Discussions By Condition: I cannot get a diagnosis.

Please help me, the doctors think I'm lying or crazy.

Posted In: I cannot get a diagnosis. 208 Replies
  • Posted By: Anonymous
  • April 25, 2008
  • 11:08 PM

Hi all. I hope somebody out there either knows, or can help me find out what is wrong with me. I've been to at least 10 different doctors, and not one of them knows what's going on...I'm at the end of my rope. I'm a 25 yr old woman, 5',4", 250 lbs. and I have had very strange symptoms since I was 17 yrs old, and every doctor I've been to has ran numerous tests, all normal, and either doesn't believe me, or thinks I'm crazy, or possibly both. The only ones who seem to believe me are: my primary doctor, my latest urologist who thinks I could have overactive bladder, but doesn't know why I have everything else, and maybe the doctor I've seen for my cysts on both my spleen, and my left kidney. I had a IVP done the 15th and so far, no results yet. I will let you know when they come back.

Here are my symptoms: (since age 17)

Hirsutism, (under chin)

Urinary Incontinence, (I know when I need to go, and can make it to the bathroom fine, but I leak constantly, 24/7.)

Irregular Menstrual Cycles, (Sometimes I'll miss a month or rarely, two, but I'm usually every month.)

Bladder infections, (most of the time after my periods, this last time I didn't have one after my period.)

Low immunity to infections, (not sure if this is related to my spleen cyst, but since I've been going through this, I have hardly no protection against viruses; I catch everything, and I used to never get sick; only 2-3 times a year. For example, I got a flu shot in Oct., and I got the flu in January and again in March.)

Spleen Cyst, (7 cm., since 2001)

Kidney Cyst (8 cm., but I'm not sure how long it's been there.)

Other information:

Since I'm overweight, I know the majority of my symptoms point to Polycystic Ovary Syndrome, but there have never been any ovarian cysts found, and I have had weight problems most of my life, but I have always been healthy up until I was 17, when all of this started. A few years ago, I started walking every day and I lost 25 lbs in about 2 months, but it didn't help me at all, and I gained everything back, and then some; I've always been a yo-yo dieter; I know I need to lose weight, so please don't tell me to go on a diet...I will, but, this is more important right now. Thank you.

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  • have you had your thyriod checked if thats off that can cause alot of problems
    Anonymous 42789 Replies Flag this Response
  • Hi tlds68, thanks for writing. I don't know if they did or not; I've had so many tests done over the years, that I can't remember. I'll ask my primary doctor to check it the next time I see her. What does a thyroid problem cause?
    Anonymous 42789 Replies Flag this Response
  • Hi blaze, thank you so much for those links; I'll be sure to check them out; how do they test for that? I only mentioned that just because that's all anybody sees, and then I feel like I don't get taken seriously because I'm not thin; like I'm making it up or something...it's so frustrating. And I just said that just in case any one said, "Well, there's your problem. Go on a diet.", especially if they were doctors. My family has weight problems; my dad's side are all obese or overweight, a few relatives on my mom's side are big...it just runs in my family, plus I like to eat, and I like to cook, so it's my fault too, but no matter what I lose, it all just comes right back...I guess it's just something I have to deal with. Here's one for you: I had been having a lot of pain in my side for almost a month, (visiting relatives at the time so I couldn't go to my doctor, and didn't get back till the 6th) and then the 7th (sunday) I had burning, so I thought my cyst broke in my spleen and I didn't know if that was dangerous or not, so I went to the hospital, where the had me wait for 6 hrs., and by that time, my side stopped burning, and then I finally got a CT scan; normal, didn't rupture...I worried for nothing, then the er doctor came in and was pressing on my stomach and on my ribs, and I told her what was going on, and all she said was that everything was fine, and with my weight situation, I'm at risk for diabetes, and my blood sugar was high, I think she said it was 127 or something, and I need to make an appt. with my doctor...by the time I found out anything, it was 3 AM and I was tired, and I forgot to tell her that I had eaten about 2 hrs before I came in and that's why my sugar was so high...I had it checked before, and it was below 100, so I know I don't have that. Sorry for rambling on, but the point is, I thought something was bursting inside my body, and all this doctor was worried about was how fat I was...like I don't already know that, you know. I know she thought she was trying to be helpful; in reality, I felt insulted; I didn't go there for that; I'm suprised she didn't give me any diet tips before she left the room. It's like, "Ok, I know I'm fat. Can we move on?" Seriously, I know I'm not healthy, and I know that there are people worse off than I am, but it's frustrating when you go see somebody about something, and then they point out the obvious; it's the same as someone who can't see very well being told that that he or she has bad eyesight; he or she already knows it, and therefore, doesn't need it pointed out to him or her.
    Anonymous 42789 Replies Flag this Response
  • blaze, I looked at those sites you told me about, and I found out that I have very few, if any, of the symptoms. I live in Ohio, and there isn't any tick problem that I'm aware of, and my house has woods in the backyard, but I have never been bitten by ticks, and neither have my pets, so I don't think it's lyme disease. I don't think I'm electrosensitive either; I can watch tv, talk on the phone, which is cordless, also cell and traditional phones, and computer all day with no problem, and my road has telephone lines on either side, and all up and down the road. Anyway, thank you for trying, and also for your kind words...it's a shame that there aren't more people like that in this world, and even more shameful that the doctors think that people bring stuff like this upon themselves. I feel so bad for you having that though, I hope you feel better soon. Well, back to the drawing board...=(
    Anonymous 42789 Replies Flag this Response
  • corrections: I got the dates wrong in post 5; it should have been 5th and 6th, instead of 6th and 7th, and the in "where the had me wait for 6 hrs.", should have been "they", and also in post 6, i forgot to add "I can be on the computer". Sorry for any confusion, sometimes I forget how to write. :-D
    Anonymous 42789 Replies Flag this Response
  • Hi everybody.Well, it's been over 2 wks, and I STILL don't know anything about my test yet...nothing like them taking their time about it...so I'm still waiting, and hopefully by next week, I'll know something. Anyway, sorry I haven't been here in a few days; I've had bronchitis and a sore throat since Tuesday; I feel a little bit better today, but my throat is still sore, and my chest still hurts from coughing; I hope I'll be over it by Monday or Tuesday. Oh, I forgot to mention that the last time I had it checked in 2005, my testosterone level was almost 90; so I think it might be a hormone imbalance, but then again, I only have a few symptoms of it, and my doctor put me on some pills that have thinned out the hair on my chin, and there are some spots where the hair has gone away, but it's still growing, and it hasn't done anything for my bladder problem...I don't get it, how could a person go from from being healthy at 16, and then have her body fall apart a year later? It doesn't make any sense; nobody in my family ever had anything like this, so I don't know where it came from...all I know is that it all started for no reason in my junior year of high school, and nobody knows what it is. Anyway, please continue to give me ideas, and I'll keep looking too; maybe someday I'll be back to normal, and thank you for your help so far.
    Anonymous 42789 Replies Flag this Response
  • Hey sweety I am so sorry for what you're going through. Unfortunately I don't have any answers for you with regard to Your symptoms but I have some advice regarding your weight problems - my weight has also been yo-yo-ing for the past 5-8 years & I've learnt the following... 1) Diets don't work - & if they do, the result is temporary. Rather adjust your general eating habbits & stick to the changes. You don't have to avoid certain food groups - just eat everything in moderation. Have as little sugar as possible, eat good carbs like pasta, maize, brown rice etc. Eat lots of green food & colourful veggies. Your meat portions should not be more than that of Your veggies. check out sites with food pyramids or food portioning to get a better idea of how to do this.Also, scrap they 3 meal a day thing. so instead of having 3 big meals a day, try & have 6 small meals a day - this ensures that your body constantly has enough energy & therefore you won't feel as hungry. Remember this is not a quick-fix & its not easy at first - but you have to stick to it. they say it takes at least 21 days to form a habbit. so try this for a month & soon it will be second nature to you. 2) Exercise! the word a lot of people hate & I'm no exception, however, I realised that its important & so I've made it easier for myself by making it fun. You need to get your heart rate up & keep it up for at least 20min at least once a week. & don't forget to breathe deeply - exercise without a good supply of oxygen can be counteractive. What do you like doing that requires movement & lots of energy & promotes deep breathing? I like dancing, jumping jacks, running up a few flights of stairs & swimming - whatever you do, try to keep it up for 25min.Other than that, you need to do resistance training at least three times a week - even if you just take 2 tinned cans of fruit & do arm lifts for 10min. The reason for this is that muscle burns fat - therefore the more you develop your muscles, the more their capacity to burn away fat Now its up to you. Just 2 changes in your life that will be very hard at first (trust me, i know), but you'll be glad you did it in the end.All the best & let me know how its going.
    Jerrie 11 Replies Flag this Response
  • Hey sweety I am so sorry for what you're going through. Unfortunately I don't have any answers for you with regard to your symptoms but I have some advice regarding your weight problems - my weight has also been yo-yo-ing for the past 5-8 years & I've learnt the following... 1) Diets don't work - & if they do, the result is temporary. Rather adjust your general eating habbits & stick to the changes. You don't have to avoid certain food groups - just eat everything in moderation. Have as little sugar as possible, eat good carbs like pasta, maize, brown rice etc. Eat lots of green food & colourful veggies. Your meat portions should not be more than that of Your veggies. check out sites with food pyramids or food portioning to get a better idea of how to do this.Also, scrap they 3 meal a day thing. so instead of having 3 big meals a day, try & have 6 small meals a day - this ensures that your body constantly has enough energy & therefore you won't feel as hungry. Remember this is not a quick-fix & its not easy at first - but you have to stick to it. they say it takes at least 21 days to form a habbit. so try this for a month & soon it will be second nature to you. 2) Exercise! the word a lot of people hate & I'm no exception, however, I realised that its important & so I've made it easier for myself by making it fun. You need to get your heart rate up & keep it up for at least 20min at least once a week. & don't forget to breathe deeply - exercise without a good supply of oxygen can be counteractive. What do you like doing that requires movement & lots of energy & promotes deep breathing? I like dancing, jumping jacks, running up a few flights of stairs & swimming - whatever you do, try to keep it up for 25min.Other than that, you need to do resistance training at least three times a week - even if you just take 2 tinned cans of fruit & do arm lifts for 10min. The reason for this is that muscle burns fat - therefore the more you develop your muscles, the more their capacity to burn away fat Now its up to you. Just 2 changes in your life that will be very hard at first (trust me, i know), but you'll be glad you did it in the end.All the best & let me know how its going.
    Jerrie 11 Replies Flag this Response
  • Hi Jerrie, thank you, it's been a struggle, and thank you for the tips, and encouraging words, too. Yes, I know for a fact that diets don't work; I've been on diets since I was a little girl. It's not that I can't lose weight, I can, but I can't keep it off, no matter what I try; I even bought that new diet pill called Lipozene at the end of Feb., and I took that for 3 wks. and that was junk, I followed the directions to the letter on the bottle; I'd take the pill with a full glass of water, eat an hour later, and the appetite supressant that was suppossedly in it would only work for 2, maybe 3 hours if I was lucky, then after it wore off, I was eating like you do when you have PMS, I was always hungry; even if I took 2 pills. And I eat 2 meals a day, and I hardly ever snack, and normally, I can wait 4-5, sometimes 6 hours between meals, so needless to say, I haven't taken them since March; what a waste of money that was.To make a long story short, I've tried every diet there is, and the only thing that ever worked for me, was when after constantly hearing that my weight was causing all of my problems, in '03 I started walking every day, and I lost about 25 lbs., in about 2 months; with no diet...I ate whatever I wanted; pizza, pasta, burgers...whatever I wanted, even sweets, and I went from 212 to 196 in less than 3 months, just walking up and down my road...and for the first time since I can remember, I actually felt good about myself; I had energy to burn, I would have to buy new clothes every week, because everything was just falling off me...I was feeling so good, I was on top of the world.And then, the inevitable happened: I had hit a plateau; I wasn't losing any more weight, and the scale stopped going down, I had leveled off; and if that wasn't bad enough, I discovered that losing weight didn't do anything for my bladder like the doctors and a few relatives said it would; I was still having problems; just like today, and I was so discouraged and dissappointed that it didn't work, and not having anyone believe me didn't help either, and I know it was wrong, but I got into the mindset of "Well, if they don't care, why should I?" and I just stopped caring, and then I quit, and I don't quit anything, but that I did, and now I'm heavier than I ever was then, and now when I start again, hopefully this summer, I know it's going to be harder than it was the last time, but I'm up to the challenge, and this time when I hit a plateau, I'm going to keep going...I'm tired of not feeling good about myself, and I know I can do it, because I did it before, and this time I'm bound and determined to win; all my life I was the fat girl, and now I want to be the skinny girl...and I hope someday that I can find somebody to cure these problems and not just say I'm too young for this, and that they can't find anything wrong; I know it's real and I know it's not in my head; I just want my life back, and I want to be healthy again. I don't think that's asking for much, to have somebody listen to me and believe me, and help me. I feel so emmbarrassed and ashamed and it's so humiliating that I'm so desperate for answers that I've told all of you, a bunch of strangers, all my problems; and I just know that somebody somewhere is ridiculing me about it, but I don't care what they think, I'm so embarrassed about this, that I'm willing to do anything, even tell the world and bare my soul; which I basically did, just to have an answer. Please, I've waited for almost 8 years, and I can't wait anymore...it's so hard to talk about, not to mention live with; I get so depressed and sometimes I cry because I feel so ashamed. Please help me, I'm desperate, I can't keep living like this.
    Anonymous 42789 Replies Flag this Response
  • ((((hugs)))) yeah i hate those weight plateaus, they happen to everyone who is loosing weight thou, so one needs to be mentally prepared for one.. expect that to happen at times and be prepared to push even harder throu them eg increase the pace of your exercise or do a little more. Sounds like you do need to loose weight for your emotional wellbeing (something im sure you already know). Any weight loss ISNT a failure even if it didnt fix your physical issues!! so maybe work on changing the way you feel about it. It wasnt a waste of time and effort! You said yourself that you felt better during it.. buying new clothes etc etc Ive had weight issues in my past too. Im in Australia so we dont use the weight scales you do where you are.. but I was once a size 16 (in the Aussie sizes). Im a size 12 now (at times, with hard work, I get down to a size 10 but i dont manage to stay there.. I think my natural healthy weight must be a size 12). Loosing weight is about changing ones habits and life.. not a quick fix thing. Learn to make low carb, low calorie versions of things and high protein meals that are ENJOYABLE.. so you can permanently change what you are doing now. (without the high protein.. i feel like im staving and eat so much more.. I just love my food and are a comfort eatter too). If you are feeling deprived.. realise that what you are doing is probably no good... as you arent going to be able to keep that kind of thing up for life. Substitute things (high calorie foods for a little lower calorie) in a way which wont have you feeling deprived. I wonder how much of your issue is hormonal.. it sounds hormonal some of it.. so Im surprised that your tests havent shown something there. (I myself have polycystic ovary syndrome..and that makes it VERY HARD for me to loose weight). Has your doctor had you doing regular (several times daily) pelvic floor exercises for a time.. to see if that helps bladder leak?
    taniaaust1 2267 Replies Flag this Response
  • ... in '03 I started walking every day, and I lost about 25 lbs., in about 2 months; with no diet...I ate whatever I wanted; pizza, pasta, burgers...whatever I wanted, even sweets, and I went from 212 to 196 in less than 3 months, just walking up and down my road...and for the first time since I can remember, I actually felt good about myself; I had energy to burn, I would have to buy new clothes every week, because everything was just falling off me...I was feeling so good, I was on top of the world.And then, the inevitable happened: I had hit a plateau; I wasn't losing any more weight, and the scale stopped going down, I had leveled off; ... hopefully this summer, I know it's going to be harder than it was the last time, but I'm up to the challenge, and this time when I hit a plateau, I'm going to keep going...First off, congratulations on starting an exercise program. It's not easy to get moving when you don't feel well.I happen to be the odd person, the less-than-ten-percent of the population who loves exercise and I can't do it because it causes such horrible aches and pains and the next day I am wiped out. I miss my exercise program so much.Second, plateaus are very common when losing weight and exercising, especially if you don't know what you're doing with your exercise program and nutrition program. There also common with anyone who does weight lifting or resistance training. If you read their sites on the www you'll discover the secret to never having a plateau. I never experienced one during my two years of losing weight/exercising. The first key is to constantly mix up your exercise program so that your exercise never becomes routine. When it's routine, the body starts to hold onto the calories. Walking faster one day. Walking up a hill one day. Walking slower one day. Doing resistance training two to three days a week, alternating days. You can use resistance bands your body doesn't know the difference between those and handheld weights. Riding a stationary cycle one day a week.The second key is to make your nutrition program clean. Now that doesn't mean you can't have dessert once a week. It means that 95% of your meals each week are healthy and nutritious food. Anyone can do 95%. I don't know one person who can do 100% all the time. Eventually, that person will crave what they're saying they shouldn't eat. No one is perfect. It's better to enjoy a dessert once a week than to constantly be thinking you'll never have dessert again. Just make sure the dessert doesn't push you over the carb/pro/fat limit for your day.The third key is to find the Harris Benedict Formula online and determine the amount of calories you should be eating a day. Then after you determine that measure your foods at first to make sure you eating the right amount of carbs/pro/fat. Eventually, you won't have to measure any of your foods because you'll know the portion sizes you need to eat. Of course, these change as your weight decreases. Many, probably most people don't eat enough calories when attempting to lose weight. They believe that eating very few calories will help them lose weight. It does the opposite, it makes your body hold onto the calories to for body function. When you read the Harris Benedict Formula, you'll learn that the body has daily needs for calories and must have these to function.Remember these changes are lifetime ones, not something to do to "get down there."...and I hope someday that I can find somebody to cure these problems and not just say I'm too young for this, and that they can't find anything wrong; I know it's real and I know it's not in my head; I just want my life back, and I want to be healthy again. I don't think that's asking for much, to have somebody listen to me and believe me, and help me. I feel so emmbarrassed and ashamed and it's so humiliating that I'm so desperate for answers that I've told all of you, a bunch of strangers, all my problems; and I just know that somebody somewhere is ridiculing me about it, but I don't care what they think, I'm so embarrassed about this, that I'm willing to do anything, even tell the world and bare my soul; which I basically did, just to have an answer. Please, I've waited for almost 8 years, and I can't wait anymore...it's so hard to talk about, not to mention live with; I get so depressed and sometimes I cry because I feel so ashamed. Please help me, I'm desperate, I can't keep living like this.With all that said above, as my husband has always told me, if you have a hormonal problem no amount of exercise or dieting is going to help you lose weight and keep it off. So first you need to find an endocrinologist, if you have the money, and get yourself thoroughly checked out for any kind of hormonal problem. Second, you need to do some research on your own and learn about the endocrine system.http://www.endocrineweb.com/This is a good place to start doing some research. It's written by an endocrinologist and he gives the simple explanations.There's much more very good information on the www and I suggest you continue your search. Print off anything which sounds like what you dealing with and take that to the doctors.And remember many conditions take years before they are diagnosed -- that's a hard one to swallow but so true. Many times that is because a thorough history is not taken and not read. Other times, not all the symptoms have become visible to the eye and may not show up on blood tests or other tests.It took my mother about 10 years to finally get diagnosed with her condition.It took me over two years to get diagnosed with a certain heart condition. Yet I had all the symptoms. The doctors just weren't looking in that direction. It took meeting someone with the same condition to finally convince me to pursue getting a diagnosis. That's when I decided to be persistent with going to the ER. I went 11 times in one year! I finally got diagnosed.
    Anonymous 42789 Replies Flag this Response
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  • ((((hugs)))) yeah i hate those weight plateaus, they happen to everyone who is loosing weight thou, so one needs to be mentally prepared for one.. expect that to happen at times and be prepared to push even harder throu them eg increase the pace of your exercise or do a little more. Sounds like you do need to loose weight for your emotional wellbeing (something im sure you already know). Any weight loss ISNT a failure even if it didnt fix your physical issues!! so maybe work on changing the way you feel about it. It wasnt a waste of time and effort! You said yourself that you felt better during it.. buying new clothes etc etc Ive had weight issues in my past too. Im in Australia so we dont use the weight scales you do where you are.. but I was once a size 16 (in the Aussie sizes). Im a size 12 now (at times, with hard work, I get down to a size 10 but i dont manage to stay there.. I think my natural healthy weight must be a size 12). Loosing weight is about changing ones habits and life.. not a quick fix thing. Learn to make low carb, low calorie versions of things and high protein meals that are ENJOYABLE.. so you can permanently change what you are doing now. (without the high protein.. i feel like im staving and eat so much more.. I just love my food and are a comfort eatter too). If you are feeling deprived.. realise that what you are doing is probably no good... as you arent going to be able to keep that kind of thing up for life. Substitute things (high calorie foods for a little lower calorie) in a way which wont have you feeling deprived. I wonder how much of your issue is hormonal.. it sounds hormonal some of it.. so Im surprised that your tests havent shown something there. (I myself have polycystic ovary syndrome..and that makes it VERY HARD for me to loose weight). Has your doctor had you doing regular (several times daily) pelvic floor exercises for a time.. to see if that helps bladder leak?Hi, Taniaaust1.It must be so nice to live in Australia; it's such a beautiful place, if I wasn't petrified of flying, I'd go there someday. I live in Ohio. And, thank you for being so understanding, as you can see, I've been having a very hard time with this...8 years is a long time to deal with anything, especially something that nobody thinks you have since all the tests come out normal. Congratulations on your weight loss, no, it's very hard to do, and if anyone says it's not, then they're lying, because it's one of the hardest things you'll ever do in your life, and I'm an emotional eater too; and sometimes I eat when I'm bored; but then I find something to do instead of having a snack. Yes, I know I need to; 250 at 5'4 isn't at all healthy, considering that obesity runs in my family; everyone on my dad's side is either obese or overweight, and some relatives on my mom's side are heavy, too. And, yes, it would make me feel better about myself; so would not being hairy like a guy, or feeling wet like a little kid every day, but you can't have it both ways.Well, you're right, it wasn't a failure, but it was the first time I had ever lost that much, and then when it suddenly stopped, I didn't know what to do...I've always went up and down, and when I was finally going down, and then I wasn't going down anymore, I was devestated; especially when I was being told continuously that once I lost weight, that my incontinence would go away, and so would my hair problem, but it never happened. And I admit that it was dumb on my part to get so upset and quit, and now it's going to be 10x harder than it was last time, but like I said, I'm going to keep going this time; I know what to expect. It's just so frustrating when nobody wants to listen to anything you say just because you're not a size 6...I'm sorry, I'm not, and I'd give anything to be that small, but I'm not, I will be someday, but not right now. As for your situation, I am very sorry you have that problem; I was reading about it while I was trying to find out what I have, and it sounds terrible. I know I have a few symptoms of it, but no cysts on my ovaries were ever found.Can you develop that after being perfectly healthy all your life? Because that's what happened to me; for 16 years I was healthy, and then after I turned 17, and in my junior year of high school (11th grade) everything just happened; it seemed like my body just fell apart for no reason, and it's continuing to fall apart, and nobody knows why. According to the last time I got it checked, my testosterone level was almost 90, (I was never told the exact number.) so, a few years ago my primary doctor put me on some pills that have thinned out the hair on my chin, and I have some spots where I have no hair, but it keeps growing, and it also didn't do anything for my bladder; I've tried everything for my bladder and nothing worked at all; not Detrol, Oxytrol, and a mountain of other medicines that I've forgot the names of, not quitting caffiene cold-turkey for 4 months at the urging of my urologist, not losing weight, nothing. No, he never said anything about pelvic exercises. I read about them, but I think that I've pretty much exhausted my non-surgical treatments and options.
    Anonymous 42789 Replies Flag this Response
  • Good morning sweety You are more than welcome - I'm here for you anytime you need. So we've established that diets are a load of bull. Now its time to make a change in your life. Like I said before - this is ot a quick fix. Its gonna be a while before you see a significant change but just hang in there. This is going to be a change in lifestyle for you. You're throwing out the old life & replacing it with this newly revised one. I know you have the strength to do it & if you feel that you might not - I'm right here to help you on. I agree with a lot of the keys Dxd made, so you can actually tie in both our posts & you'll be on your way to health freedom soon. Also, you shouldn't feel bad that you hit a plateau at all.You see, once you start exercising, you start gaining muscle mass. now remember that muscle is slightly heavier than fat. So although you may be losing fat, you are also gaining muscle. This might make it seem like you're going nowhere, when in fact you're right on track. Its good idea to monitor your weight but don't place too much importance on it when you've just started. If you're doing your exercise properly & weekly then don't even bother to be effected by your weight in the first month or two. Don't bother taking any supplements or pills - stick to the natural stuff. If you want something to aid your weightloss, have rooibos green tea :D - I'm using it myself. I thought it would be weird at first coz you think Green? ugh... but the one i'm having now is not so bad. Its not bitter or sour - the taste is actually very subtle & fresh. I have a mug of it with a little bit of milk & 1 teaspoon of brown sugar. You can get it off the following site - they've got some weightloss stuff too but I don't really advocate it. You can do this & you will get your life back. P.S: if you don't mind my asking... what religion are you?
    Jerrie 11 Replies Flag this Response
  • First off, congratulations on starting an exercise program. It's not easy to get moving when you don't feel well.I happen to be the odd person, the less-than-ten-percent of the population who loves exercise and I can't do it because it causes such horrible aches and pains and the next day I am wiped out. I miss my exercise program so much.Second, plateaus are very common when losing weight and exercising, especially if you don't know what you're doing with your exercise program and nutrition program. There also common with anyone who does weight lifting or resistance training. If you read their sites on the www you'll discover the secret to never having a plateau. I never experienced one during my two years of losing weight/exercising. The first key is to constantly mix up your exercise program so that your exercise never becomes routine. When it's routine, the body starts to hold onto the calories. Walking faster one day. Walking up a hill one day. Walking slower one day. Doing resistance training two to three days a week, alternating days. You can use resistance bands your body doesn't know the difference between those and handheld weights. Riding a stationary cycle one day a week.The second key is to make your nutrition program clean. Now that doesn't mean you can't have dessert once a week. It means that 95% of your meals each week are healthy and nutritious food. Anyone can do 95%. I don't know one person who can do 100% all the time. Eventually, that person will crave what they're saying they shouldn't eat. No one is perfect. It's better to enjoy a dessert once a week than to constantly be thinking you'll never have dessert again. Just make sure the dessert doesn't push you over the carb/pro/fat limit for your day.The third key is to find the Harris Benedict Formula online and determine the amount of calories you should be eating a day. Then after you determine that measure your foods at first to make sure you eating the right amount of carbs/pro/fat. Eventually, you won't have to measure any of your foods because you'll know the portion sizes you need to eat. Of course, these change as your weight decreases. Many, probably most people don't eat enough calories when attempting to lose weight. They believe that eating very few calories will help them lose weight. It does the opposite, it makes your body hold onto the calories to for body function. When you read the Harris Benedict Formula, you'll learn that the body has daily needs for calories and must have these to function.Remember these changes are lifetime ones, not something to do to "get down there."With all that said above, as my husband has always told me, if you have a hormonal problem no amount of exercise or dieting is going to help you lose weight and keep it off. So first you need to find an endocrinologist, if you have the money, and get yourself thoroughly checked out for any kind of hormonal problem. Second, you need to do some research on your own and learn about the endocrine system.http://www.endocrineweb.com/This is a good place to start doing some research. It's written by an endocrinologist and he gives the simple explanations.There's much more very good information on the www and I suggest you continue your search. Print off anything which sounds like what you dealing with and take that to the doctors.And remember many conditions take years before they are diagnosed -- that's a hard one to swallow but so true. Many times that is because a thorough history is not taken and not read. Other times, not all the symptoms have become visible to the eye and may not show up on blood tests or other tests.It took my mother about 10 years to finally get diagnosed with her condition.It took me over two years to get diagnosed with a certain heart condition. Yet I had all the symptoms. The doctors just weren't looking in that direction. It took meeting someone with the same condition to finally convince me to pursue getting a diagnosis. That's when I decided to be persistent with going to the ER. I went 11 times in one year! I finally got diagnosed.Thank you Dxd, it was very hard to start, but once I got going, I felt good; and I feel like such a fool for giving it up, but I'll get back into it. And, I'm very sorry that you can no longer exercise, and you're not odd; there's lots of people like that, I'm just not one of them, but I know I need to do it for my health...what's left of it, anyway.As for being routine, no, I would always push myself to go farther if I thought I was getting used to a certain distance; it got to where I was walking a mile up and down the road, from stop sign to stop sign, with no breaks, every day; and as I progressed, sometimes I would walk 2-3, even 4 times a day if I didn't have anything to do, and I was about to do all that, and I even wrote out a schedule before that happened, and I realized that it didn't go away like people said it would. Also, all my life I've always went up and down, but when I was losing, and that for once, I kept going down, and then it stopped; I was devestated because I didn't know what to do at that point; I hadn't lost that much weight before, and I didn't have a plateau before, so I was at a loss, because I thought it wasn't working anymore; nobody ever told me anything about plateaus, or how to get past them. And, diets have never worked for me, I've tried everything, and this was the only thing that ever worked, everything else either made me lose a little, only to have it all pile back on, and then some, or didn't work at all, or made me gain weight; like those diet pills I was talking about. And I did go to a endocrinologist once; I told him what was going on and, I knew he wasn't taking me seriously because of my appearance, but he took some blood, and gave me a prescription for something called Metformin, which is to my understanding, and please correct me if I'm wrong, a pill for diabetes; and after a couple weeks of not hearing anything about my results, I called and spoke to an intern, who said that my hormone level was almost pre-menopause; I can't remember the exact number, but I think it was a 4.5, or something, and the scale started, I think, at 1.0, but it was normal...ok, I was 22 then, and my hormones were already pre-menopausal, but, it was normal, and like always, nothing was found; I never went back after that; the secretary called to remind me about my appointment a few months later, and I told her to just cancel it. Then, when I brought those pills to my primary doctor the first time I saw her, she just looked at me funny, and she asked me why was I put on those, and all I could say was that I didn't know, that's what the doctor gave me, and she just couldn't believe that they told me that it was normal, and then she took some blood, and that's when I found out that my testosterone level was so high. And, thank you for the links; I'm still trying to figure out this puzzle called my body, maybe that site would help, and thank you for the advice too. I had one paper that I copied off the internet about hormone imbalance symptoms, but I accidently gave it to the nurse, and she put it in my file, so I didn't get a chance to show my doctor what I found. Maybe when I see her again, I can have somebody take it out so I can show her. I can't ask the nurse, because she has left since then.That's terrible that you and your mother were given the brush-off for so many years; believe me, I know how it feels, but it's great that they finally figured out what's going on, and I hope you are on medications, and doing better.
    Anonymous 42789 Replies Flag this Response
  • Testosterone is secreted by the adrenal glands. If that level is high they're might be something going on with your adrenal glands. You'd need to find a very good diagnostician in an internist or endocrinologist to find out why you have this high level.One of the causes can be Cushing's Syndrome. You need to look that one up on the www because it's quite involved and it's difficult to get a proper diagnosis. Here are some symptoms:- High testosterone level- high cortisol level- Suppressed LH and FSH (normally suppressed in peri-menopause)- Irregular periods or lack of mensesMenstrual disorders combined with symptoms such as hirsutism or excess hair on face, acne, weight gain, a buffalo hump (on back), and a moon face. Also weight gain is upper body mostly.Here's a great site which describes what lab tests mean:http://labtestsonline.org/understanding/conditions/cushing.htmlThis page is particularly for Cushing's Syndrome.Signs and symptoms associated with Cushing’s syndrome vary but frequently include: obesity in the torso with thinner arms and legs, a large rounded face (moon face), increased fat in the neck and shoulder area, amd thin fragile skin that bruises easily and heals slowly. Patients may have pinkish streaks that look like stretch marks on their abdomen, thighs, and buttocks, muscle weakness, decreased endurance, osteoporosis, high blood pressure, increased blood sugar, and headaches. Children with Cushing’s syndrome tend to be obese, develop slowly, and may remain short. Women may have excess hair on their face and chest and menstrual irregularities. Testing of Testosterone:How is it used?To diagnose hirsutism and masculinization, also called virilization (women).In women, testosterone testing may be done if a patient has irregular or no menstrual periods, is having difficulty getting pregnant, or appears to have masculine features, such as facial and body hair, male pattern baldness, and a low voice. Testosterone levels can rise because of tumors that develop in either the ovary or adrenal gland or pituitary gland or because of other conditions, such as polycystic ovarian syndrome (PCOS) or Cushing's Syndrome.In women, increased testosterone levels can indicate PCOS or Cushing's Syndrome or an ovarian or adrenal gland tumor.Women taking estrogen therapy may have increased testosterone levels. Anticonvulsants, barbiturates, and clomiphene can cause testosterone levels to rise.Here's information on low FSH and LH levels:http://labtestsonline.org/understanding/analytes/fsh/test.htmlI hope that helps you. Because you shared what you did this last time, I'm inclined to believe you have a hormonal disorder of some sort. That's just from all the research I've done for my own situation. If I were you, I'd pursue that route and press the medical community until you get a diagnosis. The squeaky wheel get oiled! ;)
    Anonymous 42789 Replies Flag this Response
  • Good morning sweety You are more than welcome - I'm here for you anytime you need. So we've established that diets are a load of bull. Now its time to make a change in your life. Like I said before - this is ot a quick fix. Its gonna be a while before you see a significant change but just hang in there. This is going to be a change in lifestyle for you. You're throwing out the old life & replacing it with this newly revised one. I know you have the strength to do it & if you feel that you might not - I'm right here to help you on. I agree with a lot of the keys Dxd made, so you can actually tie in both our posts & you'll be on your way to health freedom soon. Also, you shouldn't feel bad that you hit a plateau at all.You see, once you start exercising, you start gaining muscle mass. now remember that muscle is slightly heavier than fat. So although you may be losing fat, you are also gaining muscle. This might make it seem like you're going nowhere, when in fact you're right on track. Its good idea to monitor your weight but don't place too much importance on it when you've just started. If you're doing your exercise properly & weekly then don't even bother to be effected by your weight in the first month or two. Don't bother taking any supplements or pills - stick to the natural stuff. If you want something to aid your weightloss, have rooibos green tea :D - I'm using it myself. I thought it would be weird at first coz you think Green? ugh... but the one i'm having now is not so bad. Its not bitter or sour - the taste is actually very subtle & fresh. I have a mug of it with a little bit of milk & 1 teaspoon of brown sugar. You can get it off the following site - they've got some weightloss stuff too but I don't really advocate it. You can do this & you will get your life back. P.S: if you don't mind my asking... what religion are you?Hello.I can't thank you all enough for taking the time out of your busy lives just to try to help me find out why this is happening, and for being there for me during this very difficult time, and listening to me...you have no idea how much that means to me; all this time, I thought I was alone....it's been so hard all these years to think that I didn't have anyone to talk to about this. I've talked to my family; but I know that they get tired of hearing about it; they've never said anything, but I know they do...I know I've annoyed myself talking about it at times, so I can imagine how they feel, and since I haven't been able to get any kind of help, I've learned to just go on day-to-day, and I try not to think about it too much, but it's hard to put something like that in the back of your mind when it's on your body, and every doctor you've been to has all turned out to be dead-ends....believe it or not, one time, I actually had a doctor; a urologist, tell me not to think about it. How can you NOT think about something like that?? But, it's amazing what you can get used to, and sadly, I have gotten used to it after all this time; I guess I didn't really have a choice. Yeah, diets are worthless; I don't know why they even exist; I'll just do like I did before, and add exercises and more healthy foods like more vegetables, chicken and fish, and salads and fruits, and just try that, and see if that works; if it worked with all the high-fat, high calorie food last time; this time should be even better, and maybe I'll finally win my life-long battle of the bulge. I agree with her too, it's so hard to do by yourself, and it feels so good to know that someone would be there to help me, thank you. I couldn't help feeling like that because I wasn't told about plateaus or how to get through one, it's hard not to feel like you failed at something when you don't know how to get over things like that. I know, but I'm the kind of person who wants to see results now, not next month, but I'll try to be more patient; after all, I have waited nearly a month for my test to come back, so I guess I'm doing good... I will, besides, it's cheaper to buy food than it is to buy the latest so-called "weight-loss wonder drug"; I fell for that I don't know how many times...no wonder these diet companies are multi-billionaires. I personally don't care for green tea, but I do kind of like the lipton with citrus green tea, it's not too bad, I guess. I heard it's suppossed to really good for you, but I like regular tea better. And, I hope so; I've waited for so long. No, it's fine, that's a good question. Well, my family is suppossed to Baptist, and we believe in the Bible, God, ****s, the Devil, and Heaven and ***l (most of the family, except for a few), but don't go to church because of work, and, well, I live with my parents and can't work because of always going to appointments, which makes me feel even worse about myself, like I'm lazy for not contributing to the household...but, I don't go because I can't stand hearing the preachers scream at the top of their lungs during the service....I went to church a couple times when I was little, and at one church, the minister was screaming so much, his whole head was red as a tomato, and at another, my aunt, who is Christian, and I went to the revival, and they had this high-school type band that was playing the gospel music so loud that I could actually feel the building shaking, and I didn't like it because A), I think is disrespectful to rock out to gospel music, B), it was way too loud for me, (when I was a kid, I always had earaches and infections, so I couldn't be around a lot of noise.) and C), I don't mind when they just preach the word of God, but I do mind when they scream it like banshees. So to make a long story short, we are non-practicing Baptists.Can I ask you something? Do you have to type in letters and numbers before you can post? Or is that just something they make people who haven't registered do?
    Anonymous 42789 Replies Flag this Response
  • Testosterone is secreted by the adrenal glands. If that level is high they're might be something going on with your adrenal glands. You'd need to find a very good diagnostician in an internist or endocrinologist to find out why you have this high level.One of the causes can be Cushing's Syndrome. You need to look that one up on the www because it's quite involved and it's difficult to get a proper diagnosis. Here are some symptoms:- High testosterone level- high cortisol level- Suppressed LH and FSH (normally suppressed in peri-menopause)- Irregular periods or lack of mensesMenstrual disorders combined with symptoms such as hirsutism or excess hair on face, acne, weight gain, a buffalo hump (on back), and a moon face. Also weight gain is upper body mostly.Here's a great site which describes what lab tests mean:http://labtestsonline.org/understanding/conditions/cushing.htmlThis page is particularly for Cushing's Syndrome.Signs and symptoms associated with Cushing’s syndrome vary but frequently include: obesity in the torso with thinner arms and legs, a large rounded face (moon face), increased fat in the neck and shoulder area, amd thin fragile skin that bruises easily and heals slowly. Patients may have pinkish streaks that look like stretch marks on their abdomen, thighs, and buttocks, muscle weakness, decreased endurance, osteoporosis, high blood pressure, increased blood sugar, and headaches. Children with Cushing’s syndrome tend to be obese, develop slowly, and may remain short. Women may have excess hair on their face and chest and menstrual irregularities. Testing of Testosterone:How is it used?To diagnose hirsutism and masculinization, also called virilization (women).In women, testosterone testing may be done if a patient has irregular or no menstrual periods, is having difficulty getting pregnant, or appears to have masculine features, such as facial and body hair, male pattern baldness, and a low voice. Testosterone levels can rise because of tumors that develop in either the ovary or adrenal gland or pituitary gland or because of other conditions, such as polycystic ovarian syndrome (PCOS) or Cushing's Syndrome.In women, increased testosterone levels can indicate PCOS or Cushing's Syndrome or an ovarian or adrenal gland tumor.Women taking estrogen therapy may have increased testosterone levels. Anticonvulsants, barbiturates, and clomiphene can cause testosterone levels to rise.Here's information on low FSH and LH levels:http://labtestsonline.org/understanding/analytes/fsh/test.htmlI hope that helps you. Because you shared what you did this last time, I'm inclined to believe you have a hormonal disorder of some sort. That's just from all the research I've done for my own situation. If I were you, I'd pursue that route and press the medical community until you get a diagnosis. The squeaky wheel get oiled! ;)Thank you for the links. I looked up Cushings before, and I don't think I have it-my weight gain is all over my body, and I don't have either a hump or pink marks, also my blood pressure is always good. But you got me wondering about the hormone disorder, because that's what I think it is too, and can that develop from a kidney cyst? Because I have one on my left kidney that is 8 cm., but the doctor that done my IVP test never mentioned anything about it, and I also have one on my spleen that is 7 cm., and a testosterone level of almost 90-they never told me the exact number when I had it checked in '05,...all the testing I've had over the years, and those were the only things found...nothing else ever showed up.... I've had 9 or 10 pelvic ultrasounds, about 5 cystoscopies, 1 transvaginal ultrasound, countless urine tests, nerve testing that was done by a neurologist, 2 urodynamics studies-the 1st one with a urologist came back only as "low capacity", and the 2nd one with my current urologist came back as possible overactive bladder (OAB), but none of the treatments worked....why can't anybody find anything? How could I be perfectly fine if I have hair growing under my chin AND urine leakage, which occured at the same time, which nobody thinks is related-starting at 17 years old, a sky-high testoterone level which was not there at 16, I have virtually no immune system, and I have giant cysts growing in my body, and then every test comes back normal?? It just can't be normal-there's something wrong; I'm not faking, and I'm not making it up, and I'm not a hypochodriac; I know when something is going on with my body, and something is definitley going on now, and I absolutely DO NOT do it for attention; I hate going to doctors, and I have to be really sick or in pain to even think of going to the emergency room...I'm so tired of this song and dance, that it's a wonder that I'm not nuts; I just want a answer-just one stupid answer as to why this is going on...is that too much to ask??Sorry for ranting, but I just don't get it; how could I have all of this going on and nothing is ever found? Is it normal to have your body just fall apart when your'e a teenager? Will this nightmare ever end? I'm so frustrated and I get so depressed that I just want to say screw it and forget about it....but I can't, because my family won't let me, and I know neither will any of you, so like you said, I'll have to keep trying until they figure it out.
    Anonymous 42789 Replies Flag this Response
  • Hello. I can't thank you all enough for taking the time out of your busy lives just to try to help me find out why this is happening, and for being there for me during this very difficult time, and listening to me...you have no idea how much that means to me; all this time, I thought I was alone....it's been so hard all these years to think that I didn't have anyone to talk to about this. I've talked to my family; but I know that they get tired of hearing about it; they've never said anything, but I know they do...I know I've annoyed myself talking about it at times, so I can imagine how they feel, and since I haven't been able to get any kind of help, I've learned to just go on day-to-day, and I try not to think about it too much, but it's hard to put something like that in the back of your mind when it's on your body, and every doctor you've been to has all turned out to be dead-ends....believe it or not, one time, I actually had a doctor; a urologist, tell me not to think about it. How can you NOT think about something like that?? But, it's amazing what you can get used to, and sadly, I have gotten used to it after all this time; I guess I didn't really have a choice. Yeah, diets are worthless; I don't know why they even exist; I'll just do like I did before, and add exercises and more healthy foods like more vegetables, chicken and fish, and salads and fruits, and just try that, and see if that works; if it worked with all the high-fat, high calorie food last time; this time should be even better, and maybe I'll finally win my life-long battle of the bulge. I agree with her too, it's so hard to do by yourself, and it feels so good to know that someone would be there to help me, thank you. I couldn't help feeling like that because I wasn't told about plateaus or how to get through one, it's hard not to feel like you failed at something when you don't know how to get over things like that. I know, but I'm the kind of person who wants to see results now, not next month, but I'll try to be more patient; after all, I have waited nearly a month for my test to come back, so I guess I'm doing good... I will, besides, it's cheaper to buy food than it is to buy the latest so-called "weight-loss wonder drug"; I fell for that I don't know how many times...no wonder these diet companies are multi-billionaires. I personally don't care for green tea, but I do kind of like the lipton with citrus green tea, it's not too bad, I guess. I heard it's suppossed to really good for you, but I like regular tea better. And, I hope so; I've waited for so long. No, it's fine, that's a good question. Well, my family is suppossed to Baptist, and we believe in the Bible, God, ****s, the Devil, and Heaven and ***l (most of the family, except for a few), but don't go to church because of work, and, well, I live with my parents and can't work because of always going to appointments, which makes me feel even worse about myself, like I'm lazy for not contributing to the household...but, I don't go because I can't stand hearing the preachers scream at the top of their lungs during the service....I went to church a couple times when I was little, and at one church, the minister was screaming so much, his whole head was red as a tomato, and at another, my aunt, who is Christian, and I went to the revival, and they had this high-school type band that was playing the gospel music so loud that I could actually feel the building shaking, and I didn't like it because A), I think is disrespectful to rock out to gospel music, B), it was way too loud for me, (when I was a kid, I always had earaches and infections, so I couldn't be around a lot of noise.) and C), I don't mind when they just preach the word of God, but I do mind when they scream it like banshees. So to make a long story short, we are non-practicing Baptists. Can I ask you something? Do you have to type in letters and numbers before you can post? Or is that just something they make people who haven't registered do? Yeah, it is something they make you do if you're not registered. Lol - Well I'm not baptist per say but its more or less the same thing, I guess (I'm Pentecostal), but I know what you mean about the banshee preachers & the over-loud, extra bass music - its a total put-off (but I don't mind the Gospel rock in moderation). We go to my uncle's church now & he's a laid-back down-to-earth sorta guy, so we never have to deal with bust eardrums anymore - thank God.Anyways, the main reason I asked you that is coz I wanna know if you've prayed about all that you're going through. Don't get me wrong - I'm no religious nut whose going to condemn you if you haven't been going to church or praying. I'm just reminding you (as I, myself sometimes need reminding) that He is always they for you no matter what. Even if its just a little prayer every now & then. It makes you realise that you're not as alone as you think - trust me , I know. Oops times going - Gotta run now.Keep in touch
    Jerrie 11 Replies Flag this Response
  • I've had 9 or 10 pelvic ultrasounds, about 5 cystoscopies, 1 transvaginal ultrasound, countless urine tests, nerve testing that was done by a neurologist, 2 urodynamics studies... Aslo, I forgot to add I had about 30 CT scans and MRI's.
    Anonymous 42789 Replies Flag this Response
  • Yeah, it is something they make you do if you're not registered. Lol - Well I'm not baptist per say but its more or less the same thing, I guess (I'm Pentecostal), but I know what you mean about the banshee preachers & the over-loud, extra bass music - its a total put-off (but I don't mind the Gospel rock in moderation). We go to my uncle's church now & he's a laid-back down-to-earth sorta guy, so we never have to deal with bust eardrums anymore - thank God.Anyways, the main reason I asked you that is coz I wanna know if you've prayed about all that you're going through. Don't get me wrong - I'm no religious nut whose going to condemn you if you haven't been going to church or praying. I'm just reminding you (as I, myself sometimes need reminding) that He is always they for you no matter what. Even if its just a little prayer every now & then. It makes you realise that you're not as alone as you think - trust me , I know. Oops times going - Gotta run now.Keep in touchHello. Ok, but that's annoying, I think, sometimes it's hard to see the code, and when you think you have it right, it's wrong, so you have to do it all over again...thankfully it only happenes sometimes. Well, that's what I was told, Baptist, but I'm not really sure what I am...all I know is that I believe in the Bible and God; and thank you for not being a fanatic, there's enough people like that in this world. :D Yeah, it's very annoying when they scream, and blare the music...I had sensitive ears when I was little so I hardly ever went to church, and I don't know why, but I've never liked it when people were rocking out to the songs. And that's good that you found a good church after all this time.Thank you for the reminder. Yes, I have tried praying; I've tried everything except going to a psychiatrist and having my head examied. I even took anti-depressents because I felt so hopeless once, but I only took them for a few days because my family said I didn't need them, and I didn't think I needed them either, they were only samples, and I was depressed and feeling sorry for myself for 3 months; it was so bad that I even stopped cleaning...and I'm a very clean person...but I did, I let the dishes pile up, and it drives me crazy to have a sink full of dishes, I let the laundry go...everything. Of course somebody else done all the cleaning and laundry while I was feeling like that, and it was hard, but my family got me through it, and after 3 months, I finally "snapped out of it" and started doing things again.I still have good days and bad days, but nothing like I had back then, and when I am having a hard time, my family is right there to help me through it, but sometimes I still feel all alone because I'm not well and it seems like nobody cares because I went everywhere for help and nobody has ever been able to help me, in fact, they give up on me and send me to another doctor after I've had a few tests and some more medication, and nothing works. I'm so tired of being let down, I want to give up and just live with it because I feel like nobody believes me; it's already been 8 years. I've had all kinds of tests done, and they all come back normal, and then I feel like I'm a freak because this happened out of nowhere when I was 17 and nobody knows what it is...when I had my test in April, I told the people who were doing it that they were wasting their time. I'm so tired of this: I'm 25 yrs. old, I'm a grown woman; I'm not suppossed to pee myself like a 2 yr. old, or have a beard! I feel so disgusting, I wash every day and take showers at least 4 times a week, and if I could, I'd take one 3x a day because I feel so gross...and I try to keep my facial hair gone, even though it grows so fast, except when I have to see my doctor since she checks on it because of the pills I'm taking. I just wish that somebody would find out what is going on with me so I can get on with my life.
    Anonymous 42789 Replies Flag this Response
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