Discussions By Condition: I cannot get a diagnosis.

Please help me-Too much pain for too long. Cannot go on like this.

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: raita29
  • October 26, 2007
  • 03:35 AM

I have been in pain for 8 months - with no interruption - and with no diagnosis to explain what is causing it.

I have had a colonoscopy, a couple of MRIs, an MRA, a couple of CT scans, X-Rays, dozens of blood, urine and stool tests, and the other test where they insert a tube through your mouth (done while you are under) to see the inside of the stomach (forgot the name of it).

I have seen a number of doctors: internal medicine, gastroenterologists, urologistis, cardiologists, vascular disease, infectious disease - no clue from any of them.

About the pain: it is all concentrated on the left side. The focus is located on the left-front side, directly under my ribs: It is a nagging, colicky pain that makes me feel like I am poisoned; feeling of pressure and being bloated all over. The pain starts in the front but it goes around my back, goes down to the front all the way to my groin area, down to my leg, and all the way down to my foot/toes.

Other symptoms: I feel toxic, bloated, a lot of back pain and colic, diarrea, constipation, sensation of obstruction in my stomach, sensation of pressure. When I eat, I feel worse. That's not to say that I feel better when I do not eat. No urinary pain, no blood in the urine or stool.

First, I thought it was another kidney stone (more precisely, stone in the urethra - I have had surgery to remove stones in the urethra in the past). I also have had surgery to remove gallbladder stones. But the tests do not show any stones - besides, I have no blood in the urine, no fever. So, the doctors discard the possibility of stones completely.

Now I am thinking maybe it is my spleen or my pancreas. Only because of the location of the pain. But it could be some other organ behind the spleen and pancreas.

My hands and feet feel swollen and, of course, that hurts - like I am full of fluid. I wish I could convince a doctor to treat me for kidney stones even though there is no proof that is what is causing the pain. I am not in any treatment of any kind.

I have gone to the Emergency Room twice but they are at a loss so they send me home with no diagnosis and not medication.

I cannot understand why it is so difficult to figure out what can be causing this pain. After all, there are only a few possibilities given the location of the pain.

I feel very hopeless - and in constant pain. What can I do? Where can I go? Who can I see? Please help. I don't have any relatives or friends in this country and I feel totally alone with no hope to live a normal life again.

I thank you in advance for any advice you can give me. If you know a doctor in the Chicago area that is willing to take the time to solve my problem - despite the absence of positive test results - I would appreciate a referral. I am hoping to find someone who has the experience (gut feeling?) to base my treatment on clinical symptoms.

Again, thank you

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8 Replies:

  • Im trying to find help for my wife who has been in pain for over four years. Currently we are talking to Gloria Gilbere, author of "I was poisoned by my body". Maybe this book will give you some answers too.
    Anonymous 42789 Replies
    • October 26, 2007
    • 06:00 AM
    • 0
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  • Are you female? Have you been to a gynecologist? Maybe time for a laparoscopy. Sounds a bit like endometriosis.
    Anonymous 42789 Replies
    • October 26, 2007
    • 06:31 AM
    • 0
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  • 1. if there are problems with stool frequency, need to go after meals, swollen stomach and diffuse pain then IBS is an option (irritable bowel syndrome). 2. Have you ever been operated in the abdomen?3. a pancreas amylase test will reveal pancreas problems.4. Psychosomatic pain can be triggered by stress.5. For females: gynaecological problems.6. Have the kidneys been checked properly?7. No heartburn?
    thephantom 1 Replies
    • October 26, 2007
    • 09:55 AM
    • 0
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  • Swelling of the extremities (hands/feet) and abdominal pain are associated with Hereditary Angioedema. Try here: www.hereditaryangioedema.com
    aquila 1263 Replies
    • November 2, 2007
    • 04:59 PM
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  • Are you female? Have you been to a gynecologist? Maybe time for a laparoscopy. Sounds a bit like endometriosis. Yes, I agree with this. If you are female, then you should have a vaginal and lower abdominal ultrasound to rule out cysts or fibroids. Endo is hard to diagnose - find an endo specialist to help you with this. You did not list gyno as one of your specialists - if you haven't checked with one, you should. I would also rule out pancreatitis, but your docs should have tested you for this already. Consider trying acupuncture to help with your pain until you find a diagnosis. Best wishesDOM
    acuann 3080 Replies
    • November 2, 2007
    • 08:42 PM
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  • "I feel toxic, bloated, a lot of back pain and colic, diarrea, constipation, sensation of obstruction in my stomach, sensation of pressure. When I eat, I feel worse. That's not to say that I feel better when I do not eat." These are all typical symptoms of IBD, but celiac disease can also present itself in this way. It could be that you are only having symptoms from your small bowel and making it difficult to diagnose. You should ask for a blood test to rule out celiac disease first of all. Have your bowels changed in any way? Frequency, color, odor?Do you go more often? Some people have these symptoms for years before they are finally diagnosed. Good Luck Kiera
    Anonymous 42789 Replies
    • November 2, 2007
    • 10:59 PM
    • 0
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  • Have you had a gastric emptying study? look up rapid gastric emptying or dumping syndrome. That might be part of the problem.
    rad-skw 1605 Replies
    • November 3, 2007
    • 10:45 AM
    • 0
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  • The first thing is that you need to find a medical practitioner who will figure out WHERE your pain is. It is easy for MDs to take the patient's word for where the pain is, but that pain might be reflected from somewhere else. Pain on the left side, radiating around to the front and to the feet, suggests the possibility of a spinal cord lesion. The GI symptoms might be a red herring (e.g. bad pain can give you diarrhea). Sounds like the kidney is ruled out. Would suggest a good example by a board-certified Internist who has privileges in a reputable hospital. Appropriate studies might include blood work, a CT scan, and MRI of the spine (thoracic/lumbar), and a GYN exam (+/- ultrasound of the pelvis). Whether you should have these studies depends on the actual location of the pain. Other things that can cause pain include: pancreas problems, ischemic bowel, irritable bowel/constipation, inflammatory bowel disease, kidney stones, ovarian masses or torsion.
    Anonymous 42789 Replies
    • November 3, 2007
    • 07:30 PM
    • 0
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