Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • February 24, 2008
  • 04:04 AM

I'm a 26 year old female, and never had any serious medical problems in the past.

I've been to doctors offices about 12 times in the last couple of months and I still can't get an answer about what is happening to me. I first went to the doctor this last December for what I thought was a bladder infection. They did find some bacteria the first time, gave me medication, and told me to call them if my symptoms didn't get better in a few days. They also cultured my urine and said that everything was normal. Well the symptoms didn't get better, so I went back and they changed my medication. I did this 4 more times, until I finally ended up in the emergency room. None of the medications worked.

I should mention that throughout this so called "bladder infection," I was never in actual pain, more like severe discomfort. It was really annoying. At the emergency room the did a pelvic exam and blood tests (blood tests were normal), and decided that I must have uterine fibroids. They recommended I see a gynecologist. So I went to Stanford and saw one. I didn't have uterine fibroids, but this doctor said I may have an ovarian cyst (which happens every month anyways for women.) They did an ultrasound of my pelvis and found nothing. They said everything was normal. So I went home and after about a week or so I started feeling better, and I had no problems for about a month. A week ago I felt symptoms again. They said they found "a few white blood cells," and again gave me antibiotics. Throughout this week I've been feeling better on and off, but today it got really bad. So I went back to the doctor yet again. They did a urinalysis and found nothing. they said the urine was clear, except for very little blood. The doctor said "this was normal for someone my age." Whatever that means. Finally he recommended that I see a urologist and get a Cystoscopy. I really don't want to do that. It's invasive and I've had every other possible test. Does anyone have any idea what this could be? Inflammation? Irritation? what? Thank you for your help.

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6 Replies:

  • I know that they did an ultrasound so they may have ruled this out but my 6 year old son was having the same problem I think. He had to go all of the time and was uncomfortable, he had to go like every 15 to 30 minutes, his teacher even called me. His urine was clear but a urgent care place put him on antibiotics. He got worse, then at his regular doctor's they found he had impacted bowels, so much stool in his intestines that there was little room for urine or other abdominal functions. He is now on Miralax for 2 - 3 months so that his bowels will not remain dilated. His urinary function seems to be getting slowly better. Just thought i would share.Good Luck!!
    Anonymous 42789 Replies
    • February 25, 2008
    • 02:13 AM
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  • Also look up Interstitial Cystitis. Go get the test, I had one and it is uncomfortable, but not painful. Plus rule out STD's. They can cause your bladder to act up, too. Good luck.
    matclan 33 Replies
    • February 27, 2008
    • 03:25 AM
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  • Hi ekina,Sorry to hear you are suffering.My Mum is having similar issues. She has serve bladder pain which can come and go over a series of days. She describes it as a burning stinging sensation, like something is sore and when she gets in a certain position perhaps when the sore place is not touching it doesn't hurt so much. The doctors have been unable to help and it is ruining her quality of life.Please let me know if you have had any luck with finding a diagnosis.Thanks and good luck.Katie
    Anonymous 42789 Replies Flag this Response
  • I know this post was a while back, but I've had similiar sypmtoms, they have done cultures, peeing in a cup (every week for like 3 weeks), STD tests, cystoscopy and ultra sounds (multiple) and they can find nothing. They said it was probably overactive bladder and very common for people under stress (which I am but nothing out of the ordinary). They said give it 60 days on detrol LA then call back, I went from gyno to urologist, and the pain is so bad today I started crying at work- I dont think I believe them that this is overactive bladder. Does anyone have any advice?
    lks112233 1 Replies
    • September 25, 2008
    • 08:06 PM
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  • Katie, Ekina, and lks112233: Please look up and get checked for Interstitial Cystitis, as Matclan said; that can cause a lot of the symptoms. And, Ekina, please go to another doctor; having blood in your urine isn't normal at ANY age, small amount, or not. And lks112233, I have also been wrongly diagnosed with overactive bladder, and I was also on Detrol, and numerous other medications that didn't work, and I didn't believe them either, because it's not, and I have also gone through numerous tests, and my condition is still unknown as of this time. Believe me, sometimes the doctors don't know and then they'll either guess, or just turn you away because they can't figure it out. I don't know much about overactive bladder, but I do know it doesn't cause pain, so for your doctors to ignore your pain is wrong. Also, them stating that it's caused by stress is ridiculous...everyone in the world has stress. I wish you all good luck, and I hope you feel better soon. Take care.
    Anonymous 42789 Replies
    • September 27, 2008
    • 03:19 AM
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  • I vote with others here. Interstitial cystitis. Read about it on an Elmiron website. I saw a doctor in Philadelphia at a Pelvic Floor Clinic at Graduate Hospital there. I had never heard of such a thing. Your symptoms sound very much like mine as does your hundreds of trips to docs. Quote: "Inside the bladder, there is a mucous layer that lines and protects the bladder wall. When someone has IC, the mucous layer is believed to be damaged, which may allow irritating substances in the urine to aggravate and inflame the bladder wall, resulting in pain. " All citrus kills me! Elmiron has a list of foods but citrus was my worst. There are several solutions but the right doctor is the first solution! I saw about 10 and only the last one told me to go to an Interstitial cystitis doctor. They are highly specialized. Even if you are not diagnosed, check out every possibility even call hospitals for a good Intersistal Cystitis doctor. If that's not it, they will know what it is !!! I have been free of pain for about 5 years now. Had to eliminate some foods but it was sure worth it. Good luck, hopabout
    hopabout 3 Replies
    • September 28, 2008
    • 07:08 PM
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