I need some help
2000 I went to the doctor complaining of pain in my upper arm and fatigue, headache, racing heart. The doctor asked me if I had stress and I said Absolutely! I'm a single mom of two. They prescribed antidepressants and my symptoms got worse. Then developed a serious infection. I was on antibiotics for four months. I got another infection from taking care of a sick dog for my son's teacher who had just had a baby and felt the dog was making the baby sick. I was prescribed anti-parasite meds and felt better right away but it didn't last. I went downhill. I continued working , but then I was put on lorazepam for what they thought was "anxiety" and I lost my job as a health writer year later, after 20 years as a writer because the meds made me pretty stupid.
2001 Started teaching two classes a week and tapped my 401K and decided to do whatever it took to figure out what was wrong. I no longer felt it was stress or anxiety or anything like that. I went to a university and they found an adrenal tumor and staph infection on my skin. I was told the staph wasn't that bad, a lot of people have staph on their skin, that it was the adrenal tumor. My cortisol lvels were very high. So I went to a famous clinic and had insurance problems, among other things. They did further testing and my cortisol levels were high, but not that high. But my adrenaline levels were high and they said I probably had a pheochromocytoma. So I had a test --MIBG--that lit up on the left adrenal, not the right one--where the tumor was. Not knowing what to do, I found an endocrinologist onthe Internet who seemed to care and probably stupidly, flew to LA. He referred me to the NIH, where they found two additional tumors in other places.
2002 Had a large vascular tumor removed that was located behind my heart. A tough surgery, but upper arm still hurt and I felt better but fatigued and not myself.
2003 Diagnosed with chondrosarcoma of the bone oin my upper arm--my original 2000 complaint. Had a bone graft, etc. It had been hemmorhaging. I figured that was it--I had lost 30 pounds pretty fast and began to gain weight and was tired, but figured it was surgery. Had to sell my house. Very sad. Then moved into relative's house. I figured it was a new beginning and I planted a huge garden, tried to up my energy, wouldn't work.
2004. Pain in left hip and groin. went to a million doctors. Had hernia surgery. Took me forever to get over. My PTH and vitamin D levels were off and there were nodules on my parathyroid. Had them removed and did feel better in several ways, but still tired and not well.
2005 Turned out pain in hip was an almost completely torn labrum. Had surgery and I could walk again. My hip had been dislocated. Also, had a skull tumor on head that had grown and had surgery for that. Blood vessel broke and they found a subdural hematoma that had been there for 2 to 3 years when looking back at scans. I started to feel like myself, except fatigue. I could finally write again and began to up my exercise and walked five days a week--but that was all I could do. I'd walk, and then that was it for the rest of the day. I turned to prayer, prayer chains, meditation, biofeedback, a vacation--still tired all the time. But I had clarity back in my mind and could think again.
2006 Stomach pain and fatigue. Removed a bunch of pre-cancerous colon polyps and lesion in esophagus. I was determined to get better on my own,sick of doctors and surgery and going through the proceeds of money from the sale of my house to support my two kids and send my oldest daughter to college. Then in fall, had a sinus infection that knocked me out completely--as in bed-ridden. Very depressing for my kids. Very. And for me. Also found a cyst in my throat. Was put on three months of antibiotics and told I had an infection and deviated septum, maybe polyps were causing it. But maybe not.
2007 They found an adrenal tumor on my left and think the cyst needs to come out. Adrenaline levels are high, but not that high. The surgery is very dangerous but more than that, there is no guarantee and without adrenal glands I could be permanently disabled. I was sent to a surgeon in Frebruary and I have been stalling, cancelled surgery twice. Because the doctor's aren't sure which gland to take out. Can't get PET due to insurance. Had bone scan, it was ok. Thyroid is a little off, but not enough for meds and I avoid almost all drugs because they always made everything worse. ENT wants the cyst out and sinus surgery and I can't take it anymore--the surgeries, the lack of definitive diagnosis, the way I've been treated and had to wait so long for what earlier, seemed obvious. And the huge financial loss. I have to move out this house in three months. And now, finally, I am depressed'
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