Discussions By Condition: I cannot get a diagnosis.

please help me?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: astraight714
  • March 19, 2011
  • 03:20 AM

:(
Hello, my name is Alicia. Since the begining of October, 2010 I have had severe headaches resembling migraines. I would go to the er and all they would do is medicate with flexeril and vicodin. At one point I had a ct scan and a hemmorhage was ruled out. I went to a neurologist and he put me on topamax. when I finally got to the dose he wanted me on, my face went numb, my lip drooped, and i started drooling on myself. (200mg a day). He decided to just refer me to pain management. Now, I am on lortab and sometimes have to take 3-4 a day (10mg hydrocodone, 500mg acetomeniphen) When I went back to see him to request scans because I was sick of being scared and hoping that one of the 3 doctors I see, he yelled at me. Allow me to explain the othr issues.
I also have joint pain that I can't seem to get any doctor to listen to. My hands shake, slightly, at all times; sometimes when I move my eyes, they hurt; I have problems formulating verbal sentences; also, previously I had a preliminary diagnosis of partial epilepsy without intractable epilepsy. basically, I have problems with my eyes at times. Colors get inverted and objects do a mirror image thing in the odd coloring. Obviously, this induces a panic attack. In early 2009 I had an mri and a eeg. both came back without anything out of the margin of "abnormal", as I am told. this was over a year before the headaches started.
An added note is that I have never had the pleasure of even a "normal" headache beforehand. I am a mother of a 4 year old and I had him vaginally, if this helps. the anesthesiologist (sp?) missed the dural space at least 3 times.
I am also a 24 year old, not severely overweight, but I could lose at least 15 pounds? I am a smoker.

medical background of my faily includes: high cholesterol, both high and low blood pressure, my father has rheumatic arthritis, a form of diabetes (as do several others in my family) and a history of gout, my younger, half sister has many problems including a veinous annomaly in her brain that is the equivalent of an aneurysm and a pulmonary embolism (blood clot in lung). My mother has MS and a severe potassium deficiency.

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  • I share a lot of your symptoms. Almost ten years ago I started getting severe migraines along with a noise in my ear and problems with the function of my hands. I now have cognitive problems like you describe, with slurred speech and inability to finish sentences or use correct words. These symptoms seem to come and go, but lately they have been getting worse and sticking around longer. Topamax had the same effect on me. They never found a treatment for my headaches, just kept trying me on beta blockers, anti-depressants, everything, until I finally gave up. When the cognitive stuff got bad, I went back to the doctor and was sent to a psychiatrist to get diagnosed with ADD. Here I am, years later, getting worse. I'm in the same boat. Tests keep coming back normal. Fortunately, I'm at the stage where if things keep coming back normal then eventually it's going to point to some big thing causing all of it, like MS. Did they do your MRI w/contrast dye? :(Hello, my name is Alicia. Since the begining of October, 2010 I have had severe headaches resembling migraines. I would go to the er and all they would do is medicate with flexeril and vicodin. At one point I had a ct scan and a hemmorhage was ruled out. I went to a neurologist and he put me on topamax. when I finally got to the dose he wanted me on, my face went numb, my lip drooped, and i started drooling on myself. (200mg a day). He decided to just refer me to pain management. Now, I am on lortab and sometimes have to take 3-4 a day (10mg hydrocodone, 500mg acetomeniphen) When I went back to see him to request scans because I was sick of being scared and hoping that one of the 3 doctors I see, he yelled at me. Allow me to explain the othr issues.I also have joint pain that I can't seem to get any doctor to listen to. My hands shake, slightly, at all times; sometimes when I move my eyes, they hurt; I have problems formulating verbal sentences; also, previously I had a preliminary diagnosis of partial epilepsy without intractable epilepsy. basically, I have problems with my eyes at times. Colors get inverted and objects do a mirror image thing in the odd coloring. Obviously, this induces a panic attack. In early 2009 I had an mri and a eeg. both came back without anything out of the margin of "abnormal", as I am told. this was over a year before the headaches started.An added note is that I have never had the pleasure of even a "normal" headache beforehand. I am a mother of a 4 year old and I had him vaginally, if this helps. the anesthesiologist (sp?) missed the dural space at least 3 times.I am also a 24 year old, not severely overweight, but I could lose at least 15 pounds? I am a smoker. medical background of my faily includes: high cholesterol, both high and low blood pressure, my father has rheumatic arthritis, a form of diabetes (as do several others in my family) and a history of gout, my younger, half sister has many problems including a veinous annomaly in her brain that is the equivalent of an aneurysm and a pulmonary embolism (blood clot in lung). My mother has MS and a severe potassium deficiency.
    TAtkins 5 Replies Flag this Response
  • I share a lot of your symptoms. Almost ten years ago I started getting severe migraines along with a noise in my ear and problems with the function of my hands. I now have cognitive problems like you describe, with slurred speech and inability to finish sentences or use correct words. These symptoms seem to come and go, but lately they have been getting worse and sticking around longer. Topamax had the same effect on me. They never found a treatment for my headaches, just kept trying me on beta blockers, anti-depressants, everything, until I finally gave up. When the cognitive stuff got bad, I went back to the doctor and was sent to a psychiatrist to get diagnosed with ADD. Here I am, years later, getting worse. I'm in the same boat. Tests keep coming back normal. Fortunately, I'm at the stage where if things keep coming back normal then eventually it's going to point to some big thing causing all of it, like MS. Did they do your MRI w/contrast dye? odd, I too have been diagnosed with ADD, however mine was in childhood. from time to time I also hear ringing.. and sometimes something like a groan that seems to mimic my heart beat. I am on Lortab and Amitriptyline (not for ADD because I refuse to take the meds for it. I'm not convinced the drugs work.)Some added information about me was for a few years, I was constantly on speed, another couple of years to cocaine, marijuana on and off, and a lot of years to alcohol. I have recently cut out the alcohol mostly because it exacerbates my pains. I also have had back problems since I was 9. we'll just chalk it up to a rough childhood. My joints ache, constantly, especially my knees. My hands go numb for no reason, same as my feet. My legs lock up, sometimes... Sometimes I have to hold on to something or I do fall. the mri was just an mri and I had to fight my doctors "tooth and nail" to get this far. I suppose I could request it? when they were checking for seizures (which is what they call the eye disturbances) they did an eeg, yet told me not to go sleep deprived. I believe I have the worst doctors because I also have state provided medical.
    astraight714 2 Replies Flag this Response
  • It's best to rest in a quiet, darkened room - try to sleep if possible. Try applying a hot or cold compress, such as ice or a bag of frozen peas, wrapped in a towel, to your head. Don't apply ice directly to your skin because you could damage your skin. Applying pressure to the pulse points on the side of your forehead or neck may also help.
    mariya 1 Replies Flag this Response
  • It's best to rest in a quiet, darkened room - try to sleep if possible. Try applying a hot or cold compress, such as ice or a bag of frozen peas, wrapped in a towel, to your head. Don't apply ice directly to your skin because you could damage your skin. Applying pressure to the pulse points on the side of your forehead or neck may also help. I try to do those things. I am a full-time student and full-time mom. Ice hurts more, as does any cold items. heat works better for it, but not for long. I just want it all to go away. I cannot handle the constant headaches. They are driving me insane!
    astraight714 2 Replies Flag this Response
  • Hello Astraight,In my previous post I had informed lots of thing. Please try to do that. Any other item will not work other than ice. If you will not found any help from these things. Then please consult to the doctor. He will suggest you the better option.
    Anonymous 42789 Replies Flag this Response
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