For the past ten months now, I've been going back and forth to different hospitals and doctors, trying to find out what is wrong with me. I just turned 18 years old in mid-June, and no doctor has any ideas as to what is wrong, much less how to cure me.
In early March 2007, I had symptoms of what appeared to be a common cold (coughing, head congestion, etc.). Of course, I brushed it off. By the end of March, I lost the vision completely in my right eye. I began having awful headaches, nosebleeds, and tingling in my hands and feet. I went to The Mayo Clinic in Jacksonville, Florida, and they insisted on optic neuritus, though my optic nerve was not swollen. I was given multiple MRIs, and they all came back clear. I was given a spinal tap in mid-April, which showed that my pressure was borderline high. The doctor gave me Diamox for the pressure. I began throwing up everything I ate and drank, had a yellow tint to my skin, and the headaches, tingling, and nosebleeds were still persistent, as well as the symptoms of the cold. The doctor assumed it was just side effects of Diamox, so he took me off it. I still kept throwing up, and proceeded to gain over 50 pounds, which no doctor could explain. I've been to multiple eye doctors, and all of them have told me my eyes are healthy. I got my vision back in mid-May, and it came back 20/20. I've always worn glasses, so that came as a shock. In early June, my right eyelid began drooping on occassion, just randomly. I could not close it or open it, it just stayed half-closed for a few hours. My vision in the right eye went away again in early July, just to come back in August. I haven't had any more trouble with loss of vision, but my eyelid does still droop once every two weeks, for a few hours. I had another spinal tap done in November, and the pressure is even higher. No doctor has given me any answers as to what is happening, and it's been ten months since this all started. I've gotten a few new symptoms over the past few months, which I will list altogether. I hope someone can give me an idea as to where to turn now, and possibly what to ask the next doctor about.
Nosebleeds (heavy, occuring at least twice a day)
Headaches (almost as bad as migranes, just light doesn't bother me)
Tingling/numbness (occurs mostly in hands/feet, sometimes legs/arms/neck/back)
Vomiting (every night, no matter what gets eaten; tried acid reflux pills, which did not work)
Yellow tint to skin (happens about twice a month, lasting a few days)
Weakness (some days I don't have the strength to get out of bed, or even sit up)
Back/neck pain (sharp pain, occurs randomly; turning head/neck different ways does not effect when the pain will occur)
Coughing/head congestion (I find it hard to imagine a common cold could last ten months...)
Blotchy skin (this occurs every few days, with no apparent cause)
Fainting (this happens when I'm out in the sun for more than ten minutes, which never happened before; not dehydration, I make sure I have plenty of fluid; temperature does not effect fainting)
Trouble remembering things (I've never had this problem before; I find it hard to remember almost everything, so I must write things down; I've never heard of an 18 year old with memory loss)
Fever (about twice a week I get a fever which lasts for hours)
If you have any ideas, I would really appreciate the help! I don't know how to deal with this, or what the next step is. I've only gotten worse since this started, and it's been highly frustrating.
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