I really need help here!!! Please!!!
I was born deformed - ureters were on the wrong side of my kidneys. At 2 years old they did a reuteral reimplantion placing the ureters where they were supposed to be. From a very early age I've had chronic recurring uti's, would have to be hospitalized 3 to 4 times per year to re-stretch the urethra so kidneys would not back up.
After close to 50 hospitalizations before I was 15, doctor said I was doing better. Jump to when I was 23 years old now - was diagnosed with high blood pressure (I'm not overweight, I exercise, don't smoke, drink, or do drugs). Was put on bp meds for 2 years before I weaned off of them due to it becoming too low. BP was then completely normal for another 2 years w/out meds until we became pregnant with our first child. She was born 2 months early due to bp striking (was running in the range of 228/128).
She was born in May of 1996, come January of '97 I got sick again, had to go to the ER where exploritory surgery was completed. Found appendix in upper left abdomen. Doctor had never seen anything quite like this!
I have fought sickness/weakness ever since. I'm back on bp meds, now taking gabapentin for muscle pain, cardura for the bp. My "new" doctor has now put me on Cymbalta not so much for depression but because he thinks I could have fibromyalgia (I hurt all the time, but am not skin sensitive).
He also wants further testing for Lupus. My ANA test was positve, red blood cells and lymphocites are LOW, iron level is normal so I don't have iron deficiency. He did some blood test that he believes diagnosis me with chronic fatigue syndrome due to some virus which I really don't understand that one...
Bone scan was normal but did say left kidney needs xrayed (appears to be backing up)
Had hysterectomy due to endometriosis - great to not have periods - BUT all the pain is still there!
All this and I still hurt, mainly in the lower back, pelvis. My muscles feel like they just contract right back after stretching. I'm weak, tired, and always fatigued. I get sick and achy easily.
I have to much in life to do. I can't except how I feel and I need help in what direction to go or what kind of doctor to see.
I have been to cardiologists, urologist, nephrologist, gynocologist, neurologist, and 1 rheumotologist.
I'm sick of going from one to the next and no one still able to help me.
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