Discussions By Condition: I cannot get a diagnosis.

PLEASE HELP! I'm scared doctors think it's mood related, I don't

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: dfowler1976
  • February 23, 2009
  • 07:15 PM

My symptoms initially: this all started 4 1/2 years ago where suddenly one day, and over a 2 month period I lost alot of my memory and
learning abilities, while this happened I heard voices. and from than on I've been suffering ever since. Here are my current symptoms.
They fluctuate but most of these I still have to some degree. My symptoms pretty much never go away, and they're there 24/7.
Seems chronic. Can't work right now ,let alone get out of bed. Some of my memory and learning abilities have come back but since last
year it's plataued.

Cognitive Difficulties

-terrible short, short to long term memory. (struggle with reading retension, remembering clearly past events, and in general information)
-difficulty "thinking ahead" and get lost in middle of sentences
-learning deficit, (takes many times longer to learn new concepts and sometimes I never learn them)
-fogginess of thought (this varies)
-sometimes have trouble remembering words
-head feels like it's filled with concrete. Feels that only a small part of my brain is in use.
-feel blank mentally (like few thoughts are going through my head at given moment)
-trouble learning more than one thing at a time
-I have dreams where I'm brain damaged, and I feel brain damaged while I'm dreaming it.
-feels like brain damage
-cant hear thoughts in head very well (very soft)
-used to hear voices
-used to harbor delusions

Mood and other physical symptom difficulties

-anhedonia (I feel unemotional and uninspired. Nothing is fun or interesting anymore. Very rarely do I enjoy something.)
-I don't get as tired as I used to. takes long time to get to sleep. But when I do I sleep fine, but sometimes not.
frequently wake up
-flat affect, (goes up and down)
-feel like a copy of a copy sometimes
-feel 2 dimensional (often feel like a robot) can'y cry and barely get sad, loss of emotion
-sometimes feel lightheaded and feel faint
-low libido, (often can't ejaculate)
-for a while had decrease in vision.(got better)
-little to know alcohol effect (I find this bizarre)
-brain supplements and psychotropic drugs don't seem to work
-feel disconnected from senses and often reality (don't feel like I'm getting the whole human experience.)
-lots of anxiety!
-no energy most of the time (feel really run down and terrible)
-sometimes feel lightheaded like I'm going to faint, (almost did once. Doesn't seem like schizo-affective to me!)
-general intense uncomfortability (which is somewhat different than feeling anxious imo)
-few thoughts in head at one time (can't stress this enough)
-feel faint buzz in my ear (used to be louder)

Panic symptoms

-whole chest gets warm
-heart pounds
-a couple of times I got the terrible sensation of my whole brain dying. I got tunnel vision, everything went darker and felt like some
force was trying to kill my brain. Hard to describe but very painful, and very scary.

what about electromagnetic radiation poisoning from cell phones? What about a dual diagnosis? My current Psychiatrist, who once told me
I had Schizo-Affective Disorder, now says do to the fact that I no longer hear voices, or have delusions, thinks maybe I have symptoms of a
mood disorder. But such a RAPID decrease in memory and cognition over a 2 month period doesn't seem like this is a mood disorder nor Alzheimers ,
but maybe something neurological? What about early onset Alzheimers? Other dementia? Do you think the cognitive problems and panic attacks
are related? It doesn't feel like a mood disorder. In the last month my flatness has gotten worse while my cognitive problems have
remained stable and maybe better. But I it's almost impossible to learn hard stuff and don't' think I could go back to school now. I also
can only think of a few things at once as opposed to a plethora of things.

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8 Replies:

  • no I don't live near cell towers. But I'm addicted to cell phone use. But plenty of other people are too and they don't have my symptoms? Could I have a special sensitivity to electromagnetic fields?Devon
    dfowler1976 3 Replies
    • February 24, 2009
    • 00:49 AM
    • 0
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  • according to the first article I would have to be noticeably sensitive and reactive around EM radiation, which I'm not. So I don't think this is the correct diagnosis. But thanks!Devon
    dfowler1976 3 Replies
    • February 24, 2009
    • 01:09 AM
    • 0
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  • Okay, I've carefully reviewed your symptoms and would ask why you would not consider your symptoms to be due to significant clinical depression with brief psychosis? It is a textbook presentation. Your symptoms would not be suggestive of any of the insidious neurodegenerative diseases such as Alzheimer's. Early onset Alzheimer's disease has a very pronounced and rapid course, with certain modalities of cognition being affected in very characteristic patterns that do not appear among your symptomatology as described. My impression based upon the information cited is again, significant clinical depression with former brief psychosis. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • February 25, 2009
    • 01:23 AM
    • 0
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  • Hi Jay! Thanks for the reply. I'm a little confused because you said Alzheimers takes a "rapid course." I thought Alzheimer's was a slow degenerative disease. Incidently my symptoms came on in a day and every doctor and health expert I've talked to has told me that's just too fast for AD to progress., And that AD takes years if not months to progress.I'm now starting to be able to rule out EOAD, other forms of dementia and the Prion diseases.Any other insight would be great!thanks,Devon
    dfowler1976 3 Replies
    • February 25, 2009
    • 01:34 AM
    • 0
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  • Your symptoms make me think of my father who has schizophrenia. He gets some symptoms which feel very real to him.. eg light headedness about to pass out feels. Memory issues, on and off delusions, hearing buzzing sounds etc etc (basically all the symptoms you put there). So dont doubt that things like light headness can be caused by mental illness.
    taniaaust1 2,267 Replies
    • February 26, 2009
    • 10:41 AM
    • 0
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  • Early-onset Alzheimer's disease is almost exclusively familial in origin and strikes persons typically in their mid early to mid-40s. This particular variant is not insidious but rather rapid by comparison to the more traditional form of Alzheimer's disease. Early onset AD can produce dramatic neurodegeneration within 1 to 2 years. Realize that Alzheimer's is not a single form of the disease, but many variants. Again, I see nothing of your symptoms to suggest a neurodegenerative disease. Rather, my suggestion is that your symptomatology is extremely consistent with clinical depression and if the onset was truly one day, then PTSD would not be out of the question if a precipitating event occurred immediately prior to the onset. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • February 27, 2009
    • 01:07 AM
    • 0
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  • Sounds like Schitzophrenia with a combination of depression/anxiety disorder. Sometimes depression and anxiety come along with the fact that the "Unknown" diagnosis scares you. I know I have anxiety when a new symptom appears. For example I suffer chronic vertigo, dizziness, and light sensitivity. When a symptom changes, intensifies, or is new, my panic begins. I've learned to calm myself down, take deep breaths, and do some types of yoga. These help elevate stressors. Hope this helps
    Anonymous 42,789 Replies
    • February 27, 2009
    • 01:27 AM
    • 0
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  • Hi I have chronic lyme disease and my symptoms are also like yours. I do have what is called ''neuro lyme'' that makes neuropsychiatric symptoms like you do have. If you buy the book ''Coping with lyme disease'' foreward by the actress Andy Mcdonell, you will find a chapter called: ''I'm not crazy, I have lyme!'' Look for neuro psychiatric lyme symtoms. You maby have an infection named bartonella with that. THat increase the panic symptoms. Standards lyme test are not accurate and never a infectious dr will dignose you with this. See attorney general investigation on IDSA guidelines ok. Go get an opinion on ''lymenet''. And seek a LLMD. You are not crazy...
    Fannou 111 Replies
    • February 27, 2009
    • 08:58 PM
    • 0
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