I will try to make this as short as possible but there is a lot to tell.
At age 40 my mom had a stroke and the a few months later she was diagnosised with breast cancer. She is now 47 and cancer free and has no side affects from the stroke. She was doing very well until about 2 year ago. She has had 7 of what we call “spells” in 2 years. They were just happening about twice a year and now ever couple months.
These are her symptoms: She wakes in the middle of the night with very bad stomach cramps. This then follows by vomiting and about 5 to 7 very large bowel movements. Then she will have diarrhea. It is unbelievable how much stool comes out of her. She also will pass out while all of this is going on so it is hard for to get out of bed. The reason she passes out is because her blood pressure drops very low. Her lips will turn blue and swell very bad. She gets hot and cold. Her skin is very clammy and cold. She is in and out of it. This has only happened one time during the day every other time it is at night.
Her blood pressure will get so low that we have to call EMS. When EMS comes her blood pressure is so low they usually can not even get it to take. We rush to the hospital where they do the same test every time. Sometimes her blood pressure will come back up on it’s on or she has to have an IV med called midodrine to raise her blood pressure. While on this med she has to be closely monitored. They give her IV antibiotics and IV fluids and this usually makes her feel better. She gets very dehydrated even before the diarrhea starts.
She has to spend about a week in the hospital while they so the same tests that are always done She usually feels a little better the next day after a “spell” but is very weak. We feel like we wait around for this to happen again because we can not get any answers.
She has had CT’s and MRI’s of the head and stomach, colonoscopy, stool samples, urine samples, blood work, table tilt test, food allergy test, checked her carotid artery (this was blocked and caused the stroke).
When at the hospital they say she has colitis. They also always think she has C-Diff but after a stool sample for 24 hours they say she does not have it. Her colon is always inflamed. She usually gets a UTI while in the hospital. She has had renal failure twice when having a “spell”.
She has seen many different doctors. She has a Gastroenterologist, Neurologist, PCP, Allergist, and Cardiologist. She has had a second opinon from all of these doctors. No one has found anything. Her Cardiologist told us if we do not find out what is going on this will be fatal. All of her doctors send her back and forth to each other. She is very frustrated and so am I.
Please help us!! I want her to have a normal and healthy life.
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