Discussions By Condition: I cannot get a diagnosis.

please help me find a diagnosis--sick for months!

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: pilatesgirll24
  • August 5, 2008
  • 00:40 AM

Hi, I'm writing with the hope that someone out there might be able to help me find the cause of my symptoms. My doctors have no idea what's going on with me. I'm a twenty-five year old female who has always been in good overall health. In the Spring of 2007, I developed bowel problems including constipation and blood, mucus, and pus in my stool. This occured after taking antibiotics. I had a colonoscopy, which came back normal except for some minor inflammation which biopsies showed were not cause for concern. Bloodwork showed no infections. Then, in late December 2007, I developed abdominal pain. The pain was acute and passed in a few days, but I still experience attacks of sometimes severe abdominal pain at times. During "attacks," my heart sometimes races and I become agitated. Then I began to have chronic painful swallowing, nausea, bloating, lack of appetite, and weight loss (I've lost about 10 pounds in the last few months, and I was 5'4", 115 lbs. to begin with). I had an upper endoscopy which showed no ulcers, and biopsies were done, which came back normal. I was also tested for celiac disease, and bloodwork was negative. Recently, however, I had a gastric emptying scan, which showed delayed gastric emptying. I've also begun to experience joint and muscle pain, tingling in my fingers and toes, cold and pale fingers and toes, red and dry patches of skin, and my heart rate has been increasing 30-40 bmp when standing. The only positive bloodwork I've had has shown increased BUN, Creatinine, and ANA levels. Does anyone has any suggestions or ideas? Thank you!!!

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9 Replies:

  • Did they test for Rheumatoid Factor, CRP, and CPK?
    dizzy lizzie 192 Replies Flag this Response
  • Thanks for the response! I just went to the doctor today, and she drew blood to test for C Reactive Protein, sed. rate, and rheumatoid factor. I'll post the results when I get them. :)
    pilatesgirll24 2 Replies Flag this Response
  • its definitly an auto amune thing, did you have your thyroid checked, by the, what kind of anti biodics are you on what were you on them for? My suspician is addisons disase or lupus
    Anonymous 42,789 Replies Flag this Response
  • Hi, I agree with the previous posters. Sounds like symptoms I have/had and I was dx with Rheumatoid arthritis. Good luck. Lymie
    Anonymous 42,789 Replies Flag this Response
  • Thanks, everyone. My doctor did tests for sed. rate, C Reactive Protein, and (I believe) rheumatoid factor, but they all came back negative. I'm totally stumped at this point. :( I have an appointment with a new GI specialist tomorrow.
    pilatesgirll24 2 Replies
    • August 12, 2008
    • 05:46 PM
    • 0
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  • Sounds like you should see a Nephrologist (kidney specialist).
    dizzy lizzie 192 Replies
    • August 18, 2008
    • 07:23 PM
    • 0
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  • Please ask your doctor to draw a metanephrine blood test, it will have to be sent to the Mayo clinic. You may have a pheocytoma, which is a rare, but usually benign tumor of the adrenal gland. It is generally cured by surgical removal. Your symptoms are textbook. Most practitioners don't look for it because it is rare. The blood test is much more effective thatn the 24hr urine test. It would be a good idea to rule this out. Look at sites related to this to learn more. Best wishes and prayers to you.
    Anonymous 42,789 Replies
    • August 18, 2008
    • 07:45 PM
    • 0
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  • What was the antibiotic you took? It may be the cause of your problems. Investigate the drug and its side-effects. I recently read about a similar case in a book called "Our Daily Meds" by Melodie Peterson.
    aquila 1,263 Replies
    • August 18, 2008
    • 07:47 PM
    • 0
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  • , and my heart rate has been increasing 30-40 bmp when standing. Sounds like you have POTS as part of whatever your condition is. I have that condition too (as part of another condition). The problem is, not many doctors even know what POTS is! (below quotes from wikipedia). POTS being a type of dysutonomia.. shows that you have some kind of malfunction going on with your autonomic nervous system (which could be caused by various other illnesses). Postural orthostatic tachycardia syndrome (often referred to as just postural tachycardia syndrome or POTS) is a condition of dysautonomia, and more specifically, orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia. This is often, but not always, accompanied by a fall in blood pressure. SymptomsThe hallmark symptom of POTS is an increase in heart rate from the supine to upright position of more than 30 beats per minute or to a heart rate greater than 120 beats per minute within 10 minutes of head-up tilt HistoryPOTS was first named and identified by Schondorf and Low in 1993, however the syndrome has been described in medical studies dating back to at least 1940 Keep us informed what happens.. depending on what else is found etc and you need to get some things ruled out first... i could have some other suggestions.
    taniaaust1 2,267 Replies
    • August 19, 2008
    • 01:14 AM
    • 0
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