Discussions By Condition: I cannot get a diagnosis.

PLEASE HELP-Low Potassium

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • February 12, 2011
  • 04:33 PM

I am 33 yr old WF who has been dealing with low potassium for years but more seriously for the past two years. I have passed out 4 times and when waken cannot move my body due to muscle weakness. I was told by three different specialist I had TIA (Mini Strokes) but now I think it was severe low potassium. I have always been very athletic playing sports year round through my years of school and played college basketball-since graduation I have always played softball and general excersie. Now, even with postassium supplements, I cannot go up a flight of stairs or run to first base without feeling like I have ran a marathon. It feels like my muscles are dying. I often wake wihtout being able to move my body or If I am able I am in pain or I am very, very weak. My legs hurt ALL the time and now my arms are starting to hurt the same way. I feel like I am 80 yrs old. I am sick of this and want some answers. My doctor does not seem to want to find the cause of my body not having the ability anymore to retain potassium and just keeps writting a prescription fopr more supplements of potassium at 1500 mg twice a day. I do not want to live like this anymore-I have two children 9 yrs and 7 yrs and I am their softball and basketball coach for thier recreation teams but I have to give that up now b/c I can't stand for very long. Some days are better than others. But even on good days I have to come home from work and take a nap as I am soooo exhausted. I have had heart palpatations (feels like my heart is jumping or stopping and starting rapidly), muscle cramps, muscle weakness, exhaustin (all the time), constipation, leg pain-all the time. I also get migraines and sometimes virtigo with the migraines and I have found that this goes along when my potassium levels are low. I was diagnosised with hyperparathyriodism in 2004 but had surgery to remove the abnormal parathyriod and no longer have problems with that. I NEED HELP! PLEASE, someone, tell me what kind of doctor can help me?

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4 Replies:

  • Nephrologist?Could be Bartter syndrom or Gitelman syndrom.
    Anonymous 42789 Replies
    • February 18, 2011
    • 01:24 PM
    • 0
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  • There is a lady on this site that speaks of B12 hook up with her and find out if this causes your problems, she wrote a book on it. Sure hope she can help you.
    Anonymous 42789 Replies
    • February 20, 2011
    • 05:14 AM
    • 0
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  • I am 33 yr old WF who has been dealing with low potassium for years but more seriously for the past two years. I have passed out 4 times and when waken cannot move my body due to muscle weakness. I was told by three different specialist I had TIA (Mini Strokes) but now I think it was severe low potassium. I have always been very athletic playing sports year round through my years of school and played college basketball-since graduation I have always played softball and general excersie. Now, even with postassium supplements, I cannot go up a flight of stairs or run to first base without feeling like I have ran a marathon. It feels like my muscles are dying. I often wake wihtout being able to move my body or If I am able I am in pain or I am very, very weak. My legs hurt ALL the time and now my arms are starting to hurt the same way. I feel like I am 80 yrs old. I am sick of this and want some answers. My doctor does not seem to want to find the cause of my body not having the ability anymore to retain potassium and just keeps writting a prescription fopr more supplements of potassium at 1500 mg twice a day. I do not want to live like this anymore-I have two children 9 yrs and 7 yrs and I am their softball and basketball coach for thier recreation teams but I have to give that up now b/c I can't stand for very long. Some days are better than others. But even on good days I have to come home from work and take a nap as I am soooo exhausted. I have had heart palpatations (feels like my heart is jumping or stopping and starting rapidly), muscle cramps, muscle weakness, exhaustin (all the time), constipation, leg pain-all the time. I also get migraines and sometimes virtigo with the migraines and I have found that this goes along when my potassium levels are low. I was diagnosised with hyperparathyriodism in 2004 but had surgery to remove the abnormal parathyriod and no longer have problems with that. I NEED HELP! PLEASE, someone, tell me what kind of doctor can help me?Asap you should see a Cardiologist and Neurologist and get an Echocardiogram,ECG and Nerve Conduction Studies.Are you taking any diuretics or anything else?Did you have this problem before you had the parathyroid surgery?Apart from the constipation,do you have any other gastrointestinal symptoms?What are your kidney function tests,aldosterone levels,magnesium levels, and calcium levels like?Are your periods normal?How many time do you urinate?Do you have any endocrine symptoms etc.
    wdiagnosis1 33 Replies
    • February 22, 2011
    • 06:52 PM
    • 0
    Flag this Response
  • I am 33 yr old WF who has been dealing with low potassium for years but more seriously for the past two years. I have passed out 4 times and when waken cannot move my body due to muscle weakness. I was told by three different specialist I had TIA (Mini Strokes) but now I think it was severe low potassium. I have always been very athletic playing sports year round through my years of school and played college basketball-since graduation I have always played softball and general excersie. Now, even with postassium supplements, I cannot go up a flight of stairs or run to first base without feeling like I have ran a marathon. It feels like my muscles are dying. I often wake wihtout being able to move my body or If I am able I am in pain or I am very, very weak. My legs hurt ALL the time and now my arms are starting to hurt the same way. I feel like I am 80 yrs old. I am sick of this and want some answers. My doctor does not seem to want to find the cause of my body not having the ability anymore to retain potassium and just keeps writting a prescription fopr more supplements of potassium at 1500 mg twice a day. I do not want to live like this anymore-I have two children 9 yrs and 7 yrs and I am their softball and basketball coach for thier recreation teams but I have to give that up now b/c I can't stand for very long. Some days are better than others. But even on good days I have to come home from work and take a nap as I am soooo exhausted. I have had heart palpatations (feels like my heart is jumping or stopping and starting rapidly), muscle cramps, muscle weakness, exhaustin (all the time), constipation, leg pain-all the time. I also get migraines and sometimes virtigo with the migraines and I have found that this goes along when my potassium levels are low. I was diagnosised with hyperparathyriodism in 2004 but had surgery to remove the abnormal parathyriod and no longer have problems with that. I NEED HELP! PLEASE, someone, tell me what kind of doctor can help me?The fatigue and the "muscle spasm" are what I deal with. I have Fibro, but I would eliminate everything else, because it could be MS or something else. Fibro is only found through getting rid of the other "dangerous" diseases like Huntington's disease.
    jackrorabbit 113 Replies Flag this Response
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