I am a 24 year old female who's had anxiety since the age of 12. Around the beginning of September 2009 I suffered a severe anxiety attack. The affects lasted well into October, but by the end of that month I was pretty much me again.
A week or so before November ended, I started having weird heart sensations, shortness of breath and chest pain. The chest pain was so bad I went to the ER and had all the required tests run. Everything came back normal. I told my mom that something seemed really weird/wrong with my heart. We went to the cardiologist mid-December, who told me I had mitro valve prolapse. The MVP can cause a myriad of symptoms so he told me not to be alarmed by the strange thing I was feeling. The thing is, during the time I was having breathing difficulty, chest pain, etc I was also having muscle twitching in my head and back of my neck. I also started having really severe pain in my neck, back and shoulders. I was also experiencing sudden bursts of warmth in places like my neck or hands or feet.
The twitching then spread to my arms and my stomach. On top of that I was just feeling generally unwell. Nauseous, dizzy, feeling of a sinus infection, a slimy substance that would slide down my throat sometimes, and muscle pain. By this time I had typed in my symptoms to google and of course ALS came up. I was very freaked out by it, and, being an anxious person started to think that's exactly what I had.
I eventually convinced myself that all I had was some vitamin deficiency and started taking B-12 and D. Within just a few days I began to feel better. More of myself. The twitching went away and everything!
That was the beginning of Feb. By the end of the month, the muscle pain and twitching had come back. Now it seemed like my symptoms were more severe. My ears were ringing/popping, my vision sometimes would blur. I got terrible headaches with scalp tenderness and the muscle pain was all over my body. Also my joints would sometimes feel achy and my bones began cracking more so than usual. My pinky finger also began to feel weird. Still scared about the ALS I thought, what if this the beginning of my muscle weakness? I also started noticing myself lisping. When I think about it now, I remember lisping a few times earlier in the year and realizing even then that it was weird.
So now of course I'm really freaked out/scared because I'm thinking I have bulbar onset ALS. Just the worst case scenario I can conjure. So I see my GP and tell her about the twitching, buzzing under
my feet, etc and she refers me to the neurologist. Granted she's just humoring me b/c she's sure I'm just experiencing anxiety.
I saw the neuro in early march and during the test I could move facial muscles as well as all of my other muscles, still had sensation, but I had hyperreflexia. He didn't believe I had ALS, but he said to be sure nothing else is going on, he scheduled me for an MRI of my brain. I'm still waiting to go over the results of that test, but other things have cropped up since, starting with my tongue. I've been sucking my tongue all of my life and I just...can't anymore. Seems silly but it's true. I haven't been slurring or anything close to that, but the lisping thing comes and goes. I've also been having difficulty swallowing, which comes and goes as well.
Here's the list of all the symptoms I've had so far:
-weird mucus (yellowish and clear in color) dripping down my throat at times
-Twitching all over my body (even in private areas)
-Burning sensation of the skin
-sudden and brief Bursts of heat in back of neck, shoulders, hands feet
-Tingling in hands/feet
-Feels like popcorn popping/spasming of muscles in my right leg first and now my left arms
-crawling sensation in the back of my neck
-On and off lisping
-Seizing of muscles in neck and twice my arms and neck at the same time
-As of late I feel like either I can't hold my pee as well or I have to pee more
-Gas. Lots and lots of gas. My bowels just feel irritated.
-random low fevers... This was happening since around December
-nausea. It was worse mid-march but now it comes and goes
-difficulty swallowing (not swallowing food)
-difficulty breathing. Recently went to the ER but they said my lungs were clear, even though at one point I felt completely light headed and as if my air passage was squeezing
-out of sorts sometimes/confused
-what feels like pinches or sometimes electricity???? in my back muscles
-weight loss (due mainly to anxiety, but maybe something else)...no muscles wasting though
Sorry for the long list but I just want to be clear about what I'm feeling. I think those are all of my symptoms thus far.
Strange things that happened prior to my feeling sick:
-twice feeling like my whole body was itching severely. I took showers, changed my bed sheets, slept on a different bed and finally concluded that the itching was coming from me. It had happened on two occasions last year and hasn't happened since
-what I now think was an insect bite besides the normal one from a mosquito. It was redder than a regular mosquio bite and just looked different. I don't believe there was a bullseye, but I just remember this thing lingering longer than any other bite. I still remember it for that reason.
-bloodwork which showed me being on the low end of normal for my hemoglobin and thyroid.
-my mom has graves disease and MVP
If anyone can give a helpful suggestion I would be eternally grateful. I feel like I'm at my wits end, and everyone around me is brushing it off as anxiety. I just KNOW there's something going on with me and any help would be extremely apppreciated.
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