Discussions By Condition: I cannot get a diagnosis.

Please Help! I'm losing my home...my spirit is broken I don't know what to do.

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: Anonymous
  • April 8, 2007
  • 02:22 PM

I need some help
2000 I went to the doctor complaining of pain in my upper arm and fatigue, headache, racing heart. The doctor asked me if I had stress and I said Absolutely! I'm a single mom of two. They prescribed antidepressants and my symptoms got worse. Then developed a serious infection. I was on antibiotics for four months. I got another infection from taking care of a sick dog for my son's teacher who had just had a baby and felt the dog was making the baby sick. I was prescribed anti-parasite meds and felt better right away but it didn't last. I went downhill. I continued working , but then I was put on lorazepam for what they thought was "anxiety" and I lost my job as a health writer year later, after 20 years as a writer because the meds made me pretty stupid.

2001 Started teaching two classes a week and tapped my 401K and decided to do whatever it took to figure out what was wrong. I no longer felt it was stress or anxiety or anything like that. I went to a university and they found an adrenal tumor and staph infection on my skin. I was told the staph wasn't that bad, a lot of people have staph on their skin, that it was the adrenal tumor. My cortisol lvels were very high. So I went to a famous clinic and had insurance problems, among other things. They did further testing and my cortisol levels were high, but not that high. But my adrenaline levels were high and they said I probably had a pheochromocytoma. So I had a test --MIBG--that lit up on the left adrenal, not the right one--where the tumor was. Not knowing what to do, I found an endocrinologist onthe Internet who seemed to care and probably stupidly, flew to LA. He referred me to the NIH, where they found two additional tumors in other places.

2002 Had a large vascular tumor removed that was located behind my heart. A tough surgery, but upper arm still hurt and I felt better but fatigued and not myself.

2003 Diagnosed with chondrosarcoma of the bone oin my upper arm--my original 2000 complaint. Had a bone graft, etc. It had been hemmorhaging. I figured that was it--I had lost 30 pounds pretty fast and began to gain weight and was tired, but figured it was surgery. Had to sell my house. Very sad. Then moved into relative's house. I figured it was a new beginning and I planted a huge garden, tried to up my energy, wouldn't work.

2004. Pain in left hip and groin. went to a million doctors. Had hernia surgery. Took me forever to get over. My PTH and vitamin D levels were off and there were nodules on my parathyroid. Had them removed and did feel better in several ways, but still tired and not well.

2005 Turned out pain in hip was an almost completely torn labrum. Had surgery and I could walk again. My hip had been dislocated. Also, had a skull tumor on head that had grown and had surgery for that. Blood vessel broke and they found a subdural hematoma that had been there for 2 to 3 years when looking back at scans. I started to feel like myself, except fatigue. I could finally write again and began to up my exercise and walked five days a week--but that was all I could do. I'd walk, and then that was it for the rest of the day. I turned to prayer, prayer chains, meditation, biofeedback, a vacation--still tired all the time. But I had clarity back in my mind and could think again.

2006 Stomach pain and fatigue. Removed a bunch of pre-cancerous colon polyps and lesion in esophagus. I was determined to get better on my own,sick of doctors and surgery and going through the proceeds of money from the sale of my house to support my two kids and send my oldest daughter to college. Then in fall, had a sinus infection that knocked me out completely--as in bed-ridden. Very depressing for my kids. Very. And for me. Also found a cyst in my throat. Was put on three months of antibiotics and told I had an infection and deviated septum, maybe polyps were causing it. But maybe not.

2007 They found an adrenal tumor on my left and think the cyst needs to come out. Adrenaline levels are high, but not that high. The surgery is very dangerous but more than that, there is no guarantee and without adrenal glands I could be permanently disabled. I was sent to a surgeon in Frebruary and I have been stalling, cancelled surgery twice. Because the doctor's aren't sure which gland to take out. Can't get PET due to insurance. Had bone scan, it was ok. Thyroid is a little off, but not enough for meds and I avoid almost all drugs because they always made everything worse. ENT wants the cyst out and sinus surgery and I can't take it anymore--the surgeries, the lack of definitive diagnosis, the way I've been treated and had to wait so long for what earlier, seemed obvious. And the huge financial loss. I have to move out this house in three months. And now, finally, I am depressed'

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11 Replies:

  • Check these out:http://www.hsibaltimore.com/ealerts/ea200611/ea20061110a.htmlhttp://www.hsibaltimore.com/ealerts/ea200306/ea20030626.htmlHSI offers a sometimes valuable perspective. Not sure what your dealing with presently, but maybe you'll find something on this website or in one of the articles.good luck
    Anonymous 42789 Replies Flag this Response
  • Have you had CT and MRI imaging done of these tumors? Also, consider a major cancer center or university hospital- you need to go to someone familiar with adrenal tumors for a second opinion.
    Anonymous 42789 Replies Flag this Response
  • oh no you have illness, you should have your self CT scan first to know what are the possible conflicts
    Anonymous 42789 Replies Flag this Response
  • Look up MEN1 and MEN2 good luck...mommy cat
    mommy cat 1654 Replies Flag this Response
  • DON'T try sinus surgery! Please read what Eatafruit78 says at http://forums.wrongdiagnosis.com/showthread.php?t=13092 - visit www.naet.com to locate a therapist in your area.Begin with homeopathic remedies for nervous tension and sinusitus. Even here in ZA we get a fine homeopathic remedy for sinusitus by Dr Vogel (Europe) called Sinuforce - ask at a health shop. (I should know - few things as deplorable as sinusitus.) In general consider visiting a homeopath. Explain you don't have time or money and can barely afford their diagnosis. Take them your full complaint on paper, to save time and to ensure completeness.You may also want to visit some aura / chakra healers. I've been to some and could actually feel them working on invisible parts of me, some distance away, without physical contact. It usually cures my problem. Identify several in your area, get their prices (the real ones ask little) and visit them all, once only (to save money). Don't judge them, even if some are fakes. Remember to pray to *****t (officially required) and then be confident, you will be protected. Most are wonderful people who just do the science of the future today. Try to get the excellent book "Hands of Light" by Barbara Ann Brennan, Bantam Books, ISBN 0-553-34539-7. She explains it all well.Ok what I add now might be BS, depending on your view. It seems you will need to treat yourself mostly, for lack of money. So I'd consider doing Dr Hulda R. Clark's book "The Cure for All Diseases", it used to be downloadable from www.makulumutis.com/downloads/cure.zip - it has also been published in print. (Doctors hate it.) Her view is that most illness is due to pollutants (many new ones) plus parasites. Either by itself may do nothing, but combined they can be a problem, causing tumors among other things.Hulda tends to over-emphasize, so don't let her depress you. Just take note of her idea. What she seems NOT to know is that our auras have many levels, all working towards health. No need to be extreme. Her diet ideas are worth looking at, avoiding toxic molds etc. By getting this and some other things right, you can help your body in general.Next, you'd need to search for someone there who builds a genuine and safe "zapper". Beware, some that they build, or give plans for online can be lethal, as the mains is not even isolated etc. A better one from Switzerland sells for 4000 US dollars, but you will need only the zapping function, as described in the above book - and the electronic parts for that are cheap. A very sick friend of mine uses the local "Driver Resonator" (about 1400 US dollars) from www.makulumutis.com and it worked extremely well for him. It is also used in some local hospitals here in South Africa.Some quotes by Hulda Clark -"Subsequent testing showed that (our success) was due to battery operation (DC offset, square waves). It kills all bacteria, viruses, and parasites simultaneously, given sufficient voltage (5 to 10 volts), duration (seven minutes), and frequency (anything from 10 Hz to 500,000 Hz). But it takes more than one treatment. It takes three treatments to kill everything. Why? The first zapping kills viruses, bacteria, and parasites. But a few minutes later, bacteria and viruses (different ones) often recur. I conclude that they had been infecting the parasites, and killing the parasites released them. The second zapping kills the released viruses and bacteria, but soon a few viruses appear again. They must have been infecting some of the last bacteria. After the third zapping I never find any viruses, bacteria, or parasites, even hours later.""Zapping does NOT kill shielded organisms, such as those that may be in the middle of your stomach or intestine. The electricity travels along the stomach or intestine wall, not through their contents.""The most important question, of course, is whether there is a harmful effect on you. I have seen no effects on blood pressure, mental alertness, or body temperatures. It has never produced pain, although it has often stopped pain instantly. This does not prove its safety. Even knowing that the voltage comes from a 9 volt battery does not prove safety, although it is reassuring.""The clotting of red blood cells, platelet aggregation and functions that depend on surface charges on cells need to be investigated. But not before you use it. Your safety lies in the short period of exposure necessary. Viruses and bacteria disappear in 3 minutes; tapeworm stages, flukes, and roundworms in 5; and mites in 7. One need not go beyond this time, although no bad effects have been seen at any length of treatment.""The first seven minute zapping is followed by an intermission, lasting from 20 to 30 minutes. During this time, bacteria and viruses are released from the dying parasites, and start to invade you instead. The second seven minute session is intended to kill these newly released viruses and bacteria. The third session (after another 20 to 30 minute intermission) kills the last viruses released (from dying bacteria in the second zapping)."Expensive but similar tricks are Radiant Plasma Resonant Frequency Systems - glass tubes with noble gasses in them, through which is run a type of welding torch arch, producing various fields with frequencies. These guys may at least be able to refer you to an expert zapper builder:http://stenulson.net/althealth/em7c.htmhttp://host14.ipowerweb.com/~stenulso/althealth/emanecdt.htmhttp://host14.ipowerweb.com/~stenulso/althealth/I wish you better.
    Curly Stooge 319 Replies Flag this Response
  • HiI would like to say I'm sorry for all that you have been through and it must be ***l. There is no advice I can give you on your medical condition but I may be able to help you save your home.I'm not even sure if you are a homeowner, but if you are, I can buy you a lot of time, maybe up to 2 years in your home. This what we do:Increased time to try to sell the home or live in it is an inherent Benefit to our services To help stop harassing phone calls To support foreclosure prevention with examination and research results To Formulate a plan that fits within the home owners budget Work to have missed payments moved to the end of the mortgage To provide debt relief for approximately 12-24 months To keep the Family in the home and avoid displacement To do everything possible to modify your existing mortgage (lower, fixed interest rates, reduced or eliminated fees and penalties, and possibility of reduced or eliminated second and third mortgages)If you are facing foreclosure you are not Alone. I can help you and I want to. Just pick up the phone and call. 407-860-1993Hope this helps:)
    PartOfSolution 1 Replies Flag this Response
  • the read flag for me is the adrenals/thryoid. A thryoid "just a little off" can really really effect you! I know as that was my case. This is very, very basic info. but the TSH should be between 0.3 and 2.5.....above 2.5 or below 3.0 is suspect. FT4 mid range of the normal range and FT3 usually mid to upper range of the normal range...I would pay a bit more attention to thryoid and the related adrenal system....Joan
    Joan5555 316 Replies Flag this Response
  • I need some help2000 I went to the doctor complaining of pain in my upper arm and fatigue, headache, racing heart. The doctor asked me if I had stress and I said Absolutely! I'm a single mom of two. They prescribed antidepressants and my symptoms got worse. Then developed a serious infection. I was on antibiotics for four months. I got another infection from taking care of a sick dog for my son's teacher who had just had a baby and felt the dog was making the baby sick. I was prescribed anti-parasite meds and felt better right away but it didn't last. I went downhill. I continued working , but then I was put on lorazepam for what they thought was "anxiety" and I lost my job as a health writer year later, after 20 years as a writer because the meds made me pretty stupid. 2001 Started teaching two classes a week and tapped my 401K and decided to do whatever it took to figure out what was wrong. I no longer felt it was stress or anxiety or anything like that. I went to a university and they found an adrenal tumor and staph infection on my skin. I was told the staph wasn't that bad, a lot of people have staph on their skin, that it was the adrenal tumor. My cortisol lvels were very high. So I went to a famous clinic and had insurance problems, among other things. They did further testing and my cortisol levels were high, but not that high. But my adrenaline levels were high and they said I probably had a pheochromocytoma. So I had a test --MIBG--that lit up on the left adrenal, not the right one--where the tumor was. Not knowing what to do, I found an endocrinologist onthe Internet who seemed to care and probably stupidly, flew to LA. He referred me to the NIH, where they found two additional tumors in other places. 2002 Had a large vascular tumor removed that was located behind my heart. A tough surgery, but upper arm still hurt and I felt better but fatigued and not myself. 2003 Diagnosed with chondrosarcoma of the bone oin my upper arm--my original 2000 complaint. Had a bone graft, etc. It had been hemmorhaging. I figured that was it--I had lost 30 pounds pretty fast and began to gain weight and was tired, but figured it was surgery. Had to sell my house. Very sad. Then moved into relative's house. I figured it was a new beginning and I planted a huge garden, tried to up my energy, wouldn't work. 2004. Pain in left hip and groin. went to a million doctors. Had hernia surgery. Took me forever to get over. My PTH and vitamin D levels were off and there were nodules on my parathyroid. Had them removed and did feel better in several ways, but still tired and not well. 2005 Turned out pain in hip was an almost completely torn labrum. Had surgery and I could walk again. My hip had been dislocated. Also, had a skull tumor on head that had grown and had surgery for that. Blood vessel broke and they found a subdural hematoma that had been there for 2 to 3 years when looking back at scans. I started to feel like myself, except fatigue. I could finally write again and began to up my exercise and walked five days a week--but that was all I could do. I'd walk, and then that was it for the rest of the day. I turned to prayer, prayer chains, meditation, biofeedback, a vacation--still tired all the time. But I had clarity back in my mind and could think again. 2006 Stomach pain and fatigue. Removed a bunch of pre-cancerous colon polyps and lesion in esophagus. I was determined to get better on my own,sick of doctors and surgery and going through the proceeds of money from the sale of my house to support my two kids and send my oldest daughter to college. Then in fall, had a sinus infection that knocked me out completely--as in bed-ridden. Very depressing for my kids. Very. And for me. Also found a cyst in my throat. Was put on three months of antibiotics and told I had an infection and deviated septum, maybe polyps were causing it. But maybe not. 2007 They found an adrenal tumor on my left and think the cyst needs to come out. Adrenaline levels are high, but not that high. The surgery is very dangerous but more than that, there is no guarantee and without adrenal glands I could be permanently disabled. I was sent to a surgeon in Frebruary and I have been stalling, cancelled surgery twice. Because the doctor's aren't sure which gland to take out. Can't get PET due to insurance. Had bone scan, it was ok. Thyroid is a little off, but not enough for meds and I avoid almost all drugs because they always made everything worse. ENT wants the cyst out and sinus surgery and I can't take it anymore--the surgeries, the lack of definitive diagnosis, the way I've been treated and had to wait so long for what earlier, seemed obvious. And the huge financial loss. I have to move out this house in three months. And now, finally, I am depressed' Wow. How are you doing now, 4 months later? Right at the beginning of all of this, your symptoms were pain in upper arm (computer mouse arm?), fatigue, headache, and racing heart. If you are on the computer a lot, coupled with other passive radiation exposure from cells, microwave, electrical equipment etc., this can run down the immune system, and anything which runs downs the immune system promotes candida yeast overgrowth. (medications, environment such as EMF's, radiation, chemicals from cleaners, furniture, off gassing, sugar or refined carbs, pregnancy or hormonal changes, etc.) Then you got medication, which in itself is another cause of yeast overgrowth. This usually goes hand in hand with parasites as well because the immune system is too suppressed to deal with them. ANY kind of infection can be an indicator for yeast imbalance - from toothache, sinusities, arthritis, throat issues to bladder infection... Also digestive stress. The overworks adrenals ("stress glands") produce cortisol when under stress for any reason - it's not just emotional stress as many people believe, but environmental and nutritional as well. I did a little research for you to make the point.. http://www.crohns.net/Miva/education/candidiasis.shtml (exerpt below)"Cortisol Release due to Candida Albicans or CandidiasisWhen under stress the adrenals glands will produce the anti-inflammatory hormone Cortisol. If stress is prolonged Cortisol will continue to be released. Cortisol can lower the immune system and raise blood sugar. Both of these actions increase in Candida Albicans. The immune response is decreased and allows the Candida previously present in normal amounts to begin to overgrow. Some evidence indicates that Cortisol may inhibit or kill friendly helpful bacteria like acidophilus which protects us against Candida." Regarding your bone problems, this can also be a symptom of environment and/or yeast overgrowth. Yeast is very acidic, and in order to alcalise itself to a safe level for survival, the intelligent body draws calcium from wherever it can get it - the bones! (I had a personal issue with this with my hips which is now reversed.) The stomach pains, fatigue, and digestive tract issues AND, yes, depression (! it's not suprising that you are depressed, but there IS a chemical reason for it as well - including post natal depression in new mothers) are some of the most common symptoms of candida overgrowth. It IS relatively easy to get rid of - even huge improvements within 2 weeks, but the only way is to follow a specific diet and take a few easy to get supplements which most health food stores carry. I wrote an article on this for a couple of papers here.. if you would like me to email it to you, just ask. I would also be happy to help you with it as needed..regards, Karen freehelp99@yahoo.com
    Kinesiologist 62 Replies Flag this Response
  • Wow you really have had a tough time of it... and it sounds like you're a real survivor.It don't know how your health is now, but if you're looking for something radical that really works, check out The Journey by Brandon Bays.It's worked miracles for me and a whole bunch of other people that I know.
    Anonymous 42789 Replies
    • January 24, 2009
    • 02:55 AM
    • 0
    Flag this Response
  • Darling, your not in this sinking ship alone. Only advise that I can give you now is to get off as many peds as you can to get your mental back. They have been in your body for sometime now and it will take time to get them out. So if you want somewhat of a normal you again think about what your taking now. Read all the side effects of what your taking. The doctors want people to take this and that. Of course it is for the med companies and the doctors paychecks. We as a whole have to look at the big picture. It is our life and they "Don't care about us" as what Michael Jackson said in a song. Now we have to start caring for each other in some way. I have lost my job after 31 years and was the oldest in my job. It is age, and that is what the big companies do. I can't fight city hall. So many empty homes all over the place. Everyone has been feeding off of us working class for years now. I am loosing my house. I paid $319,000 for it. It is now $164,000 so the money I put down is gone. So I can't get a new loan I have no job. There are so many of us out here. I think we should net-work and live with each other and help each other. My son is grown and I don't have little children now. Thank God. But America has to help each other right now to make it. If you have family and friends to help you then you are blessed. I have medical that I pay for out of my unemployment check. But guess what I can't go to the doctor. I have to pay $3,000 a year before it's free. So I pay each month for just in case i end up in the hospital. Because I can't go for check-ups it costs money that I don't have. Since you are a writer keep writing. Don't give that up. Keep smiling and laughing. Watch funny movies it keeps your mental up. Your not alone in anyway.
    Anonymous 42789 Replies Flag this Response
  • You can save your home. Its worth the fight to save your home, so fight.. Here is how to fight.You need a good reason why you stopped making your house payments. Broke your leg, broke your arm, hip, what ever medical reason you might have, its not your fault you had to pay medical bills, no insurance, medications. Lost your job, less income due to those facts. You need a good reason.Next you will need to be done with your medical problems and bills, you will have to have income and prove your income, income to be able to afford your payments. If you are single, you will have to prove income such as renting a room out in your home for 500.00 a month, maybe 2 rooms are rented out, 400.00 each which gives you a income of 800.00 to 1,200.00 a month. They buy their own food.You have to have a reason why you got behind in payments. You have got to have a income. Maybe rent your garage out, maybe baby sit. Clean houses, for friends.You will be asked for all expenses going out and all money coming in. Maybe you don't have a car, insurance maybe now you have to take a bus, and can walk to the store or go with family and friends places, with no car/insurance/gas/maintance that's less money going out of your pocket, now after all your paper work is figured out what can you afford on your house payment's? 500.00 a month? 600.00 a month? You must be able to figure out your income and out go, and you must have enough left for a house payment, of 600.00 a month, Can you afford 600.00 a month? Having a car is a big cost to you, car payment/insurance/gas/oil/plates/maintance of a car, so cut the car out of your budget, no car no big expence. Now what is your income and your out go? Figure out food to be rock bottom cost. If you have boarder's who rent rooms out or rents the garage for storage, what is your income and out go? All your medical bills now paid your healthy, and can get to the bank to make your payments, that is what they are interested in.. Figure out what you can afford, first, then work on your payments of gas/lights/water. You know you can keep all lights off but 1 or 2 lights, and make your bill lower. You know you can keep your gas on low, and bundle up if your cold, keep that bill low. Work on it. Put it on paper, becaus ethey will ask for a list of these bills and your income. You MUST have enough income to pay your bills and at least 600.00 a month rent.If you have a computer go on line and type on THE HELPFUL HANDS FOUNDATION, ( T.H.H.F. )you do not need a modification, you do not need a lawyer. All they will ask for is all the information i gave you income and out go and a house payment figured into that. They charge a one time fee, one house payment, MINUS one months tax bill and insurance bill. Lets say you pay 900.00 a month like I did, and minus 100.00 for tax and 100.00 for insurance, that comes to 700.00, thats all they ask for is 700.00 to handle your case. If your home is at tax auction, call them, and pay them, they will be in court the next day getting the sale STOPPED by a Judge. If they have to go in that night to stop a sale they have done it.They saved my home. It was up for sale, they stopped that sale, I paid them 700.00 one time, I sent them a letter of stress, as they asked and the Judge stopped the sale, now I had to work with The Helpful Hands Foundation, ( T.H.H.F. ) it took 6 to 8 months, no payments, so i saved that house payment every month. When it was over with the bank made arrangements with them, 600.00 a month house payments and 2,900.00 with in 10 days of the letter they sent me. I paid the 2,900.00 and when I got my bank statement the payment was correct so I paid that house payment.I broke a hip, I had no help, I had to pay medical bills, I had to pay medication, I could not get out of the house, I was ill. I had to pay medical bills, doctor bills, they are all paid now, I have no more debth, now I can afford my home, at a lower payment. Copy of income tax earnings, any earnings. I am sorry I missed my payments, it will not happen again, my american dream is my home, please help me save my home. Its a letter like that, they will need. T.H.H.F. needs to present this to the judge showing your hardship, and what caused your hardship and be assured your hardship is over with. One more thing, the bank will try and get you to fire T.H.H.F. so they can take your home, I hired T.H.H.F. and I would not talk to the bank, that was T.H.H.F.'s job not mine. Every letter I got from the bank I sent to T.H.H.F. When the bank called me I said it is in the hands of T.H.H.F. here is their phone number please call them. The bank sent me a letter asking me to sign and take the right of T.H.H.F. away from them so they did not have to deal with T.H.H.F. I sent that letter to T.H.H.F. Why would I hire T.H.H.F. and then take the right away from them to speak on my behalf ? If your going to do that why hire them. When you hire them your done with the bank, until T.H.H.F. closes your case and it is settled and they send you a letter case closed. You deal with T.H.H.F. and no one else. period. The bank sent me my 1st statement with a house payment of 789.00 I sent that statement to T.H.H.F. and said here is my agreement with the bank for a house payment of 600.00. T.H.H.F. took over and I got a new statement in the mail for 600.00. Save you home, it is easy, they will work with you. Save your house payments, you will need them, after this is settled. When it comes time to settle it, if your do not have the money the bank requires you to have, you better hope T.H.H.F. can further help you, I don't know that part, because I saved the money and they wanted close to 3,000.00 and I had it.. Even if your home was sold give them a call, not sure what they can do, but T.H.H.F. is GREAT and saved my home.Good Luck to all of you out there, spread the word. T.H.H.F. will tell you that you do not need to hire a lawyer and pay big bucks, one house payment is all they ask. Fantastic.Good Luck, God Bless.
    Anonymous 42789 Replies
    • October 15, 2010
    • 11:24 PM
    • 0
    Flag this Response
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