Discussions By Condition: I cannot get a diagnosis.

Please help me!!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Quinsmommy
  • May 14, 2009
  • 03:31 PM

My son is 4 months old and has had problems with vomiting and severe stomach pain since birth. At first he was gaining well so the docs didnt think it was anything bad. When he hit 3 months old he stopped gaining weight and started losing. He had surgery 4/23/09 for Pyloric stenosis but it wasnt the problem. He then had an endoscopy and a stomach biopsy on 5/8/09 and i was told he had Delayed gastric motilitly, severe acid reflux, and Milk Soy Protein Intolerance. He is now completely tube fed (on a continuous drip due to the vomiting) at 33ml an hour. He is still having problem with having spurts of severe pain and the doctors hust arent helping....! From the begining they have told us that none of his symptoms are presenting like anything they have seen before... what could be wrong??? He is fully tube fed and still isnt gaining weight! Im at my wits end and dont know what to do anymore! I cant just keep taking him to the childrens hospital, and its obvious that they cant figure it out seeing as how we have been up there for 2 out of the last 4 weeks.:confused:

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2 Replies:

  • Poor baby & mommy! If your baby isn't presenting usual symptoms, then perhaps it's time to think about rare things, like genes. Ask to have a geneticist join your team of doctors. Sometimes that helps.
    aquila 1263 Replies Flag this Response
  • Has he been tested for celiac disease or cystic fibrosis. He may need pancreatic enzymes to help him digest his food better or he could be allergic to something in the formula. How are his stools?
    Anonymous 42789 Replies Flag this Response
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