Discussions By Condition: I cannot get a diagnosis.

Please help, I'm feeling very unwell

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Star09
  • July 8, 2009
  • 03:47 PM

Hi, I thought I'd post a message to see if anyone could help me. I do have another drs appt but just wanted to see if someone could ease my mind.

I've been unwell for over a month now. I've been excessively sleeping and having pains in my body, my legs shake when I try to walk and it takes a lot of effort to move my arms, hold my neck up, stand etc. I went to the dr who said I had a "general infection" and prescribed antibiotics. Then, I was sent for a blood test which was negative for glandular fever. A few results were slightly abnormal and I have a very elevated IgM. The dr and the lab had a few discussions but no one atually knows what infection I was tested for. :confused: Helpful! I had a funny ring shaped mark on my chest but it's almost disappeared now, it wasn't sore to touch and I have no idea if it's related or not. I'm waiting to see another doctor but until then, has anyone got any ideas?


Many thanks in advance.

Reply Flag this Discussion

10 Replies:

  • Was your funny ring shaped mark a bulls eye? If so you better thisnk about treatment for Lyme disease.
    Anonymous 42789 Replies Flag this Response
  • Thanks for replies. The dr didn't seem to know, didn't think it was lyme disease, just said the circle mark was coincidence. He thinks I have post-viral fatigue.
    Star09 15 Replies Flag this Response
  • I looked up some pictures on google and also, my mark is tiny. It's almost completely faded and doesn't have the typical bullseye mark. :confused: EDIT: also it's tiny, not even a cm in diameter.
    Star09 15 Replies Flag this Response
  • Update on my situation: The ring on my chest has gone and it was ringworm apparently, which freaked me out until the doctor told me it had nothing to do with worms. :o My GP surgery sent me a letter saying they were unsure why my IgM was elevated and I'm having another blood test. I had a high liver result (I forget which one) which is common in those who drink a lot of alcohol but I drink about 3 or 4 times a year. I think it may be due to one of the medications I'm taking for bipolar disorder. I have an appointment this week and I'm going armed with a list of symptoms;- Excessive sleeping- Diarrhea and stomach is tender to touch- Swollen glands and sore throat- General aches and pains- Joint stiffness- Pain (I can't describe it very well but feels like it's deep in my bones and it's enough to wake me and keep me awake, despite feeling exhausted) in hips, knees, arms, shoulders and neck. If anyone has any suggestions, they'd be gratefully received. I was tested for EBV and it was negative. They seem to think it's post-viral fatigue because I've been feeling like this following viral laryngitis in May. The fact that I'm on medications for bipolar disorder has complicated things but none of my current symptoms are side-effects, except the liver blood test result, which can be a side-effect of lamotrigine (mood stabiliser).
    Star09 15 Replies Flag this Response
  • Anyone please? :o
    Star09 15 Replies Flag this Response
  • My doctor thinks I've got CFS/ME and Fibromyalgia, which makes sense given that my symtomps started after a bout of being very unwell. I had repeat bloods to see if my IgM has gone down. They also tested ANA, does anyone else know what this is? :confused:
    Star09 15 Replies Flag this Response
  • Your symptoms could be related to the medication you are taking. Doctors tend to overlook the fact that medications have side effects. Just a thought, you should look into the drugs the doctors are giving you.
    Anonymous 42789 Replies Flag this Response
  • Your symptoms could be related to the medication you are taking. Doctors tend to overlook the fact that medications have side effects. Just a thought, you should look into the drugs the doctors are giving you. Thank you, I have. :) I have been on these meds for ages and the doses were even lowered to see if my symptoms eased up and they haven't. I consulted a specialist (psychiatirst) who didn't seem to feel my symptoms were related to my drugs. I seem to have become ill directly after a viral infection so I guess ME/CFS makes sense. I dunno, I will see what my blood test results are like.
    Star09 15 Replies Flag this Response
  • Update on my situation: The ring on my chest has gone and it was ringworm apparently, which freaked me out until the doctor told me it had nothing to do with worms. :o Hi, I have just read over your posts and when i read the small ring shaped mark on your chest, I instantly thought of Ring Worm as i had this once before, it is highly contageous, but sounds like that has all been sorted now. Unfortunately, the other symptoms could be a number of things, I'm not a doctor, but i have a failrly good understanding of medical problems which i've learnt through my family.I wish you all the best from the bottom of my heart, and hope all is sorted shortly.If you will take the time to make a final post regarding your results, I'm sure this thread will be of help to others in the future.
    Anonymous 42789 Replies
    • September 1, 2009
    • 04:16 AM
    • 0
    Flag this Response
  • Another update I'm feeling a bit better than I did a month ago. :) I'm already sleeping less but I still feel very tired. The pain in my muscles and joints seem to be the worst problem. I have been a rheumatologist who definitively diagnosed Fibromyalgia and also, I have hypermobility syndrome. I've been having physio anyway for an old ankle injury and the physiotherapist is not treating me for my pain and has given me exercises to strengthen my hypermobile joints. I didn't feel I had ME/CFS when my GP said it and I still don't. I tend to only need to lie down and sleep when the pain is bad. I've heard fibro. can make you sensitive to light which explains why I like to be in my bedroom with the curtains closed and lying flat on my back helps the pain too, as does being asleep. In the middle of all this, I got referred to a gastroenterologist because I've been having stomach issues. They're not sure what's causing it (it was suspected coeliac but the blood test was negative for it) and I'm going to have a colonoscopy. He noted a couple of abnormal blood test results (can't remember which) and wants me to have another blood test before I next see him in a few weeks time. For now, I've been put on a wheat and dairy free diet, which has also helped my tiredness.
    Star09 15 Replies
    • September 2, 2009
    • 07:10 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.