Discussions By Condition: I cannot get a diagnosis.

Please help! Constant pain + urgency to urinate, no diagnosis for a year!

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: TheLemonOfIchabod
  • December 16, 2007
  • 08:28 PM

I'm a 14 year old male, and for a year now I've had a constant burning in my penis. It seems like it's in my urethra but I can't know for sure of course. It is exacerbated at night and when pressure is applied to the penis or the perineum. It's been there since August 2006 and I've run out of options. I've had four completely normal urinalyses and a completely normal catheterization and ultrasound. There is no stricture in my urethra, and I have tested negative for a UTI and urethritis. I'm worrying I'll have to deal with this my whole life. I tried a cranberry diet but it didn't work in the slightest. Strangely, this pain has been constant all except for the two days FOLLOWING my catheterization.

Oddest of all is there is no pain when I urinate, except at the very start. The pain may go away for a minute or so after I urinate but it quickly returns just as awful as ever. I find myself urinating in strange places just to delay the pain for a little longer. I have suffered enuresis all my life(I know I know), and had some anal bleeding for a month or so a couple months back, but that has since ceased. I'm begging for an answer, and I know this sounds like some troll trying to get attention but I swear this is all real and I'm desperate.

Thank you for reading this.

Reply Flag this Discussion

5 Replies:

  • Not a doctor but it sounds to me like the catheterization unblocked something, possibly a stone. I had a similar experience, despite that I am female. Could you be passing stones? Have you tried drinking a lot of water? My doctor told me I have some abnormal transitional tissue at the spot where the urethra and bladder meet. Maybe you have something similar. He biopsied me and checked for abnormal cells, and an ultrasound indicated no tumour. Again, I am not a doctor, but wondering if maybe you are having stones.Also, have you had a blood glucose test? Although it is rare for someone your age to get mature onset diabetes, it does happen. Just tossing that out for you in case you may be having other symptoms you had not linked to this. I really hope you find an answer and a treatment.
    BesideMyself 41 Replies
    • December 17, 2007
    • 03:40 AM
    • 0
    Flag this Response
  • Not a doctor but it sounds to me like the catheterization unblocked something, possibly a stone. I had a similar experience, despite that I am female. Could you be passing stones? Have you tried drinking a lot of water? My doctor told me I have some abnormal transitional tissue at the spot where the urethra and bladder meet. Maybe you have something similar. He biopsied me and checked for abnormal cells, and an ultrasound indicated no tumour. Again, I am not a doctor, but wondering if maybe you are having stones. Also, have you had a blood glucose test? Although it is rare for someone your age to get mature onset diabetes, it does happen. Just tossing that out for you in case you may be having other symptoms you had not linked to this. I really hope you find an answer and a treatment. Thanks for replying. I suppose there is a chance I am passing stones but I find it unlikely because it'd be odd for a stone to form 2 days after a previous one passed, wouldn't it(I too, am not a doctor hehe)? I also think it would show up on the ultrasound they gave me when I had the catheterization. I doubt it's diabetes since I have a pretty normal thirst level and only slightly higher than average urination habits. I do wonder if somehow I actually am not emptying my bladder completely, though I don't know how that'd work. Your help is much appreciated though, thanks.
    TheLemonOfIchabod 1 Replies
    • December 17, 2007
    • 05:25 AM
    • 0
    Flag this Response
  • You could have a strutural thing going on here..What about a STD if you are sexually active (you are a little young, but could still be active)...well, try acupuncture, at least, to help get you out of pain for now and continue with the doctors..
    Monsterlove 2921 Replies
    • December 17, 2007
    • 06:28 AM
    • 0
    Flag this Response
  • My understanding is that some people don't get a big stone, they get something more like crystals or mini stones. That was one of the speculations they had about my pain. Have you ever passed any blood either visible or showing up in urine microscopically? Is your urine really dark or orange? If it's very concentrated that might put you at risk for stones or "gravel." Stones can form in several organs. I'm just a patient and I don't know what sort of differences there might be, but you can check the main site here. My doctor also told me that the abnormal transitional tissue I have can cause "all sorts of problems" even though it's not a tumor or anything like that. I am getting the feeling you might have some abnormal transitional tissue too because my doctor said this is fairly common. I do know that sometimes the bladder might not empty entirely. When I had ultrasound tests twice technicians commented that my bladder was not empty after I had emptied it. One site I saw suggests pressing on your stomach gently at the end of urination to get the rest out. It doesn't do anything with me, but maybe it would for you.You can get urine ketone test kits which if the ketones are high would indicate either diabetes or sometimes infections. They don't cost very much and might be worth checking a couple hours after you eat because you might have a glucose problem that only shows up after a big meal (borderline). If it shows ketones at a low level, that can be caused by other things like stress or weight loss. Here's another odd thought. Have you been allergy tested? There might be something in your diet that is irritating you. I was advised to avoid spicy foods. What was the diagnosis on your bleeding? Am wondering if the two problems are related in some way. I am assuming the tests would have picked up any STD and some so called STDs can be transmitted in other ways. I assume they ruled out a yeast infection? Are you drinking enough water? Has your doctor given you the pill that turns your urine orange? There is an over the counter version of that. It calms the renal system and helps reduce pain for a lot of people. You may have had it after the catheterization. They often give it then or when someone has a UTI in addition to antibiotics. It's specifically for burning pain. Obviously it wouldn't solve your underlying problem, but if it would help with your discomfort, I am sure your doctor would probably prescribe it temporarily while they continue to track this issue down.I hope they can diagnose and treat you soon. Sounds really miserable. :(
    BesideMyself 41 Replies
    • December 17, 2007
    • 09:47 AM
    • 0
    Flag this Response
  • Look up IC- Institial Cystitis. I have this and it sounds very familiar to your symptoms. Many doctors do not know anything about it so you may want to find a Urologist to see. Hope this helps a little.
    Anonymous 42789 Replies
    • December 18, 2007
    • 01:52 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.