Discussions By Condition: I cannot get a diagnosis.

Please help me before I go insane........

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: teesie
  • October 11, 2007
  • 07:52 PM

Hi,

It may seem like i am being melodramatic but this is how i feel right now.

I have hot, burning feet, which have gradually got worse over the last few years, Ive been to so many doctors and had all sorts of blood tests done and they have concluded "there is nothing wrong with me".

This burning starts in the evening, getting to a point at night where the discomfort of the buring is unbearable and I cannot remember the last time I slept the night. this used to be an occasional complaint but now every night, there is slight swelling sometimes and often my husband will massage my feet, he comments that my feet feel like theres bubblewrap in them!!!! I have very odd "white lumps / tumors / cysts" on the soles of my feet which the doctors ive been to cannot name. Ive been to Chinese accupuncture / herbal / homeopathic and found sulphur helped for a while but now does no good.

The discomfort is now travelling past my ankels and i am terrafied that it will eventually be all over my body.

I also suffer with hip and joint pain although Im quite young.

If anyone can please help me, I am slowely but surely going loopy here and feel so alone as noone understands the discomfort I am in and friends and family now think its in my head as doctors can find nothing wrong.


Tee

Reply Flag this Discussion

9 Replies:

  • Teesie - I may be able to refer you to a natural health pro in your area if you post your state and general area. I do know some different ones around the country.
    Anonymous 42789 Replies
    • October 11, 2007
    • 11:43 PM
    • 0
    Flag this Response
  • I would strongly suggest that a dermatologist look at the lesions on your feet- could it be arsenic poisoning? That would be super-rare but something to consider. A doctor who says there is nothing wrong with you just doesn't know how to figure it out. Don't give up.
    Anonymous 42789 Replies
    • October 12, 2007
    • 04:42 AM
    • 0
    Flag this Response
  • Hi, Thank you, I live in Ireland, these lumps are not leisons,:confused: they are under the skin and only visable when i press on the soles of my feet!!!!. Even the reflexologist has never seen anything like it before.:eek: Tee
    teesie 4 Replies
    • October 12, 2007
    • 05:46 AM
    • 0
    Flag this Response
  • Plantar fibromatosis is a condition that presents with firm bumps, or nodules, that are found in the plantar fascia. The onset of plantar fibromatosis varies with each patient. The nodules are typically slow growing and vary in size and location. In some cases, the nodules may lie dormant for months to years only to begin rapid and unexpected growth. When examined under a microscope, plantar fibromatosis represents a proliferation of scar tissue; almost an overgrowth of scar tissue with in the fascia. Although the origin of plantar fibromatosis is unknown, some authors have speculated that it is a aggressive healing response to small tears in the plantar fascia. It's almost as if the fascia over repairs itself following an injury. Other authors have postulated that plantar fibromatosis is due to a congenital deformity (present at birth) or due to a history of puncture injuries to the foot. Treatment of Plantar Fibromatosis Initial treatment of plantar fibromatosis is to avoid direct pressure to the nodules. In many cases, the only pain found with this condition is when the nodule rubs on the shoe or floor. Soft inner soles and padding may be helpful to pad and cushion the nodules. When plantar fibromatosis becomes painful, most doctors recommend surgical excision of the lesions. In most cases, the surgery is performed on an out-patient basis using sedation and a local anesthetic. Most cases of plantar fibromatosis require an incision on the bottom of the foot. With a plantar incision, most doctors will require the patient to be non-weightbearing for a 3 week period of time. As a result, the surgery is not all that difficult to get through, but the recovery, and being on crutches for 3 weeks is a challenge. Another consideration with plantar fibromatosis surgery is the high regrowth rate of these nodules. Estimates of 25% regrowth are not uncommon. Subsequently, most surgeons are going to be fairly aggressive with their dissection and choice of procedures to excise plantar fibromatosis nodules I have a couple of these on the arch of the foot, but don't burn like yours do. They hurt if you step on something. Can you send us a picture?
    rad-skw 1605 Replies
    • October 12, 2007
    • 10:34 AM
    • 0
    Flag this Response
  • The sound your husband hears might be crepitus. Is it your skin that burns? or the feet. How can you stand a massage if it is the skin? If not, then I would guess either gout or peripheral neuropathy from diabetes. Gout can travel up to your ankles. Causes of Crepitus:The following medical conditions are some of the possible causes of Crepitus. There are likely to be other possible causes, so ask your doctor about your symptoms. FractureCallus formationOsteoarthritisRheumatoid arthritisCrystalline arthritisGoutOsteoarthrotic degeneration of jointAcromegalyMarfan's syndromeEhlers-Danlos syndromeJoint traumaChondromalacia patellaeHydrarthosisTenosynovitisBone tumorSyphilitic lesion on skull boneHydrocephalusCraniotabes
    rad-skw 1605 Replies
    • October 12, 2007
    • 11:03 AM
    • 0
    Flag this Response
  • Plantar fibromatosis is a condition that presents with firm bumps, or nodules, that are found in the plantar fascia. The onset of plantar fibromatosis varies with each patient. The nodules are typically slow growing and vary in size and location. In some cases, the nodules may lie dormant for months to years only to begin rapid and unexpected growth. When examined under a microscope, plantar fibromatosis represents a proliferation of scar tissue; almost an overgrowth of scar tissue with in the fascia. Although the origin of plantar fibromatosis is unknown, some authors have speculated that it is a aggressive healing response to small tears in the plantar fascia. It's almost as if the fascia over repairs itself following an injury. Other authors have postulated that plantar fibromatosis is due to a congenital deformity (present at birth) or due to a history of puncture injuries to the foot. Treatment of Plantar Fibromatosis Initial treatment of plantar fibromatosis is to avoid direct pressure to the nodules. In many cases, the only pain found with this condition is when the nodule rubs on the shoe or floor. Soft inner soles and padding may be helpful to pad and cushion the nodules. When plantar fibromatosis becomes painful, most doctors recommend surgical excision of the lesions. In most cases, the surgery is performed on an out-patient basis using sedation and a local anesthetic. Most cases of plantar fibromatosis require an incision on the bottom of the foot. With a plantar incision, most doctors will require the patient to be non-weightbearing for a 3 week period of time. As a result, the surgery is not all that difficult to get through, but the recovery, and being on crutches for 3 weeks is a challenge. Another consideration with plantar fibromatosis surgery is the high regrowth rate of these nodules. Estimates of 25% regrowth are not uncommon. Subsequently, most surgeons are going to be fairly aggressive with their dissection and choice of procedures to excise plantar fibromatosis nodules I have a couple of these on the arch of the foot, but don't burn like yours do. They hurt if you step on something. Can you send us a picture? Thank you..... I am enclosing a pic of the most visable lumps, the rest are only visable when I press on the skin. I have had diabetis/vitamin b etc etc blood tests and all negative. Thank you all. Tee
    teesie 4 Replies
    • October 15, 2007
    • 08:53 AM
    • 0
    Flag this Response
  • Thank you..... I am enclosing a pic of the most visable lumps, the rest are only visable when I press on the skin. I have had diabetis/vitamin b etc etc blood tests and all negative. Thank you all. TeeNeuropathy doesn't cause bumps from what I understand. But it does cause burning feelings in feet and hands; at least that is what I get with neuropathy.Which tests for diabetes have you had? There are a variety of tests for diabetes. From a simple fasting sugar test and a random glucose tests to tests that can show your blood sugar level average for an extended period of time. More than one test (repeated tests) is usually needed to diagnose diabetes; so it may not be completely ruled out yet. Depends on all the other tests you have had or will have, and what symptoms you have had or will have in time.BTW I had a childhood friend that was on my soccer team (13-15 yrs old) who had strange bumps in her foot. They turned out to be some sort of mushroom things growing inside the foot, and you could see it through the skin. Very painful and yucky to look at. She ended up quitting sports because of the fungi infections growing in her foot.BTW Have you had your feet and legs scanned by an MRI? You said the pain is getting higher... maybe a scan of the area is needed now? JAT
    Anonymous 42789 Replies
    • October 15, 2007
    • 04:08 PM
    • 0
    Flag this Response
  • Yow girl, you do have lumps. Hardened Lumps. About twenty five present of rheumatoid arthritis patients develop hardened lumps under the skin. These hardened lumps are called rheumatoid nodules. Development of hardened lumps usually develops in the later course of the disease. Often times, the nodules are found on bony sites such elbows, hips, heels, and back of the head. However, they can also form under the skin in the finger, toe or heel pads, or in tendons. Hope this helps
    rad-skw 1605 Replies
    • October 16, 2007
    • 10:05 AM
    • 0
    Flag this Response
  • Thanks everyone, I decided to ring a specialist in london and forward him my pictures, he has finally given me some explainations, although without seeing me he cannot give "a 100%" diagnosis he believes he knows what is wrong with me, I have also taken the advice given to me here and going for new blood and urine tests for diabetis as my dad has it. So anyway, the specialist believes I have Piezogenic pedal papules "the lumps on my feet" and from all of the symptoms presented he also believes the burning I have is peripheal neuropathy hense going for all the tests again. but neither symptom is related. So guys thanks you've been great, youve given me the confidence to tell these doctors and specialists that this is not in my head and demanding to be taken seriously which now seems to be working. Thanks and Sláinte Tee
    teesie 4 Replies
    • October 16, 2007
    • 05:08 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.