Discussions By Condition: I cannot get a diagnosis.

please help

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: jade1990
  • July 7, 2010
  • 02:57 PM

I am a female aged 19
last year in the middle of my alevels i started getting painful headaches and leg cramps both of which lasted all day everyday for over a week. i went to see my gp who told me it was migraines caused by stress. He gave me migraleve tablets. i then went to my dads for a week whilst on the tablets but spent most of the time in bed as the tablets made me nauseous and weak with the leg cramps and headaches still occuring. i went back to the doctor a week later who still insiting it was migraines gave me co-codomol however that too made me feel nauseous. i went away to london for two days with a friend but was woken up several times in the night by leg cramps. the day i got back i went straight to the doctor again who sent me with a letter to a&e department. when i got there i was taken to MAU where my blood was taken and i was given parecetomol every four hours despite the tablets having no effect. i was examined by a doctor and then told i would be moved to a ward.in the ward i was moved to, i was the yongest with the other being old pensioners which freaked me out. i stayed on that ward for a week having endless blood tests but getting no results. In one week i saw 5 different doctors all of which never read any of my notes and asked me the same questions over again. on the day i left i was told by my mum that the doctor had told her my ck level was high when i first went in but had lowered to normal whilst i was there which they believed was a virus
this being the reason i was allowed home despite still having headaches, cramps and feeling weak and dizzy. i was sent home with a letter to outpatients and a box of 500mg paracetomal (despite these having no effect before)




i went to my outpatients appointment where my blood was once again taken and i was told it came back normal. my consultant then diagnosed me with post-viral fatigue (depression) a told i had a choice of medication or a councellor. i could not see how a councellor would help so was placed on anti-depressant and told to go back in 2months. The tablets improved myself in the way that i felt happy but the pain still continued also with cramps in my hands, shaking and my feet and hands turning blue. i went back and was kept on the tablets a further 3 months giving again the same result. my antidepressants were then changed and i remained on them for a further 5 months. after over 10months the headaches and pains were still occurring with the pain of the headaches causing my vision to blur and me to feel dizzy nearly pass out on several occasions. i went back to a different doctor who read through all my notes and didnt believe i was depressed so therefore took me off them. i have been off them for nearly two months now and the pains and headaches are still occuring. it has now been suggested that i see a psycologist to see if there is something in the back of my mind causing this.

this is a long passage i know but these constant pains and headaches etc have caused me to have to start college all over again, caused me to go on anti-depressants and feel that there is something wrong in my head.

there must be more that could be done beside endless blood tests

please help. i dont want this thing to ruin my life
J x

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2 Replies:

  • I am a female aged 19last year in the middle of my alevels i started getting painful headaches and leg cramps both of which lasted all day everyday for over a week. i went to see my gp who told me it was migraines caused by stress. He gave me migraleve tablets. i then went to my dads for a week whilst on the tablets but spent most of the time in bed as the tablets made me nauseous and weak with the leg cramps and headaches still occuring. i went back to the doctor a week later who still insiting it was migraines gave me co-codomol however that too made me feel nauseous. i went away to london for two days with a friend but was woken up several times in the night by leg cramps. the day i got back i went straight to the doctor again who sent me with a letter to a&e department. when i got there i was taken to MAU where my blood was taken and i was given parecetomol every four hours despite the tablets having no effect. i was examined by a doctor and then told i would be moved to a ward.in the ward i was moved to, i was the yongest with the other being old pensioners which freaked me out. i stayed on that ward for a week having endless blood tests but getting no results. In one week i saw 5 different doctors all of which never read any of my notes and asked me the same questions over again. on the day i left i was told by my mum that the doctor had told her my ck level was high when i first went in but had lowered to normal whilst i was there which they believed was a virusthis being the reason i was allowed home despite still having headaches, cramps and feeling weak and dizzy. i was sent home with a letter to outpatients and a box of 500mg paracetomal (despite these having no effect before) i went to my outpatients appointment where my blood was once again taken and i was told it came back normal. my consultant then diagnosed me with post-viral fatigue (depression) a told i had a choice of medication or a councellor. i could not see how a councellor would help so was placed on anti-depressant and told to go back in 2months. The tablets improved myself in the way that i felt happy but the pain still continued also with cramps in my hands, shaking and my feet and hands turning blue. i went back and was kept on the tablets a further 3 months giving again the same result. my antidepressants were then changed and i remained on them for a further 5 months. after over 10months the headaches and pains were still occurring with the pain of the headaches causing my vision to blur and me to feel dizzy nearly pass out on several occasions. i went back to a different doctor who read through all my notes and didnt believe i was depressed so therefore took me off them. i have been off them for nearly two months now and the pains and headaches are still occuring. it has now been suggested that i see a psycologist to see if there is something in the back of my mind causing this. this is a long passage i know but these constant pains and headaches etc have caused me to have to start college all over again, caused me to go on anti-depressants and feel that there is something wrong in my head. there must be more that could be done beside endless blood tests please help. i dont want this thing to ruin my lifeJ x Maybe I know what is your problem ... I had the same symptoms like cramps, headaches ... Finally, I also used the antidepressants. Now I know that most of these problems were caused by diets low in magnesium, calcium, B vitamins and Omega 3 fatty acids. Sport also helps maintain a good mood, such as running. Believe me, it might help, but some time it will take.
    Anonymous 42789 Replies Flag this Response
  • Im sure it isnt in your head, it doesnt sound like it. im wondering if you have a mild case of ME or CFIDS (i say mild as you dont have many symptoms if it is that). A virus is often the cause of triggering it and will give symptoms like yours so it would fit your history of possibly starting off with a virus. Are your symptoms worst after you excert yourself or exercise?? (if they arent it is doubtful it would be CFIDS or ME) ME headaches can be quite severe in some, i know a young one who was on morphine patches for the headaches. I came down with ME while i was at collage and in my case it was a viral onset. oh and post viral fatigue is different to depression (thou maybe the doctor was confused). http://wwcoco.com/cfids/bernesx.html ................. or maybe its some kind of deficiency issue?? many kinds of deficiencies can cause cramping. I dont thou know which one would cause cramping and headaches but maybe try taking a good multivitamin supplement to make sure.
    taniaaust1 2267 Replies Flag this Response
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