Discussions By Condition: I cannot get a diagnosis.

Please help my husband!

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Smileyblue
  • November 27, 2009
  • 06:18 AM

My husband woke up one day with a black cloud in the lower corner of his left eye. Saw an optomitrist who said the eye was healthy from what she could see but referred us to a Opthamologist as he lost 85% vision in 1 week. He did tons of tests, retinas were normal but optic nerve was swollen in left eye. Hubby also has symptoms of peripheral neuropathy. Opthomologist referred us to a Neurologist. Neurologist was perplexed as standard tests and MRI's came back normal. He ordered MRA's of Brain and Spinal Column (which we never got due to the cost) and put him on prednisone 80mg for 7 weeks for the optic nerve swelling. No one did a blood sugar test. Hubby got worse, had no energy, and felt sleepy. He was hospitalised after my PCP did a Blood sugar test, Hubby now had Hypergycemia caused by the prednisone tipping an undiagnosed boarder line diabetic into Type 1 Diabetes. He came very close to dying. The diabetes was controlled at first by Insulin injections and now Metformen tablets. There are also balance problems, speech issues where he can't make the right words come out and what he describes as floating when he walks.The sharp stabbing electrical type pain in his legs keeps him awake all night causing really bad insomnia. He already has to sleep on a CPAP machine due to having Sleep Apnea.

From what we have researched it looks like the numbness in hands and feet along with the burning sensation and stabbing electrical pains are probably linked to the diabetes. However the other stuff is not. Is there anything that would cause all of these symptoms or is this diabetes plus something else? Please help. We have no insurance, have spent 10 grand and got no answers and now can't afford anymore tests. Yesterday we received news that he is now legally blind in the left eye. His right eye is now going blind the same way...

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7 Replies:

  • Get him also checked for B12 Deficiency. Some of the symptoms mentioned matches with it.
    b12_UnDiagnosed 110 Replies
    • November 27, 2009
    • 08:28 AM
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  • First of all I hope that God will help your husband and bless him...All what you said is matching strongly with an uncontrolled late discovered type II Diabetes. or may be he had information about his case and ignored it. but commonly the Type II diabetes presents with one of it's late complications. The most important line of treatment is controlling Diabetes and blood sugar level accurately.As you said that you made MRI on brain and spinal cord and they were normal and this excluded Multiple Sclerosis (Thank God)About his right eye has to go for accurate follow up for diabetes and eye in one of the best centers you can afford.God bless you both isa....
    kimo123_med 15 Replies
    • November 27, 2009
    • 11:28 PM
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  • First of all I hope that God will help your husband and bless him...All what you said is matching strongly with an uncontrolled late discovered type II Diabetes. or may be he had information about his case and ignored it. but commonly the Type II diabetes presents with one of it's late complications. The most important line of treatment is controlling Diabetes and blood sugar level accurately.As you said that you made MRI on brain and spinal cord and they were normal and this excluded Multiple Sclerosis (Thank God)About his right eye has to go for accurate follow up for diabetes and eye in one of the best centers you can afford.God bless you both isa....Thanks for your help guys.I am sorry, my mistake, I thought that I mentioned that he was already being treated for type 2 Diabetes. :o He has been seeing and Endocrinologist for several months and the blood sugar is completely under control. He was on Insulin injections for a while but now he is on Metforman tablets. Blood sugar perfect now. The problem is that the floating, balance issues, sharp jabbing electrical pain, aggressive fast onset blindness in one eye at a time, speech problems and co-ordination issues are not related to the diabetes.:confused:We are supposed to see a Neurologist on Wednesday this week but I am not expecting too much action straight away as I am sure there will be a barrage of tests. He has already had one MRI which came back negative for any kind of tumors..so that is encouraging however not so much when you want a diagnosis. He still has to have the MRA of Brain and Neck/ Spinal column as MS has not been ruled out just yet.Whatever it is, it is fast moving. His right eye is getting worse even over this weekend. Can't even go back on prednisone for the optic nerve swelling like he did with the Left eye, as the prednisone increases blood sugar. I just hope someone works out what is going on before he goes completely blind in his right eye.
    Smileyblue 2 Replies
    • November 29, 2009
    • 10:34 PM
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  • First of all may God be with you and him and everything will be OK God willing...About the Multiple sclerosis I have to tell you that the most diagnostic investigation for it is the MRI with Gad. as it shows patchy defects in the white matter of the brain but the MRA is not for the MS, they will be searching for something related to the blood supply of the cerebellum or any other part of the brain that may be damaged secondary to the atherosclerosis that is caused by DM......God bless you and keep intouch...
    kimo123_med 15 Replies
    • November 29, 2009
    • 11:32 PM
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  • We went to the neurologist today. She didn't seem in a hurry to do any MRA's. Instead they did a full physical exam with neurological tests and a blood test. She is referring him to a neurological opthomologist and also a doctor that is going to do a nerve test where they stick him with needles and put some sort of electrical current through the nerve to see where or if they are damaged.She also said that they are checking him for Leber's Syndrome. Everything I have read in neurology journals suggest that this is a genetic thing and that it usually occurs in children from birth or a young age. It also says that both parents have to have the gene and be carriers for the child to get the disease. The only other thing I have read that might make sense is that Leber's can be found in conjunction with MS in adults. Something called Harding's disease.I don't know, it seems to me, a layman of course, that if it was Leber's, wouldn't 1 of his other 6 siblings be displaying the same symptoms since it needs to come from both parents???We shall see if they pic up any genetic markers in the DNA..... Seems like they are just grabbing around in the dark at this point.
    Smileyblue 2 Replies
    • December 3, 2009
    • 05:17 AM
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  • Have you researched the symptoms of electrical sensitivity? - my gf has it. Though she doesn't have pains in her legs at night, but rather restless leg, she has a lot of his other symptoms. And her teeth stain grey/black - it remains unexplained. She believes it is iron accumulation. Research CCSVI, too, with regard to the iron accumulation.
    wbl4sur 24 Replies
    • December 3, 2009
    • 01:16 PM
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  • My husband woke up one day with a black cloud in the lower corner of his left eye. Saw an optomitrist who said the eye was healthy from what she could see but referred us to a Opthamologist as he lost 85% vision in 1 week. He did tons of tests, retinas were normal but optic nerve was swollen in left eye. Hubby also has symptoms of peripheral neuropathy. Opthomologist referred us to a Neurologist. Neurologist was perplexed as standard tests and MRI's came back normal. He ordered MRA's of Brain and Spinal Column (which we never got due to the cost) and put him on prednisone 80mg for 7 weeks for the optic nerve swelling. No one did a blood sugar test. Hubby got worse, had no energy, and felt sleepy. He was hospitalised after my PCP did a Blood sugar test, Hubby now had Hypergycemia caused by the prednisone tipping an undiagnosed boarder line diabetic into Type 1 Diabetes. He came very close to dying. The diabetes was controlled at first by Insulin injections and now Metformen tablets. There are also balance problems, speech issues where he can't make the right words come out and what he describes as floating when he walks.The sharp stabbing electrical type pain in his legs keeps him awake all night causing really bad insomnia. He already has to sleep on a CPAP machine due to having Sleep Apnea. From what we have researched it looks like the numbness in hands and feet along with the burning sensation and stabbing electrical pains are probably linked to the diabetes. However the other stuff is not. Is there anything that would cause all of these symptoms or is this diabetes plus something else? Please help. We have no insurance, have spent 10 grand and got no answers and now can't afford anymore tests. Yesterday we received news that he is now legally blind in the left eye. His right eye is now going blind the same way... Sounds like some of my MS symtoms i have noticed over last 20 years(i also lost vision in right eye).Try to get a sonogram(not as-$ a MRV) of his neck veins-WITHOUT MENTIONING - MS FIRST !! Neurologist may have prejudice from MS and CCSVI debate of last 2 years. Look up info about CCSVI & MS (CCSVI alliance.org).He may have "Iron Deposits" from CCSVI "Reflux". He may be "fortunate" to not be prone to MS also but CCSVI should be checked for and if found - Balloon Angioplasty could quickly relieve some symptoms and be an answer .
    Anonymous 42789 Replies
    • February 7, 2011
    • 07:44 AM
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