Discussions By Condition: I cannot get a diagnosis.

Please help 17 year old daughter

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: cshultz
  • May 3, 2011
  • 02:16 AM

I have a 17 year old daughter over the last year shes been sick more than she has been and has missed so much school mostly sick with flu like systems recently shes been complaining her stomack hurts all the time she is pale she waighed 100 lbs now she wieghs maybe 96. shes so skinny and she is always tired,

recently we went on a short trip during that trip she hung out with her friends and she told me she had barely eating anything at all the whole time cuz there was nothing to eat. we were gone for a week.

we get home she starts driving across los angles 2 -3 times a day to see her boyfirend plus goiing to school then going to work.

Wednesday nite she pulls into the driveway calls me and says shes so tired n dizy then the phone drops. im not home but my dad is so i call him he runs outside,

Aparently because of exhaugtiopn and malnutrion she has fianted,

He takes her to ER just to make sure she okay he tells them she passed out the hook her up to an IVY n she goes into convolusions. I have spent the last five days in the hospital with my daughter having severve Seizures.

But they come only when shes asleep. The did a MRI and an ECT and a cat scan says theres nothing wrong with her shes faking it discharges us.

My duahgter is still having sleeping seizures and her stomach craps have gotten so bad shes in a ball of tears.

Have they given her something to cause her seizures ? Shes always been perfectly healthy nothing like this runs in our family and i cant get an answer. someone please please help.

my spelling and typing is terrable i apologize im exhausted n the screen is starting to double :)

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5 Replies:

  • I have a 17 year old daughter over the last year shes been sick more than she has been and has missed so much school mostly sick with flu like systems recently shes been complaining her stomack hurts all the time she is pale she waighed 100 lbs now she wieghs maybe 96. shes so skinny and she is always tired,recently we went on a short trip during that trip she hung out with her friends and she told me she had barely eating anything at all the whole time cuz there was nothing to eat. we were gone for a week.we get home she starts driving across los angles 2 -3 times a day to see her boyfirend plus goiing to school then going to work.Wednesday nite she pulls into the driveway calls me and says shes so tired n dizy then the phone drops. im not home but my dad is so i call him he runs outside,Aparently because of exhaugtiopn and malnutrion she has fianted,He takes her to ER just to make sure she okay he tells them she passed out the hook her up to an IVY n she goes into convolusions. I have spent the last five days in the hospital with my daughter having severve Seizures.But they come only when shes asleep. The did a MRI and an ECT and a cat scan says theres nothing wrong with her shes faking it discharges us.My duahgter is still having sleeping seizures and her stomach craps have gotten so bad shes in a ball of tears. Have they given her something to cause her seizures ? Shes always been perfectly healthy nothing like this runs in our family and i cant get an answer. someone please please help.my spelling and typing is terrable i apologize im exhausted n the screen is starting to double :)She needs a psychologic evaluation to identify her stresses.
    Anonymous 42789 Replies Flag this Response
  • Hi. I can help to find out what's the problem with your daughter, but I need a detailed information regarding her conditions and tests. The info in your message is not sufficient for estimation. If you need my help, please notify.
    alltimatehelp 128 Replies Flag this Response
  • Hi. I can help to find out what's the problem with your daughter, but I need a detailed information regarding her conditions and tests. The info in your message is not sufficient for estimation. If you need my help, please notify.please help i dont know what kind of information you need but i have copies of all her records and test.last night she had a seizure that lasted on and on for 25 minutes i had her rush to ER. but yet still nobody can tell me anythingmy name is Amanda 818-917-4378
    cshultz 1 Replies Flag this Response
  • You should answer my questionnaire. I'll ask you about results of some tests. Please contact me by email:alltimatehelp (at) hotmail (dot) com
    alltimatehelp 128 Replies Flag this Response
  • Sorry to hear about your daughter, with what you describe and saying flu like symptoms, it sounds like CFS/ME (unless her immunity has been run down by eatting disorder???). Presenting firstly as like a virus or a flu like illness is a quite classical onset of it. It can be an on and off like illness especially at first and can come on suddenly or gradually. ME is the most common cause of long term school absence in children (thou ME is more common in adult females). I suggest to post any abnormal test results on here so others can read them and possibly suggest things from them. There are certain abnormalities in ME which may or may not show up in tests. I also suggest to always get copies of her test results as doctors will often ignore slightly abnormal results as they may not be able to link them with an illness they know so ME abnormalities are often ignored due to that. ME is a very misunderstood illness with it even being diagnosed differently in different places (the canadian diagnostic criteria are the best ones worldwide) and many ME patients are accused of faking illness. Most doctors arent up to date with ME info and really dont have much of a clue when it comes to this illness. So please for your daughters sake do some research, read ME forums and listen to what ME patients have to say. She needs to see a ME specialist to either diagnose it or rule it out. Check out http://wwcoco.com/cfids/bernesx.html which has a great list of ME symptoms based on studies (Ive had ME for 14 years and get 90 different symptoms). A couple of CFS/ME forums I suggest to check out to learn more of the illness are http://forum.notcrazy.net/ and http://forums.phoenixrising.me/forum.php Do make sure she hasnt got an eatting disorder and not eatting due to that first but if it isnt that... for her sake check out and learn about ME esp if you cant find another cause.
    taniaaust1 2267 Replies Flag this Response
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