Discussions By Condition: I cannot get a diagnosis.

Please help me!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: altheticguy
  • July 29, 2010
  • 00:52 AM

I very much hope that I can get some feedback regarding my medical problem. Several months ago I began to feel an increasing pain and weakness in the muscles of both arms and legs. At that time I believed it was from over-exerting myself from working out. But, the pain grew so much that I finally visited my primary doctor. My doctor placed his hands on my legs and asked me to press to move his hands, however when I struggled he was very shocked. He did not indicate to me what I had, but told me to follow up with a neurological test. Later, my doctor told me that the result from the test indicated that I had carpal-tunnel. I told him that I disagreed with his opinion (He, later told me that I had a strained ligament!). Anyways, he prescribed me prednisone which was wonderous as far as taking my pain away! I could finally sleep, and I did not toss and turn all night because of the arm and shoulder pain, and I could also stand up without pain! Well, when the prednisone script ran out my doctor refused to write another script for prednisone, and had me try several types of anti-inflammatories, all of which did not help take any pain away. At this point I was very desperate. I took some prednisone from a friend, which I admit was a bad idea, but again the drug made me feel normal again - I could sleep, exercise, and not have the pain pre-occupy the entire day/night! When, I saw my doctor last week he did prescribed me prednisone, and of course was very helpful with my symptoms. I titrated the dose from 40mg/day to 10mg/day. But, as I'm almost out of the drug, I'm beginning to feel the discomfort in my arms and shoulders, and I'm very concerned about how I will cope with the pain when it returns. Can anyone advise me of the correct medical specialist to see, or any ideas of what I have, and alternatives to prednisone? I appreciate any feedback! Thank you! Tony My email is: phalanx367@hotmal.com

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2 Replies:

  • Other than having neurological tests, have you actually seen a neurologist? I have MS, and when I have pain prednisone or IV steroids help. It's easy to diagnose: it just requires an MRI and a spinal tap. I'd recommend doing the MRI first, because why deal with a painful spinal tap if you don't have to. Also, if you do get a spinal tap, be sure to have not taken the prednisone for at least a week. Steroids prevent your body from healing as quickly as it normally would, and I can tell you from experience, you spinal fluid will continue to leak (VERY painful) long after the spinal tap if prednisone is still in your system. I pray you do not have MS, but whatever your diagnosis, you'll learn to dig deep to find the courage to get through it!
    Anonymous 42789 Replies
    • November 29, 2010
    • 06:03 PM
    • 0
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  • Hi, thank you very much for taking the time to write me a letter of support! I did have a MRI which only indicated that I have carpal tunnel. But, I did not understand carpal tunnel with the symptoms. So, I met with a neurologist in which he gave me an initial diagnosis of, polymyalgia-rheumatica. He did not agree with carpal tunnel. He continued to prescribe me prednisone, thank-goodness. He, then linked me to a rheumatologist which he knows, and recommends very highly. So, I'm scheduled to see this doctor in January. Regarding the prednisone, I only take the lowest therapeutic dose possible (10-15mg/day), and at times I don't take it for a few days, and only go back on it when the muscle pain gets too much, then I return to the drug.But, I really wish you the best, and hope that sometime soon we find a cure for your condition!
    Anonymous 42789 Replies
    • December 5, 2010
    • 08:46 PM
    • 0
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