Discussions By Condition: I cannot get a diagnosis.

Please help: 1st siezure, paralysis, sever joint pain

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: tony79
  • June 18, 2008
  • 03:22 AM

Hello,
I would greatly appreciate it if you could help with the symptoms my wife is currently having.

Last week we were driving and my wife suddenly got weak and had blurred vision. This was around 130pm and she had not eaten. We figured this was the cause and went to get something to eat.About 10 minutes later she had a seizure which lasted about 45 seconds. Afterwards she could not move her arms and legs for about 15 minutes.

The EMS tested her blood sugar levels and we were told that they were not diabetic low but she did eat some before the episode. We went to the ER and the CT scan came back normal.

Since the event she has had joint pain in her ankles and wrist more so on her left side. Muscle spasms. Last night left ankle gave out while standing. Her legs fall asleep quickly when siting and she has been very tired. We went and saw a neurologist she explained that she could have fainted and had convulsions, but she had paralysis after and appeared to be consious during the event so I do not believe this was the cause.

I have searched the net to find similar symptoms and have come up w/ MS, diabetes, stroke, and epilpsy. I do not think it is epilipsy since I have read that you usually do not have much notice before
the event.

Tommorrow we are going in for and EEG so we will see if this shows anything. I just have a feeling that if it is inconclusive that she might have an underlying problem that does not get diagost correctly.
Oh she is 26, white, 5ft4, 135 lbs, no family history of seizure or diabetes. If that helps.

Thanks,

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7 Replies:

  • Unfortunately EEGs sometimes will only show up issues on that test, when one is undergoing the actual seizure or faint or immediately after. (an EEG technician told me that last time i was there having one that I need one while having eposide). I have bouts of brief eposides of unconciousness (up to 5 mins) but my EEGs are always done while im well, and appear all normal. One can also have seizure activity but remain conscious some, others may not even realise one is having a kind of seizure. Let us know how it all goes...
    taniaaust1 2267 Replies Flag this Response
  • Muscle spasms. Last night left ankle gave out while standing. Her legs fall asleep quickly when siting and she has been very tired. When her ankle gave out.. was she also suffering from dizziness at the time???? her tiredness.. does anything in particular seem to bring that on? And has the tiredness made her cut back on her usual activities.. is she finding she's doing far less cause of it?
    taniaaust1 2267 Replies Flag this Response
  • Does she suffer from headaches? Has she had an mri? I was recently diagnosed with a chiari I malformation which can sometimes be wrongly diagnosed as ms and often sysmptoms start in the 20's and is most common in females. Since the malformation affects spinal fluid flow it can cause siezures and paralysis. Hope you find out whats wrong and that everything is okay.
    jefr0g 4 Replies Flag this Response
  • When her ankle gave out.. was she also suffering from dizziness at the time???? her tiredness.. does anything in particular seem to bring that on? And has the tiredness made her cut back on her usual activities.. is she finding she's doing far less cause of it? I think she was not dizzy or weak when it happened. As for the tiredness, I know this sounds pretty obvious, but it seems to me worse when she doesn't eat or sleep much, but the tired and weak is much more amplified then it would normally be for her under those conditions. Thanks for the input keep it coming.
    tony79 6 Replies Flag this Response
  • Does she suffer from headaches? Has she had an mri? I was recently diagnosed with a chiari I malformation which can sometimes be wrongly diagnosed as ms and often sysmptoms start in the 20's and is most common in females. Since the malformation affects spinal fluid flow it can cause siezures and paralysis. Hope you find out whats wrong and that everything is okay. She does get headaches more frequently than normal. From my perspective they don't appear terribly bad more of a general annoyance. Do you mean migrains? Also we are trying to get a MRI scheduled... Thanks.
    tony79 6 Replies Flag this Response
  • Just an update. Here problems persist and is getting worse. 1st EpisodeJune 10 12:30PMLast week we were driving and my wife suddenly got weak and had blurred vision. About 10 minutes later she had a seizure which lasted about 45 seconds. She appeared not to lose consciousness. Afterwards she was unable to move her arms and legs for around 15-20 minutes. EMS tested blood sugar levels and they were okSlight fever 101CT scan at the hospital was normalUrine test normalReleased from the ER no cause found. She was referred to Raleigh Neurology for follow up.2nd EpisodeJune 20 5:30PMHer right arm started to tingle as if was falling asleep. She felt dizzy, weak and started to have blurred vision. This sensation progressed to the rest of her body. A few minutes later she could not move her arms or legs at all and was completely paralyzed from the waste down. She remained conscious during the event and was able to answer simple questions but was not fully coherent. Both ankles were swollen. Feeling and movement to her arms and legs returned after 30-45 minutes. Afterwards she was extremely tired.EMS tested blood sugar level and they were found okSlight Fever 101ER tested blood and urine and nothing foundSymptoms prior/during/after episodes She has had several problems that are worth noting as they might be symptoms of her current condition. 1. Around 3 years prior she started to suffer from what we think is RLS after she gave birth to our first child. At night she would have muscle spasms and aching in her legs that would prevent sleep.2. Lose control of bowel movements3. Legs and arms fall asleep quickly4. Sudden blurred vision and loss of balance.5. Extremely tired6. Aching joints and muscles Here condition is getting worse and she has been restrained to the bed for most of the days following the seizure. She has dizzy spells that seem to be the onset of the problem. She will have to lay down for several hours before the conditions lessens. MRI is scheduled for later today. I hope they find something. I post this here for any user that has any input. Thanks.
    tony79 6 Replies Flag this Response
  • I don have any real suggestions for you i just wanna say that i have a friend who suffers from siezures after he had a benign brain tumor and the siezures continued because of scar tissue on the brain however when he gets overly upset or stressed this can bring on another siezure. If you doctors are being concerned about it and they are fully looking into it rather than dismissing it try not to research her symptoms just keep track of them and hand them to the doctor. The reason i say this is people stress about their health and looking at the worst case scenario to explain her siezures and symptoms could stress her more. If your doctors are looking into it there isnt really much you can do as far as researching on the net cause your doctors probably would have consider the illnesses you are researching. As for the sensation your wife got before the siezure that is normal before a siezure it is how my friend knows to pull his car over or stop working and lie down. Most people miss the signs before a siezure they just think they are unwell which i guess isnt wrong but it isnt being cause by another illness it is being cause by the approaching siezure. Tell her not to be scared make sure there is always someone around her until you can figure it out. let her know that thee is someone with her and they will keep her safe the fear of another siezure can bring on another siezure.just wanted to add another thing i see this with my friend when he has a siezure around people remain calm and please dont hold your wife down or attempt to grab her tongue and make sure anybody around her is aware that this is not what you are supposed to do. i have seen many people panic and do that to my friend he ended up with a dislocated shoulder once because of it it is the worst possible thing anyone can do for her. safest thing is to let the siezure happen remove any objects that surround your wife that could possible harm her call for help remain by your wifes side and once the siezure is complete roll her into the recovery position and make sure she can breath and that nuthing isblocking her airway
    Anonymous 42789 Replies Flag this Response
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