Discussions By Condition: I cannot get a diagnosis.

Please help, My doctors dont.

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: 1littleman
  • September 29, 2012
  • 03:26 AM

I am a 28 year old female about 114lbs, 5'2". I have been feeling terrible for the last several years. I have been to several doctors and have been told that I am perfectly healthy, one even suggested that it is in my head. My list of symptoms:
Fatigue (gotten worse over the last few months)
tension headaches
muscle aches
joint pain
eye twitch
diarrhea
constipation
ringing in the ear
insomnia
unintentional weight loss
extreme sugar cravings
forgetfullness
mood swings
blurry vision
cold hands/feet
elevated billirubin
abdominal pain
I have had blood work, mri scans, x-rays and so far everything has come back "great" except I feel terrible. My latest blood work with a new doc came back great, no anemia but my doc said my b12 was on the low side of normal at 184. He said it was nothing to be concerned about and wants me to come back in a few months for a follow up. I have had my gall bladder and appendix removed. I feel like they think I am making it all up and I just want to get back to my normal self so I can keep up with my kids. Any help would be appreciated!

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8 Replies:

  • I am a 28 year old female about 114lbs, 5'2". I have been feeling terrible for the last several years. I have been to several doctors and have been told that I am perfectly healthy, one even suggested that it is in my head. My list of symptoms:Have your tests included thyroid, adrenal, and glucose testing. If so, check the numbers (get copies and keep). Too often, people have thyroid problems and because the tests fall in "normal" range Dr.s ignore. Problems here: 1-"normal" is relative to the patient; 2-they may not be doing all the proper tests 3-levels can change in a day depending on what is causing your problem..so bad today, but ok by the time you reach Dr 4- The tests they do check the amount of thyroid hormones in your blood...not the amount of thryoid hormone that is being converted and USED at the cellular level. Except the billi- I have suffered the same symptoms for years as well. 1) Get used to being told its in your head. And Dr's who will stop there...write your last copay to them and move on. 2) Do some searching on thyroid problems, especially the autoimmune ones. Use multiple sources. If it applies (and it sounds like it will), use the info gained to launch your plan to wellness.3) Get a strong support system in place. You're probably gonna need it.4) Make sure you have a contingency plan to cover the kids if you dont feel well. The govt seems to love to try to take children from sick moms. Put numbers in speed dial so they know how to reach dad, granny, etc if they have to. Involve a trusted neighbor - they are closer and the kids can easily get to them if you pass out or something. Your Dr has probably already put you in the med rec db as potential mental. Which means you are very close to CPS radar. These steps will help get them out your face a lot quicker. Know your parenting rights also in the event you need to remind someone of them.5) Get a psych eval done. If you can, do it self pay. Dr's tend to diagnose based on potential to bill insurance long term. This will also help put you at ease so you can use your energy to address the real physical problem.6) Thyroid problems seem to be a growing "big business" for big pharma. 7) If you can, incorporate a full eval with a DO or Naturopath. Insurance usually doesnt cover,but after the initial testing expenses, they can often help guide you to diet, life style changes, that should help improve you. Most good ones will also check gut problems and allergies.8) Bottom line - the body was created to be self repairing. If it wont repair - then something is broken. That something can trigger a bunch of other somethings - and symptoms may not reflect the ROOT thing broken.9) Get a 5 subject binder - write down everything the Dr's say. With memory issues and kids - you're gonna need to go back to them.10 ) try to have someone with you at your Dr visits, they can also help catch what you miss and ask questions you forget11) Your B12 is off but nothing to worry about...Yeah..that directly impacts the brain/concentration. Re-train your brain. No one can advocate for you better than you can. Educate so you can do it effectively. Dr's today are paid to keep you coming back to them. even if it means ignoring warning when things are correctible - and then waiting for the kill when things become manageable but not correctable. My Dr told me outright - "I know something is wrong, but I am prohibited from treating you. There are certain ways we must treat certain illnesses even if we know it doesn't work and wastes valuable time" (per regulations from insurance, employers, FDA, various groups with ties to big pharma)Mental Health meds among others will create havoc in the body. Dr's and their codes of silence will not tell you. I am not a Dr, and am still working on my ROOT cause. After 10 years of bad meds, i got a lot of stuff to undo. Though I have self educated, and now play an active role in my care. It was my research that prevented me from losing my kids - and actually put the police and 1 govt worker on my side.
    btvgorda 1 Replies
    • October 5, 2012
    • 07:01 PM
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  • I am not a doctor but I would suggest you try taking 200 mg of magnesium citrate daily and see if that improves your sleep and muscle aches and energy level and feeling of well being. I felt the improvement in the first several days, especially in quality of sleep.Every cell needs magnesium to function properly and if you are deficient you can feel really lousy, have trouble sleeping, have achey muscles and joints, and become constipated. I have read that almost everyone is deficient.If you take too much magnesium it will give you diarrhea. A lot of people have reported that it makes them regular. Research it before you buy, read the reviews at vitaminshoppe and other sites, and always ask your doctor if you can take something like this before you do. I have read the magnesium citrate is the only form that helps and that it is more effective in liquid form or taken topically via a cream or gel or oil. I use a spray on oil. I will check back to see if this helps you.
    MsGoodie 1 Replies
    • October 11, 2012
    • 04:50 AM
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  • have you been tested for Celiac Disease? many of your symptoms match. https://www.celiac.org/index.php?option=com_content&view=article&id=6&Itemid=12 Hope you find relief!
    tacomabeal 2 Replies
    • October 11, 2012
    • 06:08 AM
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  • you have my empathy!!eventually you will find an answer.the symptoms you list could be one of about a 1000 illnesses.when you have exhausted those, all symptoms could possibly point to a psychologically based illness.i have it too. its called life... it sometimes just gets to be too much.one way to find out is to take drugs that help psychologically. if they help, and get you back to your kids, then at least you have some temporary or permanent relief.good luck.i am really just an empathetic lay person..
    Anonymous 42789 Replies
    • October 11, 2012
    • 10:54 AM
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  • I am sorry to hear about your issue. I have a lot of the same symptoms and sadly, no help for me yet either. I fortunately have a decent doctor now that listens...I know that they have levels of what is acceptable and what isn't with blood work but is there a way to figure out what is one the lower end of the scales? try getting a copy of your blood work and researching what is considered high and low. I had just thought of this for myself today as i have gallbladder and spleen issues yet my blood work is "normal". One of the things that I don't like about myself when I get sick is that I dont register fevers until it is way past the norm. I am thinking that it is also possible with my blood work and that is how I came up with this idea. Good luck and I hope that your issues are resolved sooner rather than later.
    Anonymous 42789 Replies
    • October 12, 2012
    • 06:44 PM
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  • You sound just like a case of late stage Lyme Disease. Most doctors don't know that 30-50% of Lyme patients will test false negative on standardized antibody tests. It is a controversial disease in which the patients lose. You could also have a coinfection, another tick borne infection such as Babesia or Bartonella.You need to find a LLMD, a Lyme Literate Medical Doctor as soon as possible. Infectious Doctors are least likely to diagnose you. Even if they do, they won't treat you properly. An LLMD will treat you until you are well. An LLMD will want to test you at IGeneX. They do more advanced testing than most other labs. I tested false negative two times before I tested positive at IgeneX. You can read more about it at ILADS.com. You can also ask a local Lyme support group for suggestions on doctors.
    Pearl66 6 Replies
    • October 15, 2012
    • 02:33 AM
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  • I hope my previous reply on Lyme Disease went through..I don't see it. I forgot to mention in that reply that Lyme can also infect the gallbladder, causing a lot of pain and reduced function. Many Lyme patients get their gallbladder taken out due to this, even as doctors can't figure out why. Look for the "Burrascano's symptom check list" to see how many symptoms you have.
    Pearl66 6 Replies
    • October 15, 2012
    • 02:39 AM
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  • Check for a protozoal infection or something they dont test for. Have you ever been nitten by insects, ticks, mosquitos, etc. Find an LLMD if you have. There are many labs youcan get your own tests done at.
    roosterwes 1 Replies
    • October 20, 2012
    • 07:50 PM
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