Discussions By Condition: I cannot get a diagnosis.

Please help!

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: xarmyangelx
  • September 29, 2011
  • 02:11 PM

Hi, I am a 29 year old female. I have had some crazy medical problems for the past 7 years with no luck in finding an answer. I will list my symptoms and try my best to include everything without the post going on forever. I just would like any ideas anyone has on what could be wrong and things I can ask my doctors about because I have gotten test after test after test and no answers still. I am starting to think maybe I am just crazy since all the doctors can't find something wrong with me and I have had a few tell me there is nothing wrong and its all in my head....I know I really have these problems, but very frustrating that no one can find an answer at all.

Symptoms:
-Headaches, almost constant, gets worse some days and better others.
-Have had 3 episodes that they say are mini strokes because of symptoms, but no definitive proof in labs
-have had viral meningitis 6 times in the past 5 years
- currently have severe weakness in both legs, so bad that I can't pick my feet up when I walk. legs feel really heavy. I have fallen at least 20 times in the past week.
-I have severe pitting edema in my legs (where I push in my legs and it leaves huge indents)
-occasional chest pain
-burning pain in upper abdomen (they say I have ulcers)
-My liver levels are usually higher than normal
-I have a mitral valve prolapse in my heart
-overall itching everywhere on my body
-I have a few spots on my skin that my doctor said are pitechia (not sure on spelling)
-my hair falls out very easily, i can just run my fingers through my hair and will have a clump of hair in my hands, without any effort of pulling on my hair.
-back pain, all the way from my neck to lower back. I do have several bulging discs.
-I have been depressed, but I think thats from not knowing whats going on
-I am always tired. I have fallen asleep a couple times while driving, and at work. They put me on a medicine to keep me awake and I still have problems with fatigue
-lymp node in my neck on the right side swells alot and hurts
-have a lump in my right breast (they said it is nothing to worry about)
-had discharge from my nipple in my left breast
-I get red blotchy spots on my neck and chest
-I get red blotchy spots anytime I go in the sun even with my skin covered and only being in sun for a few minutes while riding in a car.
-Heat makes me feel worse
-no memory, I always forget things and cant seem to focus
-confusion

I am not sure I got everything there, but that is the most of it. If anyone has anything similar or any ideas what I should asked to be checked for I would appreciate it. Right now I live hundreds of miles from any family members and it is just me and my kids. I can barely walk, even when using my cane. I fall alot and will not be driving any more because I cannot effectively move my leg back and forth from the gas and brake. Any ideas or advice would be appreciated.

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1 Replies:

  • How about investigations done for you and treatment you received before?I want also to ask if you have excluded Systemic lupus Erythematosis or not? and did you investigate ANA test?
    drkareemgamal 4 Replies
    • October 5, 2011
    • 00:04 AM
    • 0
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