I have been in pain for 8 months - with no interruption - and with no diagnosis to explain what is causing it.
I have had a colonoscopy, a couple of MRIs, an MRA, a couple of CT scans, X-Rays, dozens of blood, urine and stool tests, and the other test where they insert a tube through your mouth (done while you are under) to see the inside of the stomach (forgot the name of it).
I have seen a number of doctors: internal medicine, gastroenterologists, urologistis, cardiologists, vascular disease, infectious disease - no clue from any of them.
About the pain: it is all concentrated on the left side. The focus is located on the left-front side, directly under my ribs: It is a nagging, colicky pain that makes me feel like I am poisoned; feeling of pressure and being bloated all over. The pain starts in the front but it goes around my back, goes down to the front all the way to my groin area, down to my leg, and all the way down to my foot/toes.
Other symptoms: I feel toxic, bloated, a lot of back pain and colic, diarrea, constipation, sensation of obstruction in my stomach, sensation of pressure. When I eat, I feel worse. That's not to say that I feel better when I do not eat. No urinary pain, no blood in the urine or stool.
First, I thought it was another kidney stone (more precisely, stone in the urethra - I have had surgery to remove stones in the urethra in the past). I also have had surgery to remove gallbladder stones. But the tests do not show any stones - besides, I have no blood in the urine, no fever. So, the doctors discard the possibility of stones completely.
Now I am thinking maybe it is my spleen or my pancreas. Only because of the location of the pain. But it could be some other organ behind the spleen and pancreas.
My hands and feet feel swollen and, of course, that hurts - like I am full of fluid. I wish I could convince a doctor to treat me for kidney stones even though there is no proof that is what is causing the pain. I am not in any treatment of any kind.
I have gone to the Emergency Room twice but they are at a loss so they send me home with no diagnosis and not medication.
I cannot understand why it is so difficult to figure out what can be causing this pain. After all, there are only a few possibilities given the location of the pain.
I feel very hopeless - and in constant pain. What can I do? Where can I go? Who can I see? Please help. I don't have any relatives or friends in this country and I feel totally alone with no hope to live a normal life again.
I thank you in advance for any advice you can give me. If you know a doctor in the Chicago area that is willing to take the time to solve my problem - despite the absence of positive test results - I would appreciate a referral. I am hoping to find someone who has the experience (gut feeling?) to base my treatment on clinical symptoms.
Again, thank you