I want to give as much information as possible so if there is something I do not write, ask and I will provide as much information as I can.
Two years ago, I was in a car accident hit from behind while stopped. After, test after test the best they came up with was ataxia and post-concussion syndrome. I initially refused medical tx on scene and later my husband took me to the emergency room and I said I was fine and promptly discharged. I followed up with my PCP who said I failed every neurological test and sent me to a hosptial that dealt with neurology I guess. I was admitted but going to be sent home until my doctor spoke with the er, even though she sent me with the paperwork. Anyway, after being evaluated by a neurologist consult I was admitted and stayed a few days and sent to follow up with a movement d/o clinic. Anyway, eventually I got a dx of mild traumatic brain injury and basically now I just suffer horrible migraines with most medications failing to have any effect including imitrex injections. The only thing that somewhat touches the pain is fioricet and I take phenegran or zofron for the nausea.
I am f/28 y/o and about a year and a half ago had a positive TB test with negative chest x-ray. I work in mental health and had frequent contact with hospitals, jails, homeless shelters, state hospital and I worked at a clinic with homeless/forensic type of consumers. Before this I had tested positive for mono and I knew what it was because I had it when I was 18 y/o.
Nonetheless, it took me several weeks to get the test results back for mono so I kept working and worked through the whole period. Everyone around me would get sick like cough, strep throat and those sorts of things. I did not but when the strep throat went aroun I got horrible pain in the bones of my feet and a rash which was given a dx of a strep infection. I have not had a cold in years but everyone around me will get sick with like strep throat and the above mentioned. I have not got the flu either.
Current Issue- I was pregnant, had my baby 8 months ago with no complications. I weighed close to 190lbs pregnant and pre-pregnant 150 maybe. I am 5'8. I lost some weight maybe five pounds or so because I gained some back after breastfeeding my son for three months. In June I weighed 173 lbs and than around July or August suddenly started to drop weight quickly and at first 20 lbs a month or so and now we are in November and I am about 108 lbs and still losing. A size o is too big and you can see every rib on me. At some points it slows down and than will pick back up. It seems the more I eat the more I lose. I drink a instant breakfast every morning (carnation) for the extra nutrients plus snack and meals throughout the day. I had a lump on my upper abdomen, I guess and when I weighed more they thought it was a hernia and did a CT with that dye drink but everything was "essentially normal". Next time, due to the weight loss it was my aeorta that they said they could feel but it was that way in skinny people. Finally, sent to a gastrointenologist (sp?) who said it was probably abdominal seperation. Anyway, so far has done an edoscopy with not much found, still awaiting biopsies but will probably be normal and the only thing was some mild errosion in the stomach. I am scheduled for a colonoscopy but the medication given (max amount I guess did not knock me out). Same issue with Novicane with the dentist could not numb prior to pregnancy and sent to a specialist dentist and I forget what they are called.
The neurologist had tried Nortriptyline for my migraines and my heart rested at 160 I believe and quickly pulled off. I had another recent incident at an er visit (drug reaction-unknown) where the EKG states unconfirmed dx and borderline qt waves.
Okay, my lab work has all been normal and stool samples (yuck). The only thing is that even though in range and with the amount of sugar I eat my glucose has been like 68 or 73. When I was breastfeeding I am not even kidding I would drink three gallons of milk a week which was odd since this is my second child and I never did that before but who knows may be normal.
At work, I get told how pale I look etc. I feel good or okay, increased energy, do not require much sleep and nothing works to help me sleep so I gave up with even trying. I am super sensitive typically to any medication but not right now. I do take dexostrat for concentration but have now only been taking it when i need to focus. Prescribed for the mild traumatic brain injury and I take the fioricet and phengran or zofron PRN.
My brother came to visit around the same time I started to lose weight and he was losing weight but not as drastically. He is having simikar sx'x still except with joint pain and they have been unable to dx him.
I cannot afford to lose anymore weight, I look horrible but no hair loss etc just pale. I did get something on my fingernail that is eating away at it and it is green or yellow (depends on the week) and was told to dip in part water/bleach and use lamisil but it just gets worse but does not spread to other nails. People around me are expressing serious concern and have even asked my husband if I am dying. I do not know where to go from here and any suggestions would be helpful. Please I am desperate and even willing to go out of state etc for medical care. My mom does have graves disease and dad diabetes. Thyroid tests for me have been normal. I no longer provide direct care in the community and still work in mental health just more an admin type of job. The only exposure I have to hospitals is when I occasionally have to go to are psychiatric emergency rooms which is solely a hospital for that purpose.
I do smoke (not much) but started probably August and basically just at work. I do not drink etoh as I am too sensitive or was but still do. I drink two caffeniated drinks a day unless I work as my shifts tend to sometimes go over twelve hours but basically I work two days a week and full-time mom as well.
Please help me, direct me or any advice would be so appreciated as I cannot seem to get care coordinated. I do not have that much more weight to lose at my height.
Thanks for listening
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