Discussions By Condition: I cannot get a diagnosis.

Please help me crack the case!

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: krazyas
  • December 19, 2007
  • 07:17 AM

From 2000- 2005, I had all of these crazy symptoms and I kept going from doctor to doctor to find out what was wrong with me. Well it took five years, but I was finally diagnosed with hypothyroidism and a severe case of hashimotos disease (antibodies in the thousands.) Well, I have one symptom that developed in 2005 that will not go away- and the doctors are baffled.

Since June of 2005, everytime I do something physical, stand up, walk around, or even walk outside in the cold weather, my body temperature plummets to hypothermic levels in a matter of minutes. For example, if I vaccuum a room, by body temp will be 98.6, but after five minutes, it will drop to 96 degrees. I am then confused, disoriented, dizzy, etc.

This symptom has kept me in bed for 2 and a half years now!! I have seen so many doctors, nurses, and specialists and have had MANY tests, CT scans, ultrasounds, EKG's, and blood work done and no one can figure out what is wrong. Can someone please give me a Christmas miracle and figure out what is wrong with me? I am a 27 year old female and I have been stuck in bed since June of 05 because of this symptom!

Thanks for your time!

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15 Replies:

  • have you been checked for wilsons disease and have you also had an mri of the brain?
    Anonymous 42789 Replies
    • December 20, 2007
    • 08:24 AM
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  • Primary Hypothalamic disorder affecting thermoregulation Hypothalarnic lesion,Wernicke's encephalopathy, Spontaneous cyclic hypothermia, congenital CNS abnormalities Secondary Underlying cardiovascular, neurological or endocrine disease. Mentall illness, drug abuse, alcoholism and malnutrition may contribute. Quadriplegia, severe Parkinsonism, autonomic neuropathy (affecting efferent flow), adrenal insufficiency, hypothyroidism, Wernicke's encephalopathy, advanced sepsis, alcohol or drugs, multiple sclerosis (hypothalamic involvement) Here's a lot of homework.
    rad-skw 1605 Replies
    • December 20, 2007
    • 00:05 PM
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  • Hi! Thanks for the response! I have had 5 EKG's, an Echo, and 2 CT scans so I can rule out cardiovascular and neurological disease. I saw a psychiatrist and do not have any mental illnesses, I do not drink alcohol or do drugs, and I am not suffering from malnutrition as every blood chemistry test comes out perfect. I also do not have adrenal insufficiency, Wernickes, MS, and sepsis. The problem also does not spontaneously happen. A neurologist told me I was fine, and gave me an MRI slip for the brain to use if I felt the need to. Do you think I should get the MRI to check for hypothalmic lesions? I had 2 CT scans, so the neuro did not feel it was necessary. It's interesting that hypothyroidism is listed as a cause, as I 100 percent have that. But every doctor and endo states there is not correlation of hypothyroidism to my symptom. I always believed otherwise because thyroids control metabolism and regulate body temperature.Again~ thanks for the help!
    krazyas 6 Replies
    • December 20, 2007
    • 06:18 PM
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  • Dear Krazyas:Look into Oriental Medicine and a technique called NAET (Nambudripad Allergy Elimination Technique). I think an Oriental Medicine doctor can successfully resolve your mayor symptoms.Besides- you may want to start reading/researching on a lifestyle makeover.Our diet has a huge impact on our health. If you eat processed food, fast food, aspartame, nutra sweet, splenda, coke, diet coke, diet anything, candy bars, boxed cereal, commercial yogurt, yellow #5, french fries, iodized salt, etc- you are making uninformed decisions.And then there are the petrochemicals...what mostly everyone uses as household cleaner and personal care products. They contain synthetic hormones called Xenoestrogens- which interfere with our own hormones!Next time you see a perfectly 'healthy' man with enlarged breast- think about Petrochemicals. We put them on our skin, and they go into our blood stream.For more info:Mercola.com and Beyondhealth.com naet.comBest.Fruity.
    Eatafruit78 960 Replies
    • December 20, 2007
    • 06:34 PM
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  • Hi Fruity- Thanks for the advice! I don't eat or use anything that you listed except for iodized salt. I thought iodine was good for your thyroid?
    krazyas 6 Replies
    • December 20, 2007
    • 07:14 PM
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  • Hi Fruity- Thanks for the advice! I don't eat or use anything that you listed except for iodized salt. I thought iodine was good for your thyroid?There is huge opposition to iodized salt- it usually contains more than the iodine and it has been depleted from marine minerals that we actually need.Sea Salt, Celtic Sea Salt, Kosher Salt, Flaky Sea Salt...there are many alternatives.In the Book "Never Be Sick Again" an MIT trained chemist makes an argument against iodized salt.For the thyroid, you need fish lipids...marine lipids, primrose oil, etc. Basically Omegas. Do you eat nuts? those contain omegas fatty acids that the thyroid needs.NAET theory also stablishes that some people have developed allergies to essential nutrients- that's why when they eat healthy food they feel bloated. Your chronic fatigue might be linked to B complex problems, liver unbalance, pancreas unbalance, and pineal gland unbalance, but it is different for everyone. This is not a diagnosis, and it is most likely reversible.I belong to a team of 4 women who were also in bed 'waiting' for a miracle...the miracle happened- and now we just go around telling people how to get out of bed.May God Bless You...We support you 500% percent.Best.
    Eatafruit78 960 Replies
    • December 20, 2007
    • 07:23 PM
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  • Hi Fruity~ Thanks for the information and for the kind words. I cannot eat fish or nuts as I am now allergic to so many things. I am hoping these allergies will reverse as the hashimotos antibodies reverse. When first dx with hypo in 05, I was extremely fatigued. Now, this is not one of my big complaints. I have more hair loss and arm/leg numbness, but this is due to my thyroid levels not being in a good spot yet. I have heard alot about sea salt and I think I will look into this. I thought iodized salt helped with T4 and t3 conversion, while helping to shrink goiters that's why I used it. I really hope that I am part of your miracle team one day, as this disease has ruined my life since 2000, and this body temp problem has totally destroyed my life since 2005. Have a safe and happy holiday!
    krazyas 6 Replies
    • December 20, 2007
    • 09:18 PM
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  • Hi Fruity! I sent you a reply but I don't know where it went :confused: Anyway- thanks for the information and for the kind words! I thought that iodized salt was good for eliminating goiters and for stimulating t4 to t3 conversion that is why I used it. I have heard great things about sea salt so I think I may switch to that. Ever since 2005, I have many food allergies and I am sensitive to alot of things. Therefore, I do not eat fish or nuts anymore. But I am hoping that these allergies are eliminated once my hashimotos antibodies decline as I always loved to eat nuts. And I am luck about CFS- before I was dx hypo, I was extremely fatigued. Now my biggest complaint is hair loss, brain fog, and arm/leg numbness. However, I know that these symptoms are a direct result of being undermedicated with hypo as I am still trying to find my "sweet spot" with the meds. I hope one day I belong to your "miracle team" as I went from a perfectly healthy 20 year old to having the next 7 years of my life ruined due to hashimotos disease. I just need someone to figure out why my body cannot maintain a body temperature in cold weather or under physical conditions, so I can go on my merry way and live life! Have a happy holiday and thanks a million for the support!
    krazyas 6 Replies
    • December 20, 2007
    • 09:52 PM
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  • Hi mkor4- thanks for the reply. Do you mean Wilson's disease or Wilson's temperature syndrome? I just had my liver and kidney's checked so i dont think I am shooting towards Wilson's disease. Although I dont think I have ever had copper levels checked. As for Wilsons Temp syndrome- my T3 levels are midpoint and my body temp is 98.6 all day- except for when I do something physical. And no MRI yet because I had 2 clean CT scans of the brain. However, I think this may be the route I am shooting for. Someone recently mentioned dysautonomia. Does anyone know anything about this condition?
    krazyas 6 Replies
    • December 20, 2007
    • 10:02 PM
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  • Dear krazyas...All of your symptoms are caused from "allergic" response. The way to resolve symptoms is NAET or BioSET therapy. I had severe chronic fatigue syndrome and Fibromyalgia.I had over 70 symptomsI was sent to a psychiatristI was told I had cancer...and didn't. Someone in this forum recommended NAET. I searched locally for it and found BioSET. They are related.I've had 10 BioSET sessions and my symptoms are gone...all 70 something of them. Please consider it aas a form of treatment first. Save yourself time money aggravation and just the everyday grief of being ill. I've been there and done that.I now try to spend time here informing others on how to get well. These therapies are a form of accupressure. All I can tell you is that it worked so well for me, I will be leaving my nursing profession of 15 years to become a practicioner in '08! www.bioset.net www.naet.com read the testimonials...this will "reverse" hasimoto's...your thyroid is out of whack......and you are also building antibodies to many things causing allergies. I hope you try this.. best wishes and happy holidays!! mommy cat
    mommy cat 1654 Replies
    • December 20, 2007
    • 10:48 PM
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  • Mommy cat- Thanks for the response and for the great information. Do you think my body temperature problem is due to allergies? I'm only asking because I had no allergies when this problem started in 05. The allergies came months later. Happy holidays to you also! AS
    krazyas 6 Replies
    • December 21, 2007
    • 00:24 AM
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  • HiI meant wilsons disease but i was going to suggest wilsons temperature syndrome too but im not sure if this is a 'real" disorder.I would go for the mri,its more sensitive that cat scan.reagrding the wilsons disease-did you mean you had a liver biopsy?If you meant liver function blood tests that wont necessarily show it either will serum copper.I think its mainly diagnosed by your ceruloplasmin levels and presence of kayser-fleischer rings in the eyes but it doesnt sound like that would be it if your temperature only drops when you do something physicalhas it improved at all with the thyroid medication?
    Anonymous 42789 Replies
    • December 21, 2007
    • 10:15 AM
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  • Hello again, you are very welcomed.You are trapped in a circular argument with the allergies.What was first the chicken or the egg? Don't expect your doctor to know. In reality you are rejecting vital nutrients and that is messing up your glands. You need Fatty Acids to repair your thyroid, but if you are allergic to them, how could you repair your thyroid?Remember that allergies are mediated by specific antibodies that your body produces- but they are not produced by your thhyroid. So fixing the thyroid is not going to directly fix the allergies because thyroid is on a lower hierarchy than vital nutrients.It is tricky...vital nutrients are 'plain' and 'basic' but they are the foundation of organs working harmoniously.Your best bet is to attempt to reverse the vital nutrients allergies and once your nutrient reserve is repaired- see if you still need thyroid support. It might just go back to normal with all the right nutrients and the NAET/Bioset treatment.Mommy Cat and I are the two sickest person I ever known- :) trust me and our stories sound just like yours.I developed allergies after a round of antibiotics...it took me 3 years to touch bottom. Healthy people don't have allergies- because allergies are involved with every single condition. No matter if you are allergic to milk, egg, seafood, or perfume, polyester, microwaves, or to your children...it's all the same disease: conflict.Best.Fruity 4 You.Quote***************
    Eatafruit78 960 Replies
    • December 22, 2007
    • 06:36 AM
    • 0
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  • I'm hoping this is your miracle, though I'm not sure. But I have Lyme Disease and babesia, and it took forever to test positive for any of them. Lymenet can help you find an LLMD and a good lab. I don't recommend Quest. IGeneX is the best for testing. They found my Lyme and babesia after a decade or more. By the way, low body temperature is a given with Lyme! But don't stop there! Here's your real miracle: Google 'The Bioninitiative Report' and 'The Largest Biological Experiment Ever'. I've been sooo sick, and since you mentioned vacuuming (and thus, electromagnetic fields to the extreme), I thought I should get you to look into Microwave Sickness - Electromagnetic Hypersensitivities - Electrical Sensitivities - Electrosensitivity. I have this, too. In fact, I have every reason to believe that the telecommunications boom is making me ill with Lyme and other parasites, so if you do have Lyme and this is why your body temp drops (mine does, too!), it is likely due to overexposure to electromagnetic and/or microwave fields. I obtained a gaussmeter/RF meter and measured the fields myself. My home is two houses away from the power lines, though I believe I was initially sensitized to these fields due to a cordless phone and a cell phone. You can google 'antenna search dot com' to locate cell phone towers in your area. Yahoo has a new group called 'EMF Refugee' if you are interested in learning more about this new illness.Hello Blaze...Merry Christmas...go to NAET.com and read the testimonials!!!!! I want my testimonial on that page.There is a lot going on- but you won't find out by watching tv...My Christmas gift: I am healthy, happy, and drug free. I feel like an infinite fountain of love...I found wrong diagnosis, and I met the Doctor of Oriental Medicine on board, and I tried NAET- then I met the people here- and we became strong friends...tight.I wish you the best!actually, I should give you some more information :pAll I do now is to study crystal lattices, electromagnetic genetics, plasma crystal astro physics, bio plasma physics, and anything that comes to teach me about the world of the 'invisible'. However controls the invisible can control minds. my e mail is maribel dot jurado at g mail dot come...we can chat...you don't have to run away from magnetic fields forever- it is reversible and in the mean time porcelain, clay, and sea salt are returning technologies that can help us cope.Avoid polyesters, any esters, acrylic- because it builds more static.Take sea salt baths-- it clears the magnetic fields...gash-- I need to organize the truck pile of info I have.Ciao for now.Best.
    Eatafruit78 960 Replies
    • December 22, 2007
    • 06:40 AM
    • 0
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  • Mercury poisoning?http://zap.intergate.ca/thyroid.htmTheir is a lot of info on the web on low body temp, mercury and thyroid. Regards
    TerryG 120 Replies
    • December 23, 2007
    • 01:30 AM
    • 0
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