I do now accept that I do have GERD so the chest pain etc can be atributed to that, but that B12 deficiency does make perfect sense. I will talk to my doctor about the liver thing because my liver function came back perfectly normal on a blood test so i would have to see if he could have a look at it a bit more closely. Like I said because he can't find anything he says that every single one of my symptoms is down to anxiety, but i just don't buy it! Thanks again!! If your liver function test came back normal.. its probably fine. (note that blood tests may not always show up deficiency of this as it is possible not to be deficient in the blood but deficient in the body tissues). dont worry too much if you wont test as as i said the blood tests for B12 deficiencies dont always show them up anyway. Just try the vitamins and see how you go A number of problems can make it difficult for your body to absorb enough vitamin B12:Chronic alcoholismCrohn's disease, celiac disease, infection with the fish tapeworm, or other problems that make it difficult for your body to digest foodsPernicious anemia, which occurs when your body destroys cells that make intrinsic factor. Intrinsic factor is needed to absorb vitamin B12.Surgeries that remove certain parts of your stomach or small intestine, such as some weight-loss surgeriesTaking antacids and other heartburn medicines for a long period of timeSymptoms People with mild anemia may have no symptoms, or symptoms may be very mild. More typical symptoms of vitamin B12 deficiency anemia include:Diarrhea or constipationFatigue, lack of energy, or light-headedness when standing up or with exertionLoss of appetitePale skinProblems concentratingShortness of breath, mostly during exerciseSwollen, red tongue or bleeding gumsSymptoms from nerve damage caused by vitamin B12 deficiency that has been present for a longer time include:Confusion or change in mental status (dementia) in severe casesDepressionLoss of balanceNumbness and tingling of hands and feetthe above quote is from http://www.nlm.nih.gov/medlineplus/ency/article/000574.htm so lay off that alcohol, its important if you have B12 deficiency. Your doctor should of tested you for this if he knew you were drinking.. as it really fits your symptoms!!umm on second thought.. maybe you should insist the doctor test you as B12 can be serious and cause permanent damage if deficiency is severe. You may need B12 injections.
    taniaaust1 2267 Replies
    • September 14, 2010
    • 03:22 PM
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  • Yeah, head symptoms are the absolute worst to describe! Only thing I know for sure is that any pain or discomfort happening in your head or around your face is going to affect thought, perception, vision, balance, any sort of brain function really, because tension/pressure there is going to put some unusual pressure on the brain. I thought I had a brain tumor too. I know what you're talking about I think...kinda like an out of body experience in an way, like there is a separateness of some sort, like your body is doing what your brain tells it but you aren't as completely a part of it as usual? For me, at first I suddenly felt weird/spacey out of nowhere and it never went way, and the only way I could describe it for a while was that it felt like a "floating" sensation. Reading became a nightmare for me. The more I paid attention to it, the more I realized it was more like a constant low vibration but luckily I had a good doctor (rare thing) at the time who realized something muscular was going on and explained the muscles of the head and neck to me. I knew I had a whiplash injury at the time and we thought it was related to that initially. I learned to pinpoint it better by being very still for about 30 minutes lying down and then paying attention to how differently my head, including ear noise, felt when I started moving around and doing things reaching, cleaning or anything that involved much upper body movement. I had mild symptoms for a few years before then that I didn't relate until I knew what was going on later, like the speech thing, where some bizarre variation of the word my brain meant to say would come out and sometimes something almost unintelligible. It was rare and random but I was acutely aware of it. I sometimes wish doctors had never heard the word anxiety. Not to say it's not devastating for those that have that disorder because it is, it's just that doctors tend to want to stop there and not look for any physical cause. And you are right, it is impossible NOT to be anxious with that sort of thing going on, not to mention it is partly the doctor's attitude causing it! If you are given something for anxiety and it relieves the head symptoms, don't let your doctor stop there, because it could be that it is working by simply relieving the muscle stress caused by something else. If it does happen that you have something going on in with the TMJ/neck, just typical stress from day to day activity will cause all sorts of grief in the head from related muscle tension/spasm . I never realized how much something as simple as using a keyboard or driving a car required some tensing of the jaw muscles. It's a normal reflex and is necessary to carry out certain tasks but it is very complex.I came across some very informative sites not long ago that might be helpful to you in diagnosing your problem. I will try to find them again later today and post them.
    terrij123 10 Replies
    • September 14, 2010
    • 04:15 PM
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  • Thank you very much you have been ever so kind, the health system in the UK is awful!
    Anonymous 42789 Replies
    • September 14, 2010
    • 04:19 PM
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  • Tip I forgot to mention. Have you tried Ibuprofen for the pain? I ask because if it relieves any of the pain, tingling and even improves the coordination issues somewhat that will let you know at least part of the source of those problems is inflammation of some sort...joint, bone, spine. I don't know how it is sold in the UK, but usually off the shelf tablets here in the US are in 200MG form with dosage max of two at a time, but prescription strenth is actually up to 800MG 3X/day. I don't recommend the daily maximum prescription strength without a doctor's recommendation but you might try 600-800MG (3-4 tablets) one or two times and see if there is any improvement. If there is, that will give you some idea of the origin.
    terrij123 10 Replies
    • September 14, 2010
    • 05:40 PM
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